Hi Rosie, that sounds tough on you having it every week, no wonder you felt like crying, I bloody would too, I know when my eldest son got married last October nothing would have kept me away!- am sure they can work the chemo around your trip to uk for you, hope the tablets start working quickly for you too.
I gave just got home from oncologist appt, said my tumour is doing what they expected and seems to be shrinking, change to TAX next time and he said herceptin at same time as radiotherapy!
Seems like I will be having a mastectomy rather than lumpectomy as I am quite small busted and lump is right in the middle he said prob won’t be enough booby to work with for lumpectomy!! Don’t care really as long as the cancer packs it’s bags and FECS off!!
Anyway back again tomorrow for chemo, good luck to all of you with chemo this week, nearly half way there.keep your chin up ladies…I must say I could punch people when they say to me 'keep positive"!! Xx
Afternoon ladies,crikey I have had some catching up to do! I’m so sorry your still poorly rosie14: (. I will be joining you this time tomorrow! Hope the extra tablets help.
Well done for planning to do the race for life kirstie77! I’ll plan to do it for next year. My mum & sisters are doing it this year so will be there to cheer them on!
Went to the lgfb course yesterday which was nice. Good tips for if my eyelashes & brows go. Think they do all sorts there just a shame its so blooming far away!
Got a bit of a mohecan going on now,have been malting like a Xmas tree! Quite itchy & dry.
Making the most of it before tomorrow & out in the garden in this lovely weather with my little girl making sandcastles. Good luck to everyone for their next one xxx
Rosie, I only really had the trots for 48hrs and it was never a ‘shoe filler’. Just seen onc who asked me if I had taken my temperature when I had the trots. Had to admit I hadn’t, so got told to do so if it happened again. She also confirmed that the TAX is less nauseous making but makes you feel fatigued in a more chronic way than FEC, ie. less hard hitting but lasts longer, can’t wait for that then!
Had blood taken and all systems go for me on Friday. I’m trying to focus on next Tuesday when we should hear if my son has passed his entrance exam for his next school. Just booked everything up to go and buy his new uniform and meet his new peer group in 3 weeks time, so he bloody well better have passed. I think I’m almost as excited as he is.
Hi Rosie, yes I think your decision is wise, every week seems particularly hard for you! And yes I am having surgery after chemo and before radiotherapy- I take it you haven’t had your operation yet either? Do you think it is a more common practice if you are HER2 positive to do it this way? I don’t know that many ladies at my local hospital that have had chemo first so felt a bit odd!
You must be so looking forward to your sons wedding- where is the wedding going to be? It’s a lovely, happy occasion in a year that’s crap! Hope you are feeling a bit better now tablets are in your system - new day tomorrow! Xx
Hi Rosie, yes it’s good to share same experiences with surgery after chemo. And your upcoming wedding is something to look forward to- I love Plymouth, especially going over the Tamar bridge and in to Cornwall which we do every autumn! At least you can look forward to it now on 3,weekly treatment!!
Hi ladies
Sorry I’ve not been around, just had a few good days where i didn’t want to talk about the FEC’ing cancer at all & then had a friend staying to come with me to my 3rd session - I had my 3rd FEC this week & cold capped again, I still have a full covering of hair, albeit thin, and took great delight in shaking it in the face of the nurse who said it would all be gone by now. She did have the grace to apologise & say she was delighted for me. Is anyone else cold capping still?
Rosie & Lovewine - I’m having chemo first, but I’m Triple negative, as I have 3 lumps and it’s aggressive. Then I have to have a mastectomy as the lumps are in different quadrants of my boob which makes a lumpectomy impossible. I am however having 6x FEC and not switching to T, I’m guessing this is because mine isn’t hormonal.
Thanks to the ladies who did some research on the steroids/anti sickness pills & suggested alternatives - I was so weepy & down after my last chemo. I’ve suffered from clinical depression for over 20 years, though not been on meds for a while, and apparently no one had checked that on my notes wish prescribing the drugs. The steroid I was on & the anti sickness both contribute massively to ‘altered mental state’ and shouldn’t be given to people with clinical depression… Meds have been changed for this one so fingers crossed for less weeping & more laughing
Rosie, it sounds awful what you’ve been going through, I hope the drugs sort you out
Kirstie - sorry things have been delayed but congrats on your fund raising
Joan - haribo jelly babies are my saviour for the bad mouth taste
The ladies that keep chickens - my best friend (the very supportive one) keeps 10 rare breed chickens in his back garden & I’ve spent many an hour in the last few weeks sitting on a bench, sipping tea, and just watching them. All hail the therapeutic power of the humble chicken…
I’m sure I’ve missed lots of the thread but after my mini meltdown a couple of weeks back I gladly grabbed the ‘not talking about cancer’ few days with open hands
My positive - my hubby may be in denial & being quite useless in some ways but his way of dealing with all this has been to re landscape our back garden - I now have a wonderful deck which leads round the pond from the patio & opens out at the back of the garden which is a lovely suntrap. And this weekend he’s relaying what’s left of the lawn.
Actually 2 positives for this post - I support Derby County avidly & we just got through to the play off final so I have a trip to Wembley to look forward to a week on Saturday
Hope all treatments go OK for everyone this week xx
Smokescloud great to hear from you been hoping your ok. Well your at the halfway mark if six fec so that’s great glad to hear about the back garden sounds fab. Pleased they are getting medicines sorted for you
Now back to sleep for me
Morning ladies, nice to hear from you smoke clouds: at least you can enjoy your garden in next few days as weather going to be nice( I live in Leicestershire, so not far from you I don’t think?) , nice day at wembley to look forward to! Know what you mean about not wanting to talk about The FECing cancer: before chemo started me and hubby went with my son and daughter in law to whitby for 4 dates and the ’ c’ word was banned all weekend!!
Rosie - nice to have your nails done today, hope there isn’t any emergency loo trips to spoil your newly painted nails!! And hope you avoid the stool sample too! And yes I know lanreath, lovely part of the country.
Eam28 sounds like the lgfb course is really worth doing, am trying to get around to booking one, sounds like you had fun in the garden yesterday with your little girl.
My positive today is: have just had a lovely early morning cappuccino using my treat to myself of tassimo machine- just going over fields with my dogs before going to 3rd chemo - and the positive in that is: hopefully it will stop squatting in my boob and pack it’s bags and FEC off!! Good luck everyone else with theirs and side effects. X
Morning all,
Smoke clouds glad you are doing well and are now half way
Rosie you seem to be slowly improving so I hope that continues
Lovely to hear everyone’s normal days and the good moments. Mine is driving to work cross country at this time of year, everything is so green and lush.
I’m good to go tomorrow, I will be glad to reach the halfway point and also glad to be having my last FEC. I am still cold capping, also have a complete head of hair but very thin, have not had a shedding event this cycle so want to at least try to keep what remains.
It looks like a lovely weekend ahead so hoping to enjoy my garden a bit.
Rosie, I can’t imagine what it would be like to have chemo every week for 3 weeks. No wonder you felt like crying. I’m surprised you didn’t break down then and there. I am also having chemo prior to surgery, in the hope that it will shrink the tumours- I have two grade 3 and triple negative but luckily very close to each other so may be able to avoid mastectomy. Love wine I envy you being able to drink good coffee, I have completely gone off and tea tastes odd. I’m also not much interested in alcohol which is no doubt good for my liver but a miss. Smokeclouds, nice to hear from you. Hope the changed drug regime will make this time round less dreadful. Given all the forms you have to fill in about your medical history at the start it seems incredibly negligent that no-one spotted the likely effects on your mood. I’m for chemo tomorrow, oh joy but have had a lovely few days and going to catch up with the grandchildren tonight. Wondering whether to go bare-headed.
Joan47 Go bald and proud girl! I am wandering about and not giving a Fec ! Just had round 2 and now going for sleep.
Positive put your scarf on or go bald and people trip over themselves to help you even Lidll will pack your bag for u! The sun is shining and every where looks lovely xx
Just been to an amazing chemo talk at breastcare centre in london and booked on some other upcoming courses. Well recommended. Worth the trip into london. Funny the two main women I spoke to there both came desperately are also getting treated at mt vernon.
My other wee positive for today my amazing team in the office have a pink box collecting extra amenities from their travels ie soaps toothbrushes etc for me to take in to the Marie curie ward as often people stay I. Unexpectedly.
Knackered now been awake since 2. Best to all
Got home from having fec 3 at 4pm. Horribleness just starting to kick in!
just keep reminding myself I’m half way & got tax next time! X
Congrats on halfway mark EAM. All the best and I hope the sickness eases up.
Well done Eam for reaching the half way point, things are starting to go quicker, cant believe where nearly all half way !!! Xxx
Hi Joan
In the house I find the jersey sleep caps really comfy from Annabandana. They are in a lovely variety of colours and are only £3.24 each. I have washed them and they are great xx
Eam28 I also had my 3rd fec yesterday before tax next time, yes my horribleness kicked in too early evening, let’s hope we feel bit more human today!
Joan47, well done for going bald, children soon get used to things don’t they - and you are still grandma!!, one of my dogs is very tuned in to human emotions and she comes and sits next to me and sympathises and nuzzles my head in sympathy!!
Joan47. Sorry forgot to add: I gave bought some very pretty, cotton caps which can be worn for sleeping / going out etc from a company called : hats 4 heads.co,uk, they have really pretty ones in loads of different hats and yes have used annabandana too and also very good!
Louse 3721 hope you are not feeling too bad either and everyone else doing their halfway session!
Just reserved a juicer from Argos to collect, not bad at £39.99. Im going to try some recipes, ill let you know how I get on with it x
Picked up the vita magazine while in london yesterday. Breastcare mag very good if anyone wants to subscribe email vuta@breasrcancercare.org.uk.
Chemo course was really interesting. Recommend the talks and courses run by Breastcancer care around uk.
All the best