I’m due to start this at the weekend and I’m interested to hear about other people’s experience of it. It doesn’t seem as commonly used as Letrazole for post menopausal women.
I’m post menopausal will be 51 in about 7 weeks and I am her2+
Hi Chaffinch
I am 8 years post diagnosis grade3 and Her2positive
I have taken anastrozole for 3 years and find it manageable with minimal stiffness and fairly light hot flushes
But I do exercise daily and this really minimises side effects so go for it if you can as it also keeps your mood good-important for us Her2 girls!
Best Wishes x
Thanks ladies, good to hear positive things. I’m an active person too so hopefully that will help. I’m doing the walk all over cancer challenge for March 10,000 steps every day so will be walking to rads and back each day if the forecast wintery weather lets me ?
I am her2+ as well and have been on Anastrazole for a few weeks. I have been an absolute
bawling emotional mess for many of those days. It also made me unable to sleep. So, I have
started taking OTC sleeping pills. Although I am a bit sluggish in the morning, sleep is so important
and helped my mood swings. best of luck to you!!
I’ve been taking Anastrozole for about 18 months now. I’ve been lucky in that I have minimal side effects,. It’s only in this last couple of weeks that it seems I should have been prescribed Adcal D3 at the same time. I’ve just started on these as well so will see if there is any difference. My main side effect is aching legs and hips but after seeing some posts on here, I haven’t got much to moan about.
My dreams are something else lately…I could write a book! An average night is being hunted by the gestapo, a dismembered head in a carrier bag and the other night a man in black shooting an elderly lady in the head who subsequently died in my arms…no wonder I’m worn out!
Hi I’ve been taking Anastrozole for 2 years , I too was her2 positive , my side effects have been hot flushes stiffness in the legs and difficulty in sleeping . The stiffness in my legs has gone , the flushes aren’t has bad now but I still have problems sleeping, I can go to sleep no problem but then I can wake 2 or 3 times during the night does anyone else have problems sleeping with this medication.
Hello all,
early days for me and first time posting. I am hoping that people will tell me if they have suffered hair thinning or not on Anastrazole. I know its me being vain, but its one of my fears. Im just post surgery for lumpectomy and seminal node biopsy.
Thanks
Thanks ladies,
didnt realise how how quickly I would get such great replies!
I am a very active 65 yr old with a lovely little granddaughter to take my mind off me, once I feel a bit better and not so scared of being hit/kicked. I only had surgery last Wed.
Im a bit nervous of results, but if all is well, it will be radiotherapy for 3 weeks. You’ve all made me feel so much better about the side effects, I have fine hair anyway, so the thought of losing some isn’t appealing.
It seems Accord is the brand to go for, can you request that from the Dr?
Many thanks, Sue x
Hello ladies. Starting my Anastrozole tomorrow. Any preference for taking morning or evening ???
Thanks ?
Ladies thank you all for your replies… I guess I will try it in the mornings and if I can’t sleep then swap it around… trial and error I guess
I really appreciate you all sharing ??
So I have swooped the Anastrozole to night times now - not really sure if it is that keeping me awake or just the cancer treatments generally… I guess I will find out. ??
I have been on anastrozole for 3 weeks everything was fine for 2 weeks just the odd hot flush bit tearful occasionally but on the whole manageable. on the third week I have been getting headaches which no amount of painkillers get rid of. has anyone else experienced this also sleep disturbance because of the headache. I am also taking adcal d so don’t really know which could be causing the headaches.
Hi Fezzy. Yes I am getting headaches, but I put it down to not drinking enough through radiotherapy- but it could be the Anastrozole… are you experiencing any nausea?
I have not had any issues at all with headaches while on anastrazole. Only the severe hot flashes
and crying jags in the first couple months. Good luck to you gals!
Thanks Fezzy. I guess we will have to wait and see if the SEs start to lessen or change ! Yes keep drinking at least 2 litres a day ??
Morning. Having not had rads for 2 days the nausea is still here so I am putting it down to the Anastrozole!!!
Thank you Appletree that is really useful to read
If it’s ok could you let us know what the medics advise at your appointment?
Thanks. WWxxx
I have been on it for a week …
From day 1 I have had mild queasiness and headaches , Day 3 I woke at 3am to a hot flush (having never had severe ones iwth the menopause, this was a bad one for me) and then at 4am as if someone was trying tohit me with an iron bar on my shins…
The mild nausea was at a level that if I didn’t have to go out I wasn’t going to, but as I had to I carried a carrier bag ‘just in case’ on a 4hr drive I had to do.
Am also concious of a mild itch ‘down there’ at times
Saying that…
The hot flush has not come back (long may it last!) but the man with the iron bar is hiding under the bedclothes and my fingers, knees and ankles are noticably stiffer. I am trying not to take too many paracetomol but take it as and when. Still have a mild morning sickness sensation which is not too bad.
Not sure how I feel about being stiff and achy for 5 years, but still…
That little pill packs a powerful punch!
Start radiotherapy soon, so that will be an interesting addition to the mix!
Hello lovely ladies…, I saw an oncologist today who said sage may help with the hot flashes. I am thinking about trying it but not really sure I want to take anything else. Has anyone else been told about this… ?