This is only to those who had a crap time on them, not those lucky ones who felt fine.
I’m having a gruelling time on AIs. Started on Letrozole, switched to Exemestane. I’m 16 months in, had a ten day break recently (because I thought I would just give up) where I felt “normal” again in my head although still very stiff and hot. Decided to try again as I’m ER8 and HER2+ and i just really don’t want a recurrence. My dexa scan was normal.
What I want to know is, when the 5 years are up and I can stop the meds (all other things being well ) will I feel normal again? At all? In any way? Will the clear head return as it did on my break or will it just never come back? Does the joint stiffness improve? And the constant overheating?
No one seems to be able to answer this so I’m hoping someone who’s in this position will stop by (although I guess if you’re in a good place post treatment you’ll be keeping off everything that reminds you). Anyway, thanks.
Read your comment and sympathise massively with what you are going through. So hoped to read lots of positive comments ……see there are no responses….. I’m hoping it’s because all the girls who have finished this wee b**** of a drug are all off these forums out there feeling fantastic and living their best lives!!
Thanks for replying. I’d started to feel like a voice crying in the wilderness! It seems a perfectly reasonable thing to want to know but no one can ever give an answer (which in itself is not very reassuring). Anyway, we wait in hope!
It’s hard work, I have found changing from brand to brand (daily) has helped a bit.
My brain has however left the building. No longer working as quite frankly you would not want me in any team. It is as if I have someone else’s head.
Like you, I’m high up on the scores so just got to keep trucking x
I did the full five years on Letrozole and finished in April this year. The side effects I suffered during that five year period have definitely lessened making me feel nearly back to my old self since I stopped taking it, but I wouldn’t say they are completely gone. Not sure if that helps but fully sympathise with anyone having a hard time on the drugs presecribed for breast cancer.
Thanks so much for replying. That’s reassuring. I am sure that menopause and ageing means you don’t feel as good as you used to but not feeling dreadful will be a real plus. I look forward to feeling less like a creaking 90 year old zombie!
Congratulations on completing the five years - a real achievement - and the very best of luck for the future x
) will I feel normal again? At all? In any way? Will the clear head return as it did on my break or will it just never come back? Does the joint stiffness improve? And the constant overheating?