Hi Ladies
Can I please have the FB details ? I am newly diagnosed with TNBC. Struggling with this rollercoaster i have landed up on ! I am in Aberdeen, 37 years old and a Mummy to a 6.5 year old girl. I felt a lump, was told it was a Cyst but on USS it showed up to be a Cyst and also a 2cm IDC lurking alongside. They think Stage 1 but Grade 3 so starting Chemo in next week or so. TNBC gets a lot of bad press on the Internet but my docs etc are all so positive that it’s treatable and not life threatening. Any help / advice would be greatly appreciated. Thanks so much xx
Could u add me to tnbc fb group too, Zhaniya Daurenbekova…I have sent friend request in fb. Thank u a lot for you positive posts.
Good morning all,
Lets not all just go to Facebook, this forum has been invaluable to me. I feel I have got to know peoples stories, the trhreads have been very positive for me and I have gained so much knowledge and understanding of what I , like the others here, are going through. I confess I have joined the FB group but although interesting it does not have that personal touch I find here.
So ladies please keep up the good work here. In the meantime I am well and get my PET scan results next week when I see my oncologist.
best wishes to all, Marina
Hi ladies
I had last chemo 17/7 and surgery 17/8, due to start rads next week! Feel ok but my arms and legs ache…do u have these issues? Juicing a lot as well and started taking vitamin D, omega 3 and sprinkling tumeric on everything lol xx anything to keep it away forever xx
Hi Warcol,
When did you start the tumeric? I finished chemo on Tuesday (woohoo!!!) So wondering when to think about starting it. Will be starting rads 1st November. Hope you get on ok next week. I got worked up about the planning appointment but have no idea why because it was completely fine if course!!
AnnDaw I’m glad you are moving on well. Gives us all some hope that we can return to a new normal I’m sure xx
Hi Taran
Started the tumeric after surgery as that gave 4 weeks clear of the chemo! I was taking it as a supplement but after watching a tv prog that showed as a supplement there was no difference I decided to put it direct into my juIces and on my food which evidence suggests does make a difference!
Colista xx
Thanks Colista, so hard knowing the best way to go about these things isn’t it!! Maybe I’ll start once rads are finished as that will be a good bit of time since chemo then. Seriously can’t wait to be back on the up from this last round. I’m so tired and hate feeling so useless for the kids xx
Glad to see some action here again!
AnnDaw I finished chemo in June but had to be operated again (lumpectomy) as had reoccurence in same place under arm. They thought they were cysts so didn’t take margins. Then found one was cancer - TN again - so had another op for clear margins. Have decided against having rads. Now waiting for PET scan results. Am well and have changed my diet. Also taking supplements although I didn’t know about the tumeric supplent not being effective, thanks Colista.
Pam how are you? You’ve gone very quiet.
Have about an inch of hair but it just sticks up so have to gel it down.
Best wishes to all
Marina
Earlier today I posted about a live stream on this w/e from the wesite The Truth About Cancer and now I see it wasn’t uploaded. I think because I included a link so I will try again.
It has all sorts of experts & doctors talking about alternatives life food, supplements etc and I’m sure we can all learn something.
I will try to post the link in another post…
I just can’t get the link to upload here so I suggest putting this on google search and it will come up:
the truth about cancer live symposium
Well ladies I went shopping today and bought my outfit for my sons wedding which is in June, now I’m feeling deflated and thinking what if I’ve tempted fate, scared!!
Hope u are all well xx
Thank you Marina I hope to god. Has Pam been ok? Xxx
Glad to hear from you Pam.
I had great news fron PET scan. Am cancer free (if you remember I had reoccurence during chemo).
Have fecided not to do radiotherapy so back to work soon … dreading it!!
I need honest advice please… Had my MRI results. The tumor has shrunk by half. It was 20mm and bcn told me its now approx 10mm. I’m so worried that I didn’t get a complete response. Being tn just makes it worse. Anyone else not had pcr after 6 months of gruelling chemo. What are my chances now. I feel like I’ve gone back to square one ? positives are that it has shrunk and my nodes have gone back to normal size! Xx
Hi netti, I had surgery first so don’t have experience of knowing how well chemo worked on the lump. But from speaking to other ladies, I don’t think you can know the real response to chemo until after the lump has been removed and analysed. Some ladies have had their lump shrink, but when it’s been examined after removal there were no living cancer cells and so they still had a pcr. MRI can’t show what is going on at cell level, so there is still hope yet so try not to worry too much until you get the path report back xx
Thank you Taran. Hope your ok. Have you finished your treatment. How did you get on with it all. x … I’m seeing my breast consultant next week so may get more info. Bcn asked me if I had considered imm. Reconstruction so mastectomy is clearly now an option. Was going to ask for one anyway, but in may when dx doc said possibly lumpectomy. I think having that choice taken away has upset me too. Now chemo has ended I feel a bit less secure too xx
I think we are going to constantly have our security shaken. It comes over me in waves. Sometime I feel ok about it all, then other times I’m a wreck worrying about all the what ifs and possibilities. I’ve finished chemo but waiting to start rads now. It feels so good that the end is in sight. And so scary that after rads that’s it. Just out in the big wide world hoping for the best!!
I can understand you being upset that the choice is taken away, even though you wanted to go for mx anyway. It feels so out of control on this journey so feeling like you can make that decision for yourself makes a big difference. And if you are anything like me I over think everything and convince myself that there’s more to everything than there probably is!!!xx
During chemo i felt safe. I was lucky (loose term) to have minimal side effects. I just wanted it to be worth it. It’s hard to stay positive and I’ve had a couple of low weeks since chemo ended. When do you start rads, how many are you having. Another hurdle to get over. Hope it goes ok for you. Xx
I had lumpectomy before chemo, however during chemo another tumour appeared. Nobody can give me an explanation as to how that happened!!! So they decided to continue and finish chemo EC x4 & T x4. Then another lumpectomy. Have since had PET scan and am cancer free. Have fecided not to do rads after teading so much about it.
Not sure if that helps.
I know what you mean. I don’t mind going through all of it as long as it’s done the job. But I have no way of knowing my response to chemo. I can’t decide if that’s a good thing or not. I still think you should try not to be downhearted until you get proper answers about your response. I know that’s easier said than done!! I’m starting rads on the 1st November. Will be exactly 3 weeks between last chemo and starting. Having 15 and 5 boosters. So should hopefully be done by the end of November.xx