Any triple negative survivors out there?

Hi ladies
I’ve just started rads and was a bit taken aback to find out their treating my clavicle as well as ancillary and breast! I’m having 15 and 5 boosters! I have good days and bad days! This weekend has
Been a mixture of both!
All i keep thinking is lots of other ladies have been given the all clear and been celebrating like I have only for 6 months a year 5 years later to have secondaries! Then in the other breath I think no one knows when their time is up so live each day likes it’s your last and enjoy everything!
I have 2 little ones which I’m determined to see grow up so today I’ve got my big girl pants on and thinking happy thoughts!
Netti when they operate they may find the remainder of the tumour but it’s dead and therefore chemo has done its job and you achieve pcr! Keep positive Hun!
Have a great rest of the weekend ladies ???

Clavical? Is that the neck area. Sorry for my ignorance. We all have to take faith in the doctors decisions and hope its all for the absolute best . Have you started rads yet warcol. How is it going xx. There just seems to be an extra challenge all the time. Long gone are the days when I wasn’t constantly worried. But this is how it will be forever. I’m hoping that will be the case to, and after surgery it will be gone. I’m going out for lunch with my wonderful family later and will enjoy ever second of half term with my girls. I need to get them big girl pants on too. Have a lovely day ladies and thanks for you advice. Xx

They have told me my clavicle area will be targeted too. The radiographer said it is because they know the lymph nodes there are the next place it would spread to and so they like to “sterilise” the area. I was a bit taken aback at first but once she explained it it makes sense. I’m glad you aren’t finding it too bad so far Colista. I can’t help but think the hardest bit will be going every day and so not being able to get much else done between that and the school runs. I’m probably being naive though and it will be a lot worse than that!!!xx

Kate it’s much easier than the chemo, and your not there very long at all. I got sore during my 3rd week but it was bearable. It is tiring tho back and for, but it won’t b for long xxxx

I hope it goes by quickly. 4 weeks feels like a lot at the moment because it’s every day, but I’m sure it will be over soon enough and I can start thinking about Christmas with my family. Can’t wait this year!!xx

Hi, I have tnbc and have finished chemo and am having masectomy and lymph clearance this Thurs. Can anyone tell me what has caused this type of cancer? Feel afraid to ask docs.

Hello ladies, I haven’t posted for a while either but nice to see that the thread is picking up. When I was first diagnosed in July I found the support on here - even just reading the posts of others- a bit of a life saver. I’m doing Neo adjuvant chemo and of EC then carbo platin / paclitaxel and now just over half way through. 

can I ask what you lovely ladies are doing about turmeric because I’m really confused . Don’t know whether. I should take this as a supplement, during cooking or added to juices. I asked my onc and he was non committal.

chris xx

 

Try using BioHawk Relief, a natural blend of ginger. Aussie product getting amazing results. Google BioHawk for information.

Hi Ann & Dee thanks so much for your replies, I will look into the research especially any on the TNBC foundation site

Ann - great to hear you are all done and hope you have a lovely holiday. I’m so looking forward to the time we can get back to doing normal things.

Dee - your daughter sounds like an amazing warrior queen having worked all the way through her treatment and come through this twice. So pleased she is doing well now and I agree this site can help so much when you’re in the middle of this nightmare.

Helly - thanks for your info about the ginger, I had no idea that might be helpful so will look that up too.

i won’t be starting until I’ve finished my chemo as my onc advised not but want to get my facts straight and ducks in a row so I’m ready

chris xx

I haven’t been on this site for a while now, but I thought I would just let you know that it is 5 years ago today that I was diagnosed with breast cancer.I’m going for my annual check up next month and I’m keeping my fingers crossed that everything is ok. I am terrified of tempting fate and wasn’t going to write anything, but I thought that any newbies might be relieved to hear about me. I found out it was triple negative on 25th November following a WLE and 3 lymph nodes removed (which were clear).I started chemo in January and was allergic to the taxane chemo and couldn’t have it. I ended up having 6 lots of FEC followed by 20 rounds of radiotherapy.I’m doing fine and try to keep myself as active as possible. My diet is better now than it was, but I am certainly no angel! I hope this post helps .xxx 

Thinking of and sending prayers for all of you.

Love, Dee

Are there any long term survivors triple negative stage 4? I was diagnosed Nov 2015 with lung mets (very tiny) had 6FEC treatments,clear scan April 2016, recurrence June 2016 in breast, mastectomy July 2016, 15 rads, recent scan shows mets back in lungs and a small area of the liver. Now on weekly taxol… can this be kept at bay for long time? Looking for people who are in the same position. Need some hope as I am struggling to deal with this now. I am mum to three sons . I am 38 years old. Initial tumour was 7x7 cm

Pam beat me too it I was going to suggest the secondary forum! Good luck and thinking of you! Xx

I’m sorry I can’t help Caz, but I was wondering if you had joined any support groups on Facebook? They are amazingly supportive and I know there are separate groups for secondary ladies, where I’m sure someone would be able to answer your questions better. Wish I could help more xx

Caz
There is a forum on Facebook called uk breast cancer survivors and sufferers that have ladies with mets as well as a secondary site! If not already on the U.K one or triple neg one will be happy to add you
Love Colista xx

I’m a triple negative survivor just finish chemo and surgery

Hi all hope you are all doing ok, can sorry I can’t help you, did you have lymph node involvement. Melisa, can where are u both from xxx

Hello all,

 

my mum was diagnosed with triple negative breast cancer a few months ago and she has just had her second session of chemo 2 days ago. She’s having 4x FEC and 4xT and three weeks between every session. She’s getting a bit scared about T she thinks it’s going to be a lot harder than FEC.  Has anyone had this and what was it like/ what side effects? My mums not had any major side effect so far wth fec, just feeling sick and tired for first 4/5 days and really dry skin (any good natural creams I should get her??).

The thing I’m really scared about is if when she becomes cancer free she will get it again in a few years time.

 

Also any food tips? we’ve been searching everything… honey, turmeric, garlic, apricot seeds, etc.

 

kat x

Hi Suzanne 2 I’m from Cambridgeshire and yes I had lymp nodes remove 10
Starting radiotherapy next month.
Does anyone on here had side effect from radiotherapy. X

Hi Melia
I have my last session of rads today and my skin has started to burn and is very itchy! I’m currently being dressed by the nurses using liquid paraffin! I also have little energy to do anything and tire quite quickly
Colista xxx