Hi. I was wondering if many ladies had large node involvement other than armpit and still clear?
I was diagnosed Jan 1998. Triple negative 6cm. I was 37 with 2 daughters 4 & 18 months.
I had chemo FEC 2 cycles until hospitalised with neutropenia & Sepsis. Had surgery 6 months later (lumpectomy)then radiotherapy for over a month. I have had no reoccurrance.
In 2008 I had a genetic test. I am Braca 1.
I have subsequently had my ovaries removed.
I live life to full and accidentally came across this site. I thought I should let you know some of us are still here and having a great time. There will come a day when you will not think about cancer
Thanks for sharing your story Lucille. Itās reassuring to hear that there are long term TN survivors out there x
Wow Lucille thank you so much for that positive news. I am a year a half out of treatment.
Happy New Year to everyone.
Marina
Pam I have read that Gingo Bilboa supplements are good for tintinus.
iāve never posted before. but always read these blogs. iām almost 3 years 10 months since diagnosis. stage 3 TNBC at 29 years old. was living in usa at the time so treatment may been different.
lumpectomy, 4 rounds AC 12 rounds taxol. lymph nodes removed. 35 rounds radiation. intense, but make the most of everyday since treatment.
i feel good and healthy.
found out today my usa friend who had same as me and went through it together she was 3 months behind has found nodules in her lungs, so feeling a bit anxious and sad. it never goes away these thoughts even after this long. hope to connect with some uk people - weāre in it together xx
Welcome to the forum Daniela , sorry to hear about your friend but good to hear that you are doing well and enjoying life .Best wishes Jill.
Hi I also have tnbc I have had a mastomy and awaiting chemo ,having gemcarbo,I was first diagnosed in 2006 all I can say is keep positive ,Iām a little bit frightened as itās my second time,but I have lead a normal life and enjoyed every minute ,keep strong and think of the future,take each day as it comes xxx
Hi just popped in donāt come on much is so quiet on here. Iām on the Facebook forum itās called triple negative uk, there are a few different ones but I find this the best one, Itās a closed group. Good luck xx
Hi - am 50 and diagnosed triple negative on 22/1 & am going in for right mastectomy & axillary clearance in 2 days. Iām so scared - I only found out due to noticing swelling in armpit on Xmas eve - they found a 7 mm tumour in my right breast which wasnāt there on my mammogram in September, the surgeon still canāt feel it & nor can I! Two lymph nodes involved under my arm &MRI picked up one internal mammary node that looks positive. Having 18 wks chemo then radiotherapy too after the mastectomy. My arm has started aching now like the nodes are pressing on a nerve & Im panicking the surgeon wonāt be able to clear them and it will spread like wildfire through me. Had a Preop Assessment today & I just broke down on the nurse. Iām really struggling to stay positive todayā¦ any words of encouragement gratefully receivedā¦
Hi woodie, sorry to read of your diagnosis. I toknhave TNBC. I had a mastectomy in October & currently halfway through chemo. Although none of us want here, the waiting bit is the worst. Once you start treatment you feel more in control. The operation wasnāt anywhere near as awful as I thought it would be. Good luck with your surgery & I hope you have lots of lovely family & friends to give you some extra love xx
Today is 5 years since my diagnosis and Iām still here, cancer free and an extra child in for good measure despite being told I could have any more so hang on in there itās beatable. Keep positive, you can do this!! Xxx
Great to hear such positive news Sl !!
Hello. I was diagnosed with right TNBC 8cm tumour Feb 2014. I was 53. Had 6 rounds of chemo FECT , bilateral mastectomy with right axillary clearance and left sentinel node biopsy. Lymph node negative. 15 rads over 3 weeks
No reconstruction.
Now 4 years since diagnosis but Iām still so anxious. My girls are still young 16 and 17 and it worries me that I am nit going to be there for them, being a single mum. I made the mistake of reading extensively on the internet and the fear remains with me.
I know I am being negative and should live life to full. But feel I am just waiting for itās return . Life seems so linely
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I have been diagnosed with TNBC They said itās metaplastic and quite rare. I am going in for wide local excision on Wednesday next week. My consultant says that it is very treatable but I am very anxious as the time is passing. Ā There were no nodes showing on scans or mammogram so hopefully the ones that are removed will still be clear when surgery comes. I will be having chemotherapy and radiotherapy and it seems such a long road to go down. Iām struggling with that too.Ā
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Hi everyone
I donāt come on here very often but in the early days is was invaluable especially the threads for chemo! Iām 2 years free after having a 3.8cm tumour and multiple node involvement stage 3 grade 3! I achieved a pcr and take d3, aspirin, turkey tail and tumeric on my food to help keep it from ever coming back! Iām also the admin for Triple Negative Warriors Uk on Facebook which is a very active group should any of your ladies wish to join! Itās a closed group for sufferers or survivors of tnbc and offers support, advice and friendship! Love Colista xx
It used to be advised that taking baby asprin 75mg was enough however the aspirin trials have 3 options I believe which is a placebo, 150mg and 300mg! After discussions it with my oncologist she advised to start with 75mg to make sure there was no effects to the stomach lining! I now take 150mg and I have no issues! I would always advise to discuss with your medical team before taking it unless your on the trials xx
Just found this thread so excuse me for being late to the party. Ā I was diagnosed with ER+ primary in 2002 and then triple negative primary in 2014. Ā 6cm tumour in breast and 5mm in lymph nodes grade 3. Ā Thanks to the wonderful Royal Marsden I am still here. Ā Chemo (carboplatin I cant take the Taxol drugs as Iām allergic to them) completely eliminated the tumours over 6 rounds nothing left by the time I went for double masectomy. Ā Followed by 3 weeks of IMRT radiotherapy. Ā 4 years later and no recurrence. Ā My oncologist told me that he does not know of any TN patient who has had a recurrence after 5 years. Ā if recurrence happens then usually in 2-3 years. Ā Not the same for ER+ which can recur up to 20 years later. Ā So 5 years is the big mental milestone. Ā I can think the mental side of treatment and survivorship is just as hard as the physical side. Ā But there are some great counsellors out there for the patient and their family.
Thanks for this, MAM 1959! I was also diagnosed in 2002 - tho triple neg. and have no recurrences since, tho I still occasionally worry about it coming back as secondaries, so it is very reassuring to hear what your oncologist said. Years after my diagnosis I discovered I was a BRCA1 carrier, so I too had a (preventative) double mastectomy & reconstruction at the Royal Marsden just over a year ago, and I cannot sing their praises high enough. My new breasts look great & the whole experience was so much less traumatic than I thought it would be.love to all, bel x