Hi, thanks for all the positive replies, I am having a lumpectomy and lymph node biopsy in just under 2 weeks and then the plan I chemo which is the part that scares me as at the moment I don’t feel ill at all. My bcn said that people can function whilst having it but was after some realistic views on what that means? How do people feel day to day whilst having the treatment? Is it worse in the few days straight after and then gets better? x
Hello all,
I was just diagnosed TNBC IDC a few days ago. I’ve been scared out of my mind, especially when I get to looking at stuff online about it. I’m 39 with 3 beautiful little girls, which is making it so much harder worrying about their future and how they’ll be so scared when they find out. I can’t stop my mind from racing around, thinking I have cancer everywhere, and that I’ll be back every year for reoccurence. MRI is tomorrow. Haven’t eaten or slept decently since the first doctor said, “yup, that lump feels like cancer” a few weeks ago.
I just wanted to tell you that this forum has been so helpful to just read. You are an amazing group of women that are flowing with this whole thing so well. I’m in the US, but the local forums are just freaking me out with all of the bad news. Thank you for keeping the positive attitudes going here. There are people like me who are reading this, trying to get a grasp on their new reality, and are still too afraid to step out and join a community. Please keep as much good news coming as possible. I know I’m going to need all of the positive news I can get.
Hi all I was diagnosed with tnbc mid January and had left mx end of January tumor was 3cm no node or vascular involvement finally started chemo yesterday FecT as a previous history of lung disease and further tests also went for a second opinion with Pro Justin Stebbings if anyone is concerned about their treatment I would thoroughly recommend him . I have not had any feelings of sickness as yet and no other side effects as yet but a bit of light headiness as this is the first day after chemo is it usually later in the process that she start
Good morning all you beautiful ladies.
I’m Annie, diagnosed just recently with TNBC 31 years old. The saying ’ you don’t know how strong you are until it’s the only choice you have ’ is so true. I have 2 children 12 and 3. Telling my daughter was the hardest thing I’ve ever had to do so far in my life, but these gorgeous two and my husband give me all the strength I need to get through this. There’s no negativity allowed in my house.
I’ve seen my oncologist and my treatment plan is 6 rounds of chemo followed by surgery. I’m not going to pretend I’m not scared I’m terrified but there’s no other way out so I’m facing it head on! My chemo starts on 17th may right after I’ve enjoyed 2 weeks in the Florida sunshine with my family.
I also fell into the trap of googling, big mistake! There are positives and negatives to all diagnosis not just ours.
Strength comes from within, we can do this ? Xx
Hi I’m tnbc with mastectomia I feel so good on Monday I will start 35 radiation we only need to be and keep so strong God love us
i have just been diagnosed with tnc.Had surgery…tumour under 2cm and not spread to lymph nodes… I feel very alone at the minute and for my own sanity i will have to stop googling…I start chemo on 4th May…feeling very anxious about that but know i just have to get on with it… Trying to remain upbeat.
Hi Sheila,welcomed to the forum .Please don’t feel alone there are many ladies on this site who are triple negative and who I’m sure will be along shortly to offer some support .If you look at the going through treatment section of the site there are chemotherapy monthly threads where ladies going through chemo at same time can give each other support ,you also get advice from those much further down the line which is really helpful.Best wishes.Jill.
Hi Sheila b you are not alone were all here and some of us have finished active treatment and living normal lives again. Dont overthink the chemo too much because you may sail through it. What helped me was to just concentrate on each stage as it comes ie-: ops chemo rads.You will be surprised how quickly it all goes by and how strong you will become. Good luck on your journey you will be fine. Xx
Hey there. I’ve just had my fourth year clear, and am back at my old job working in a developing nation. I was diagnosed at stage 3. I did chemo, radiation, had 2 separate mastectomies, a complete lymphedectomy on my right side and a hysterectomy.
i feel healthy and full of positivity. It all seems so far in the past now…and having survived all that, I feel grateful and full of optimism.
Its a difficult process…but there are moments of profound awareness and gratitude.
I am not the person I was before. I’m better.
I was dx with tnbc in 2006 and all has been well. I am currently having an investigation for an itchy patch on the good breast and am hopeful it will be ok though obviously anxious.
Hello everyone,
My mother is dx with TNBC with metastasis to the bones. Tumor of more than 5 cm in left breast and armpit.
I am totally depressed, don’t know what to do. Everything seems to be over.
Is there any cure for TNBC with 4th stage? Any survivors with 4th Stage TNBC.
Any help would be appreciated.
Hi Akshay,welcome to the forum.Very sorry to hear about your Mums diagnosis .There are ladies on the forum with bone mets who have been kept stable for years with medication but obviously everybody’s situation and prognosis is very individual .Jill.
Sorry to hear that, I feel for you. I felt lump in April and just yesterday finally met with my doctors. Was told it is TNIDC. Possibly stage 3 with lymph nodes involvement. They won’t know if it had spread until they do MRI, PET and CT scan scheduled next week. So more waiting it just seems that’s all I have been doing all this time. My doctor said that it takes cancer years to develop and that a few weeks does not make a difference. So let’s have faith in our Lord Jesus Christ. He will help us through this .
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All the best Pam…and everyone else who are going through various stages of this journey!
love and thanks for sharing xxxx
All the best Pam hope everything goes well today.
Xxx
Shernise
I was diagnosed in March with TNBC grade 3.
cells positive in lymph nodes - 3 removed
i have had 3 FEC chemo and 1 T
i came home yesterday from hospital after having neutropenic sepsis.
My chemo is changing next Friday to 12 weekly cycles of Carbo/taxol
do people survive TNBC?
My mom had tnbc 22 years ago. She was 49. She had radiation once and chemo 2 times. And had a lumpectomy and her lymphnodes removed. I was 10, so I don’t remember the exact order. I know 3 years after treatment, she had it again. She had lots of infections and plenty of trouble…but she made it…22 years. Last week, she was diagnosed with breast cancer in the other breast. This time it is estrogen receptor positive 1. We should be and I suppose are relieved that its easier to treat. Good luck! Be strong!
Hello Has. I have changed my diet completely, I am a great fan of Dr Gregor and his book HOW NOT TO DIE. It is a whole food plant based diet. In the book he has a chapter on bc. Even if you don’t want to make such a drastic change it is a font of information. He has videos on nutritionfacts.org & a Facebook page. There is also a FB page organised by followers called How not to die & Dr Greger … . After reading the book I have added many things, left out others and feel much healthier generally. It is all non-profit and he doesn’t sell anything like other sites.
Highly recommend to you all and don’t be overwhelmed at first, it gets easier and you learn so much.
Oh dear- my page didn’t update and I’ve just answered a post from a year or more ago!!
Pam I am so pleased for you.
Marina