Thanks for the update. I hope you feel a bit better now you have a plan.
Best wishes for Wednesday.
When you start chemo you might like to join the monthly chemo starters thread, they are so supportive with others going through chemo at the same time. Just search at the top of the page using the month you start. Going by my own surgery them chemo, I was 2 months after so you would be probably August.
Wishing you well with lots of luck with your surgery,and on going treatment.
I have had a mastectomy on the right side, also a lumpectomy and radiotherapy on the left for me comparing both treatments found the left side what a lot more straightforward, surgery in the morning, home by teatime, I did have 15 sessions of radiotherapy which can be tiring, however understand the normal treatment has been cut to 5 sessions.
Take one day at a time, wishing you health and happiness going forward, please let us know how your getting on when you feel ready.
I’m glad that you have a date for your operation now and a plan in place. I’ll be thinking of you on Wednesday and hope that everything goes as well as can be
I had my appointment with the Consultant surgeon. They tried another VAB biopsy but it failed. So then I saw the Consultant Radiologist and surgeon. Apparently my breast is famous! as everyone has been discussing what to do. They have recommended a surgical biopsy as they said that they need to find out if it’s cancer. They put a wire in via mammogram in the morning then the consultant would make an insertion and pull the wire out with the calcifications for biopsy. Like you, Daisy, mine is in the upper outer quadrant so it would be a cut around the nipple area. And of course, if it’s positive, I’ll need more surgery. It’s been a lot to take in.
Sending all you lovely ladies lots of love and hugs
I’m sure all our boobs are now famous after lots of discussion at MDT. It did make me giggle as the consultant said it as she walked into the room with me trapped in the mammogram unable to see her.
I’ve been too scared to talk about it. I’ll keep you updated
Hi I’m in a terrible state surgery planned for wed I have been to Tenby over the weekend thought would go for a break before everything starts I was due to go to the hospital to sign consent on the way back from Tenby my neck felt odd just above my collar bone and I could feel a small lump we went to the hospital I told the consultant and he has done an ultrasound scan and it looks like lymph nodes in my neck are affected and consultant has to seek advice from the oncologist he is not sure whether my surgery is going ahead or not yet he phoned me earlier and said he has arranged an urgent pet scan to check spread again this should happen in a week he has not been able to speak to the oncologist and he is going to speak to them tomorrow and his colleagues in Cardiff I’m scared full of anxiety has anyone had something similar and just wanted to say thankyou to everyone for the support xxx
Thinking of you have you had any updates im full of anxiety again went to sign consent form but earlier in the way I found a small lump in my neck above collarbone know I have to have pet per scan as urgent thing cons has to speak to the oncologist and I’m not sure if I’m having surgery on wed or not xz
Oh no @daisy69 you must feel terrible waiting to hear and worried about it all. Fingers crossed that it is a false alarm let us know how you get on tomorrow, if you hear anything.
I’m due to have my operation on Thursday. Absolutely terrified. All confirmed today, got pre op tomorrow and now my voice has gone. Not sure if it’s stress or because I’m a teacher and going back to work, using my voice in a different way. But nervous that they will say I can’t have the op. But it’s nothing compared to your worries. I’m thinking of you and sending so much love and hugs
Aw bless its prob just a viral thing I imagine all should be ok with that can you ask the gp to check you out today
I’ve had my surgery cancelled got to go for a pet scan tomorrow and he has discussed with an oncologist and colleagues in Cardiff and will prob have some chemo first then surgery this journey sucks I’m slightly more calmer than I was yesterday xxx
@daisy69 I’m sorry your treatment plan has now changed due to finding this lump, it’s definitely what you had planned. But if I’ve learnt anything on this cancer journey is that it’s not straightforward, there are bumps in the road but we can overcome them.
I had chemo, Herceptin and radiotherapy at Velindre and I know you will be in the best hands with the great oncology team. I finished Herceptin in September 2024 but still have regular check ups as I’m on Aromatase Inhibitors and Zoledronic acid.
Thankyou both I’ve been injected for the pet scan I really am so scared of the results aw naughty boob you have been through a lot thankyou for the support hope I don’t have to long to wait for results or whatever else is needed xxx
@daisy69 how did your PET scan go? I hope that it’s a false alarm. It’s terrible when plans change as you get your mind into thinking it’s going to be one way then it’s another. I’m so so sorry for you. I’ve been thinking of you all day.
@naughty_boob is amazing in her support for others. You are so kind, caring and thoughtful even when going through awful times yourself.
They cleared me for surgery with my lost voice. It’s actually better today. Fingers crossed for tomorrow. Got to be at the hospital for 7.30, mammogram for wire insertion at 9.15 and operation scheduled for 11ish. I’m just praying that they can get these little ones this time. Got my results appointment in two weeks.
The scan was okay prob one of the better tests I’ve had recently it was long waiting the hour after being injected for the scan and the scan was okay I’ve been told it will be 3 to 4 working days for results I know the consultant and breast nurse is looking out for them glad you are cleared for surgery tomorrow and I wish you well Imgoing out Tom to see my grandchildren they will take my mind off things for a bit thanks everyone for the support you all really are amazing xx
How are you feeling @daisy69? I hope those beautiful grandchildren of yours took your mind off things for a while.
I’m doing ok after my operation. I had difficulty with the wires being inserted under mammogram. I was there for 2 hours. The first was fitted and then moved when they were double checking the position, so had to start again. My breasts are apparently very dense and mobile which has caused great difficulty
The surgeon and all the team were amazing. They were so reassuring when I had a total wobble. They were right when they said that the worst was over and the surgery was the easy part because I would be fast sleep. I had plenty of morphine afterwards and was home that evening. Now resting in bed with painkillers and a sports bra.
The surgeon did get some calcifications but not sure if enough to make a diagnosis because of my awkward breasts. But we have everything crossed Dressing on for 2 weeks until I visit the clinic for it to be removed and hopefully results
So pleased operation went well, I also had issues with the wire insertion but mine was the day before. I had to have a transmitter placed aswell just to be sure the could find the tumour as it was far back near the chest wall. I had 2 tumours, the other side was relatively easy and was performed by a registrar. The awkward one was done by the consultant.
Take it easy, do the exercises when you can. Don’t be hard on yourself if you struggle a bit you will get there. Fingers crossed for your results aswell.
Thank you @naughty_boob
It’s reassuring to know that it’s not just me having trouble with the wires. I’m sorry that you have been through so much. I swear that mammogram machine hates me
I’m resting, taking all the pain relief and feeling a bit emotional as it all hits me but it’s early days. Your reassurance helps so much. Thank you
Hi I’m glad they managed to get what they needed in the end you have had a bit of an outing I’m not great waiting on results some times I’m fine in control and other times I’m an anxious mess thinking all sorts of things I phoned breast care nurse on Friday but results not back she and consultant are looking out for them hope they are back soon I feel like I’m in no man’s land at the moment had a plan but now no plan and worried what’s going on in my body I was ill after the pet scan as well bad back flushing headache burning urine went to the gp she thinks it was a reaction had to have kidney bloods checked again but that has subsided again yes grandchildren were lovely seeing them again today and maybe the pictures later
Thankyou lovely people
It’s the worst waiting for results. You have had such a difficult week too with expecting surgery last Wednesday and now everything upside down. I’m so sorry that you had a bad reaction after the PET scan. What we have to go through! Hopefully, you will have some results in soon. I have everything crossed for you.
I am very tired, my bed and the sofa are my best friends at the moment. But managed to have a wash today! Small wins! Hopefully I’ll try my hair in a few days.
I wanted to update you all after my appointment yesterday and share some good news…I have not got cancer! Benign changes including a fibroadenoma (now two in that breast), ductal mastitis and calcium.
I know that a lot of you have followed my long journey since February which has involved so many failed biopsies, anxiously waiting, not knowing, MRI scans, MDTs and finally a wire guided excision surgical biopsy.
You have all been so kind, caring, thoughtful and reassuring to me, despite what you are going through or have been through, all along my journey. I want to thank you from the bottom of my heart Having you to share with has saved me from going totally insane so much times. Each one of you is a very special person and I wish you all the best in your treatment, recovery, living with cancer or life post cancer.
I have been extremely lucky to have a wonderful team at the hospital, the mammogram radiologist and my surgeon who had the determination to get answers for me, although I doubted it at points whilst waiting, they have been amazing. I couldn’t have asked for a better team.
I hope that if anyone is reading this and in the same position, of anxiously waiting, maybe you will find comfort that the waiting, not knowing, having numerous failed biopsies is incredibly awful and so very distressing. My body made this a very difficult process for the doctors and me but we got answers in the end. And they were good answers.