Happy New Year everyone! Hope this year is better than the last one xx
Happy New year wishing to you all hope that 2017 be a healthy and Successful one 
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Hello
I was diagnose on tSeptember 2016, finished quimi for.reduction on Dec.22ā¦Looking for persons to chat.
Thereās lots of fb pages about treating breast cancer with cannabis. Lots of articles confirming cbd oil is not effective. Itās all about thc oil which is very hard to make in U.K. and impossible to source.
Cbd oil will not help you.
Hi everyone
Itās quiet on here. Howās everyone doing? My little boy is nearly 9 months now. Canāt quite believe it! Still finding the fear very hard to deal with. Did anyone else find the support from family/friends not as great as expected? Anyway, hope youāre all doing well xx
Thanks skybabe. Where are you at with your treatment? Iāve nearly finished rads. Skin very sore! Xx
Hi Katydaw, Iām sorry you arenāt finding the support great. Iāve had some amazing support from family and friends but have found people definitely forget all about it once treatment is over. They donāt seem to realise you still have a lot of recovery (physical and mental) to do at that point. How is your little boy getting on? My daughter is 1 next month! I have no idea where the year has gone. My eldest will be 6 soon too which is even more scary!xx
Hi,
I am new to this forum so forgive me if Iāve posted in the wrong place.
I got diagnosed with grade 3 invasive breast cancer last week and found out today that it is triple negative.
Just wanting to learn more and connect with people who may have similar experiences. I am 37yrs and have two children aged 10yrs and 6yrs.
Hi, sorry you have had to joking this group, but hope you get support here. Where ar you from xxxx
Join not joking!!! Sorry x
Hi Happy Bouncing
Ā
Itās such a shame when another person finds themselves joining this forum. However, you are at the right place for advice and support.
Ā
I like you was diagnosed with TNBC in my 30ās with a child aged 7. I am due to have my 6th and last chemo next week and then move onto radiotherapy. You have already been given some wonderful advice reagrding treatment. I just wanted to added some suggestions in relation to your children.
Ā
I found that being as honest as possible with my little the girlĀ was theĀ best approach (my not work for all but thatās my experience). I used the book āMummy lumpā to start to expalin the situation. Itās availableĀ from breast care org.
Ā
I tried to involve her as much as possible so it didnāt seem like a secret. I took her to the hospital to meet staff,sheĀ helped me choice a wig, took my temperatureĀ etc. She was really dreading the hair loss part but actually forgets about it now.
Ā
I also spoke to her school and they have been amazing. TheyĀ arranged some counselling sessions for her, which made a massive difference. They let her choice reading books to bring home in the hope that she would feel happier to read them. All these littles things made a differnce. Hopefully, you may experience the same sort of support.
Ā
No doubt your head will be all over the place. Take each day as it comes. It will get easier (with some bad days off course).
Ā
I wish you luckĀ with yourĀ journey through this. Take care x :smileyhappy:
Thank you all so much for the replies. I am going to The Royal Marsdwn today to have the genetic blood test and to get my CT and lymph node sample results. They are also going to talk to me about a PARP trial but itās quite confusing as may not have any direct benefit for me and delays my chemo for another 1-2 weeks.
I have been completely open with my boys and they have both the āMummyās lumpā and āMedikidzā books. I have told the school, one teacher is better than the other. I will ask my nurse if the boys can meet her and look into the counselling.
My fear at the moment is the fact our cancer type seems to be the least curable and I have no idea how to balance in my brain being positive and facing reality.
I am very lucky to have an amazing husband, amazing family and amazing friends, and am now grateful to have found you all. I will take a look at the Facebook page.
Hope everyone has a positive and well day.
Xx
I went to the Royal Marsden in Chelsea but am under Kingston.
The CT scan shows it hasnāt spread. There are two tiny lesions in the lungs but they may be from previous flu - they will be monitored regularly and the chemo will target them too if cancerous. The lymph node test was inconclusive so they need to take more and I still need an MRI. I should be starting chemo in the next 10 days and have been told that the treatment plan is curative. I know it is going to be a long and scary battle but it was a relief to hear those words.
Hi Raitchr,
I have now found out that I am starting chemo tomorrow. Yesterday I decided to take control of a new hairstyle and have gone short in preparation.
Good luck with all of your treatment. How are you children doing? I am taking mine to meet my nurse today.
Sending positivity and hugs to all. Xx
Pam - I think I will have my radiotherapy at Sutton. Is the pain left over from the treatment? Xx
Thank you for your positive words Skybabe, it was all very overwhelming to begin with but I am starting to get my head around things now. Hugs xx
Hello,
Ā
Iām Sarah and 30 years old and have no children, last year i found a lump and was diagnosed with Triple Negative Breast Cancer. Since then Iāve had the operation, had my eggs frozen and now on my 4th out of 6 chemo treatment. I will be starting 3 weeks of radiotherapy after chemo and also will be having my genetics tested as to why I got cancer as no one in my family (that i know) have it.
I was just wondering if anymore has had this? Or know what it could be all about, Im honestly petrified as my doctor told me if my genetic DNA comes back positive, it will mean breast and ovary removal. I got my head around thisā¦ cancer, but this is just another kick in the guts and is keeping me awake most nights now.
I am remaining positive, but there are only so many knocks i can take right now. So any information, would be great.
Ā
Thank you all and sending positive vibes
Hi Sarah, sorry to hear youāre going through all of this. I was diagnosed around your age (15 years ago now & still fine!), & with no family history at the time. In those days no-one suggested a brca test, so it was only years later (after 2 cousins got bc) that I was tested for it & in my case it did come back positive, though itās certainly not necessarily going to be the case with you, and I know other young women whoāve had triple neg & tested negative for brca.
If you do by any chance test positive, I totally understand how hard that is to digest, as Iāve been there. But with regards to surgery, most women donāt have their ovaries out before they are around 40/have completed their family, as thatās when the risk starts to rise. So Iād imagine thatās not necessarily something youād need to rush into. And quite a few women opt for high level breast screening instead of having risk reducing surgery. In fact I did exactly that for years before finally, just 3 months ago, having the surgery & reconstruction. My only regret is not having the surgery earlier: Iād imagined Iād find it quite emotionally traumatic, but the reality was it wasnāt at all & I am very happy with the results - if anything, I can honestly say they look better than before.
I hope your test comes back negative, of course. But if by any chance it doesnāt, remember you do have choices, and I feel itās important not to rush into any big decisions.
Love,
Bel
Hi Sarah,
Sorry you find yourself here too.
I havenāt posted for a few days as slowly trying to digest and get my head round stuff.
I started my chemo last Fri and it was ok. I used the cold cap which was unpleasant but bearable. I have hated the nausea and constant sick feeling Iāve had since but am relieved to be on the journey to tackling this beast.
I found out yesterday that it is in my lymph nodes and the MRI shows the cancer is too extensive for a lumpx. Waiting to get the results from the gene test to find out if itās bilateral mastx when surgery comes in September.
The hardest thing Iām finding is not being able to plan or know how Iāll feel moment to moment - I may have been a bit of a control freak in my previous life and this has shaken that control from me!
Pam - Iām sorry to hear youāve found another lump and hope for positive news when you are tested.
Hugs to all here and sending as much positivity as possible to everyone. Xx
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