Just wanted to ask you ladies of wisdom something please.
Woke up this morning after getting letter from hospital saying they may need to do biopsy as seen something on ultrasound scan. I feel very down and anxious, I keep having mood swings too.
Surely its too early to feel like this, what am I going to be like if and when have any more tests done, I seem to be falling apart.
Also wanted to ask, I am probably clutching at staws here but appointment is on 11th January (originally seen 16th Dec) surely thats quite a while to wait to see the ultrasound people again to determine if there is something wrong? Or is this about the right timeframe at this stage? Thanks Caroline
Hello Caroline
sorry you are in this position - not the best way to welcome in a new year!
I think that the anxiety is exactly what most of us experience - too many ‘what ifs’ running through our heads and no solid information, its not surprising thoughts run amok. It is tough having fears like that, and you need to be kind to yourself.
Its easy to tell yourself to be logical - much easier said than done, but at this stage, you don’t know that you are ill, and it may well be that you are absolutely fine - I certainly hope so.
I don’t know about the timescales for ultrasound and call backs, as i found my lumps myself and we have a ‘one stop clinic’ so I was diagnosed in a day - would imagine that christmas/new year hols are messing things up to a degree.
I hope it all goes well - will be thinking of you
let us know how things go
best wishes
monica xx
Hi Caroline,
I feel the same about the time frame, i feel as though ihave been waiting forever and getting more anxious by the day.
I was re-dx 4th time on 4th dec did mri and ultra-sound over one wk later then bone scan one wk later again and now waiting for ct-scan to be done on 5th jan, so it will be over 4 wks and still to see consultant, she has told me at the moment she plans to remove lump from recon breast and that i will def have chemo again, but god knows when, she told me this after mri but still to see her since and the onc.
The bc nurse phoned me today and told me not to worry they will be looking out for the results quickly and get things moving, she was very understanding of my feelings but like everything else there isn’t anything else any of us can do when we are facing these situations.
My husband keeps going on about how terrible it is having to wait all this time and worries things will get worse, but that is life eh!
Love Reneexx p.s hope everything is okay for you.
I think what you’re feeling is perfectly normal and understandable. I’m a total grumpy cow when I’m waiting! I hate waiting… no control, aagh. Not knowing is worse than knowing what you’re up against (or, hopefully with fingers crossed, worry about something that turns out to be nothing)and what’s going to happen. For me knowing actually gave me an amount of calm, a come on let me get at it feeling rather than the panic of what if.
I can’t comment about time scales as we are lucky enough to have a one stop testing clinic here.
Thanks for the comfort messages ladies, I do feel slightly better knowing I am not the only one feeling like this and its apparently normal. Just feel if this is all for nothing will I feel like an idiot, on the otherhand I hope to feel like an idiot 100% if it means there is nothing wrong with me after all. Best wishes to you all and will let you know how I get on.
I am sure I will end up posting something else soon anyway lol Caroline
just got back from my 1st mammogram breast screening,i told her about a lump i have, she took notes and said i will get results back in 2 weeks so i guess its just a waiting game
I was diagnosed with bc on the 3rd of november then didnt see my doctor again untill the 22nd of december inbetween I had a mri then I got sent for another biopsy it turned out to be a cycst I got a lumpectomy on xmas eve Im now waiting to find out when I start my rads I think you feel like I do the wait is too long all the best for you xxxx
Just an update, Breast Clinic phoned yesterday to check i had got letter to come in for ultrasound on Monday, I asked the lady on the phone if the notes say why i need a second ultrasound done? She looked at the notes and said it says they want to ultrasound the left boob and a possible biopsy!!
Problem is I went to doctors in the first place because of a cyst in the right boob, no problems with left one at all. So really worried again now, god knows what they want to check, i cant feel anything there. It was very painful when they did the original ultrasound scan and i did wonder if there was anything going on, now i know i was right.
Anyway going for 2nd ultrasound on Monday so wish me luck
It’s hard, isn’t when you don’t understand what’s going on. I have no comment on their plans (I’m no medic), bu it would leave my throughts racing. all the best with it all! And yes, I can totally understand the mood swings!!!
Hi Caroline, I just wondered how you got on today at the hospital. It is scary when you do not know what you are dealing with. But think of it this way…if it wasn’t for the fact that you went to your GP re your Right breast you would not have known there was anything on your Left one . I think it is good that they are checking you out. You may not have known anything if you had not made that decision to go to your GP. It may be nothing at all to worry about…but if it is you will be able to have the treatment early to deal with the problem. We will be there to hold your hand. We know exactly how you feel and will be on here anytime day ( and sometimes night) to read your posts. Let us know what is happening. Love Val
Well went for ultrasound today and consultant cant actually find any lumps. He said sometimes the radiographers ask for a second opinion if they really are unsure and in this case the lump just seems to have disappeared. They were both very puzzled and said sometimes it just happens. It was 3cm in size but two people looked at the ultrasound and cant see what the radiographer saw 2 weeks ago. I am not complaining I can tell you.
Just to be sure I have to go back on 1st February to make sure it doesnt suddenly come back!!
I will let you all know how it goes on the 1st but am optimistic that if it were something really bad it wouldnt have just disappeared like that.
Thank you to everyone who has answered by questions on here, you lot have been my lifesavers for the last few weeks. Keep strong and Safe. Carolinexxxxxxxxxxxxx
Hi Caroline, Thnaks for letting us know. Glad it is good news. But it is also good that you are going back to check it again on Feb 1st. Let us know what they say. Well done. I am so pleased for you. Love Val
Hi everyone why does it take so long for test results to come through got my dx 3rd november wle 24th december got clear margins and nodes im still waiting to find out other results which still arent through It has been said it should just be rads I get but there not 100% sure have been to see about rads no start date given yet but im left with the worry it might be chemo as well have phoned bn but she just keeps on telling me they will be through any day then cant wait to get off phone do any off you have this long a wait lori xxxx
Sorry that you have had such a long wait Lori. I wonder is the Christmas/new year has unfortunatly caused a delay in the labs or perhaps one of the tests the lab is doing takes a longer time than the others. I know that this has happened to me before and was told the test they were doing took longer. It doesn’t help though does it? You have phoned the BN you say. Did she say she would follow it up and phone you when results were back? Honestly the worst bit of all of this for me has always been the waiting. The waiting is the pits. Let us know when you get some answers. Hugs coming your way.
got a letter this morning to tell me I start rads on the 28th go on the 26th for planning appointment still no news on test results so hopefully will be sometime this week fingers crossed xxx
Hi finally got my results back great news everything else was clear will be just radiotherapy I get start on the 28th at wgh edinburgh at least I can relax abit that Iknow it is radiotheraphy
Hi Lori, I see you have written on another thread too. There are a few of us on the “Edinburgh and Lothian” thread and most of us go to the WGH for treatment. There is Lulu, Dotchas, Beverley, me, and a few others. So look on that thread if you want some company while you are having treatment at the WGH.
I am so pleased that you got good news. Now all you have to do is get your head round radiotherapy. I am sure you will do just fine. But there are lots of us who are on here who go to your hospital. Keep in touch. Val