Hi all,
I don’t come on here very often these days as happily I can report that the mets on my lungs have now disappeared and I am currently enjoying a clear NED period. However, due to the initial dx of mets I have to continue on Herceptin forever and some form of hormone therapy. Recently I stopped taking Tamoxifen as I found in my case that I had very extreme side effects including weight gain of nearly 5 stone, crippling joint pain to the point where I had trouble walking, 3 migraines a week and of course the unbearale hot flushes. Since I stopped the Tamoxifen I have completely got rid of the headaches, my mobility is improving and the hot flushes are getting less. The weight gain is slowly falling a way but my onc has decided that as I am now through the menopause (at the age of 45) I should still be on some form of hormonal treatment and has prescribed Arimidex, I should of started taking it a week ago but I am scared that I might get all the side effects back and become miserable and suicidal again the worst by far is the huge weight gain I waddle around and am not used to the weight after spending a lifetime of being 8 stone!!! now 14 stone. So my question is to all you ladies who have been on or are currently on Arimidex and what side effects you have encountered so far and importantly does this include weight gain? I have decided that I would rather not take anything that makes me feel suicidal (tried anti depressants and they made me go loopy) and after 3 years of fighting this I feel quality of life is more important. Thanks for listening and I hope someone can help me out and reasure me about some of the terrible side effects I have been experiencing particularly the weight gain.