Hi there, i am just looking to see if there is any fellow neurodivergents on here? ![]()
Welcome to the forum seraphim , hopefully you will find people to connect with . It may also be worth trying the Someone like me service which links people up to chat either in the phone or by e mail .
Hiya
yes I was recently diagnosed with ASD during a week where I was having my lymph node biopsy and my reconstruction appt so it was very much a slam dunk in all ways
best news during my diagnosis which was back in feb
it gave me validation
but the process of treatment is a huge adjustment
how are you doing. ?
Kim
Hi Seraphim,
I am I suspect neurodivergent (I think more SPD but as I said undiagnosed officially so feel free to disregard anything I say) but I’ll say it’s been very hard having my routine just pulled out from under me, having people touching me all the time - though I’m sure everyone hates this. Also (when I’m well) I generally have a very low social battery need a long recharge after being out in public/around people which I’d probably do once or twice a week working from home the rest of the time. Now that I’m undergoing treatment I’m an odd kind of lonely … before I was never lonely because my social battery was so low. Now seeing anyone/being anywhere other than my house/speaking to anyone for longer than ten minutes is absolutely exhausting. So I’m lonely, not because there’s no one but because I don’t have the interaction resource to share,
Anyway hope you’re ok, sending hugs, T
Hi!
I was diagnosed earlier this year. I am autistic x
Hi!
I am autistic. Diagnosed with breast cancer earlier this year x
Hi i have ADHD i was diagnosed at 6 years old im now 35. I think my ADHD is making it harder for me to mentally overcome being so overwhelmed with my cancer. I was diagnosed with grade 3 invasive triple negative ductal carcinoma left breast. I had stage 2c ovarian cancer (dysgerminoma) 3 days shy of 10 years before my breast cancer diagnosis. Ive had lots of chemo for this cancer and double mastectomy and then another round of chemo then 5 days of radiotherapy this all finished nearly 6 weeks ago but my mind feels like im still at the start of it all.
I’m also ADHD (plus depression and anxiety) and was diagnosed with breast cancer last year. Totally agree with others who have said this makes handling diagnosis, treatment, and the so-called return to normal life even harder. I had to stop taking my anti-depressant because it interacts with Tamoxifen. Plus the Tamoxifen causes insomnia, fatigue, and moodiness, which just exacerbates my psychological problems. I know I have it much easier than many people on this forum (Stage 1, Grade 1, +±), but I feel like I’m really struggling with all of these silent/invisible problems.
Yes
Me too. Diagnosed autistic at 59. Still don’t know what autism is or why they think I’ve got it.
Hoped the diagnosis would help in negotiationing the abysmal communication in the cancer industry.
Asked for reasonable adjustments. Ie everything in writing as I can’t process quickly enough to cope with talking appointments. Denied.
Asked to see the same nurse, nope, not happening.
My epitaph will read “killed by doctors “
It’s quite fun to think about what I would put on my headstone (if I could afford one) and if there was anyone left who gave enough of a shit about me to visit it.
After ‘killed by doctors’ my next favourite is ‘ I had a shitty life, I’m glad it’s over’
Hi,
I’m 48 years old and have just started the ADHD pathway. I’ve always thought I was the stupid, black sheep of the family. I always felt different and struggle to feel whole.
This time last year I found a lump in my left breast, it was a 2cm tumour. I had lumpectomy surgery in September 2024 and then due to being HER2+, chemotherapy started on Halloween
for 7months, then 2 weeks of radiotherapy following that, which ended Friday 13th June 2025.
As I ran out of sick pay, I returned to work at the beginning of July on a 5 week phase return. My employer (NHS KCHFT) has been brilliant i feel so lucky they are so supportive.
I still attend the hospital every 3 weeks to get a shot of Herceptin for the HER2 and go my GP once a month to have the Gorserelin implant (to put me into menopause) and was on Letrozole, but couldn’t function with the body pain so have been switched to Anastrazole in the last few days.
I’ve been struggling with not just the physical pain but also the mental fog, low mood and fatigue.
I have called my GP who prescribed me codine phosphate and co-codamol for the joint and muscle pain which just leaves my head very woozy and doesn’t help with the pain.
I have tried collagen tablets and turmeric tablets, no help either.
I just wanted to know if anyone was feeling the same as me, and what you have tried to resolve your pain…… what has helped for you?