Any advice re. Lymph node clearance

Hi

I found out yesterday that 10 lymph nodes had been removed, only one showed a very minimal amount of cancer. All gone ???

Does anyone have any advice about the numbness I am feeling in my upper arm, my consultant told me it might never go, which is a very depressing thought, obviously the fact that the cancer has been removed is fantastic but the numb feeling is horrible.

I am being referred for physio as I am struggling with movement in my arm, pulling feeling on the inside of my arm above my elbow. Being in the bath seems to help, have a bit more movement in there. Seeing oncologist next week re starting radiotherapy so need to be able to get my arm over my head before that starts.

 

Thanks

 

 

Hi murphsmum,

Unfortunately I can’t offer any advice as I am only 8 days post surgery. I had a complete clearance as one node had been positive from biopsy already. I have a soreness almost like sunburn to touch on the under part of my arm but I expected that.

I just wanted to say I was glad your nodes are clear and they’ve got it all! Hope the numbness is just temporary and you’re soon sorted.

???

Hi Murphsmum

 

That’s great news. I’ll match that: yesterday, after 16 months in the circus, I got my (almost) marching orders or liberation papers or whatever from my oncologist - I’m clear. Yippee.

 

The day before, I was with the Rehabilitation Physio, a delightful woman who had shown me how to get my arm ready for radiotherapy by massaging my scar and underarm, working on my cording and generally damage-limitation exercises. She sees me every 2 months and works on another problem area. I asked her how long before…? The answer was ‘never.’

 

Unfortunately, the harsh fact is that surgeons cut brutally in their efforts to remove all potential evidence of cancer and nerves get severed. I had a full axillary clearance, with 19 of the 21 nodes removed infected so the surgery was a lifesaver. It seems the number of nodes in different locations in the body varies from person to person, so your 10 may have been the equivalent to my 21 (you don’t say if it was full clearance). I was told my numbness is permanent. I have an area from the arm joint down to the elbow, on the outer arm, that is almost totally numb. I say almost because the level of numbness varies a bit (I always assumed numb meant numb but I’ve learnt there are nuances lol). On the inner part of my arm, my armpit is numb, fullstop. The area down to the elbow is ‘fine,’ so I can feel what’s going on there.

 

I’ve got used to it but it can disguise problems. Then I get a burning in my elbow skin and I know I’ve forgotten to do my sweeping exercises, sweeping firmly from elbow to shoulder, then sweeping across my back to the nearest lymph nodes (not forgetting to end with a few shoulder squeezes to help move the lymph along). This will be a daily (several times daily) requirement for the rest of my life but it seems a small price to pay. The fact that I forget shows that it does get to the point where you just don’t notice it.

 

If you’ve had axillary clearance, your physio will show you how to massage the armpit and sweep down to the groin lymph nodes. The armpit is prone to cording as other things collapse into the space left by the removed nodes. I get a solid wedge that can be a bit painful unless I do my exercises religiously (which I try to keep on top of but…). This cording can move down your arm and is visible and hard to the touch but it can be massaged away. All my cording has gone now, except in the armpit.

 

In terms of the radiotherapy, just make sure your breast muscle and underarm are pliable by lots of massaging skin to skin, using a good oil-free cream like Aqueous or E-45. This will make the physio exercises easier and you’ll soon have that arm up by your head. If you’ve had full node clearance, you won’t need radiotherapy there (yay, we find one positive). You may find you have cording that you haven’t noticed running from your armpit down your arm - it’s the remaining nodes not having any idea what to do without their base under the arm and clustering together till the stick tightly. It can extend to your wrist - I could see a ridge all down my arm. Circular massage (and the groin sweep) will shift this.

 

Sorry it’s not encouraging news but, just as the number of nodes varies, maybe the degree of damage varies and you may regain some sensation. However, you will need to be sweeping to different lymph systems permanently - it becomes habit, like cleaning teeth! I hope my experience helps you rather than completely depresses you. It’s a nuisance, a reminder, it can be painful but it’s the result of a lifesaver so be kind to it :slight_smile:

 

Hope the radiotherapy goes well.

Jan x 

Hi murphsmum - I had a full ANC in May 2017 and like you I struggled with arm movement after the op, but I was determined that I wasn’t going to delay radio and somehow I managed to get my arm high enough. Keep doing the exercises you have been given, get some physio if you can - that helped me too. At the start it seems like you aren’t making progress, but suddenly you realise you can lift your arm again.

 

Re the numbness, I think my numbness in my upper arm and underarm has almost completely gone. For a while I couldn’t feel anything in my armpit but now it feels almost the same as my other one. I can’t remember when I noticed this though, the feeling must have come back slowly. My implant is still numb and always will be, but I don’t really notice this.

 

I was really interested to read Jaybro’s post as I have never been shown any stroking exercises, that sounds interesting.

 

All the best murphsmum as you go onto radio, and do come back if any of us can help you further.

Evie xx

Hi Murphsmum,I had 27 lymph nodes removed and 8 out of which were affected in 2011. Up to now, 9 years after, under my armpit is still numb. I was born with no hair in the armpit (not only baby  :sunglasses: 8-). The numbness so far doesn’t bother me at all except one time (just one), I ate something and triggered my allergy. I felt very itchy there. I scratched ‘nothing’, poked ‘nothing’, heat burned ‘nothing’  squeezed ‘nothing’ and finally, the itch was gone after a hot shower.

ps. If I remember correctly, I noticed the numbness and puffy skin  (or muscle) along the side of my affected breast after all the active treatments.