I first had hormone positive breast cancer in 2020. Five years later after a full mastectomy radiotherapy and anastrozole it mutated to triple negative and spread to my spine ribs and pelvis. My oncologist was surprised and I went to the Royal Marsden for a second opinion. Again he didn’t think the bone biopsy was correct and another 2 weeks were wasted retesting the biopsy only to find that it has mutated. The only treatment is very old chemo followed by a painful death . Is there anyone out there who can give me any hope???
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Goodness @lenny2 I’m so sorry for your latest diagnosis. What a blow especially after your treatment in 2020. I am new to this breast cancer journey so I can’t offer any real advice I’m sorry.
All I want to say is I’ve listened to lots of positive podcasts and watched lots of positive YouTube videos of various cancer survival stories. Some of them said to their doctors, ok I’ll do the treatment BUT there’s no way I’ll be dying of anything anytime soon. Alongside the treatment they changed their diets, their lifestyles. Made sure they moved their bodies every day, had lots of fresh air. They got rid of negativity. I am reading a book currently called Radical Remission by Kelly A Turner. Sadly there is no miracle cure for any of us but half the battle in these stories seems to be mental. So don’t just accept a situation you aren’t happy with and keep control of the things you can control. Question everything they tell you and ask about alternative treatments and trials that might help you. Alongside treatment I hope you can try to enjoying the little things. At this point stress and worry, although you’ll be filled with it, it won’t serve you. Fill your life with love, laughter and joy where possible. Chemo is only 1 of many things that can help you fight this 
Sending you big squeezy hugs
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Hi lenny2,
I’m very sorry to hear your news.
I was diagnosed with hormone positive BC in 2019 and then found out it had spread in 2022 and was now triple negative.
I came off the letrozole and started a quite aggressive chemo regime of EC, then paclitaxel + carboplatin, along with pembroluzimab immunotherapy. All of this worked at shrinking the cancer, but that level of chemo is not doable long-term so I had a gentler, oral chemo after that, along with more radiotherapy.
I’m currently on Trodelvy, a targeted chemo that was only licensed a couple of years ago, and I’m feeling well and enjoying life.
When you get a second diagnosis, it can feel like “the end” and it takes time to come to terms with, but please believe that there are plenty of treatment options for us triple-negative these days, and you can still live a good life for a long time.
If you need support at this time, you can talk to the nurses on here (phone Number is 0808 800 6000) and they can listen, advise, and hopefully point you in the direction of other services if needed.
Sending you best wishes x
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Hello, you are definitely not alone. This post is in the treatments section but if you look at the menu page there is also a triple negative section so there is a whole group of people with your cancer. I believe it is less common and more likely in younger people. I know quite a few ladies that attend my London tea and chat with Make 2nds Count. There is also a private Make 2nds Count Facebook page where you will defo find others. In terms of treatment lines some are listed here: Treatment Lines - METUPUK
I also think it is worth registering with Make 2nds Count trial service as I think there are some trials for triple negative cancer that would mean more treatment lines.
Please message if I can help at all. I’ve been living well with SBC since June 2020 so have learnt a lot along the way.Xx