Morning everyone day 5 and the worst thing is the tiredness I am like a hamster I will be sitting in the chair and fall asleep for 30 mins at a time! Really wanted to watch Homes under the Hammer yesterday and missed the middle part completely!
Good luck everyone starting this week, take a day at a time and keep eating little and often and drink lots of soft drinks. I can only drink tea in the morning and evening no coffee its rather like being pregnant all over again. The joys of womanhood!!! Remeber you are not alone we are all on this board because we all share the same problem -United we stand !!! xxxx
Hi all! Haven’t had chance to come on here! We’ve all got so many appointments & things to get done before chemo haven’t we?!
Thanks loulou1262 my bcn has never mentioned any kind of help so I’ll ask her & was going to ring MacMillan as well soon - another job on the list! Do you know if you can go ahead with chemo yet?
Auw you sound like your doing really well rosie14!:). I was really tired after both wle’s so god knows what I’m going to be like! I expectv the nice weather in Cyprus is helping? & hopefully your grandchildren will keep you entertained:)
Hope you’re feeling better kirstie77? So did they put a line in today? I went to have mine put in and it wouldn’t go in they tried 4 times so think I’m going to be pretty bruised later! So they are going to put a canula in on Thur and then hopefully get a line in ready for 2nd dose. So just had zoladex injection and bloods taken today. The nearest lgfb session is 2hrs drive away from me so think I’ll be giving it a miss too! Yes I don’t think I’ll read mummy’s lump very often - it makes it all ‘real’ especially as youre reading it out loud! My little girl isn’t old enough to take it all in & ask questions anyway. The drunken night is needed! We need to let our hair down (whilst we still can!). My friend came round sat night for a culpa & a catch up which turned into most of my friends - we hit the rose,nibbles & had a giggle:) much needed! Good luck for tomorrow:) & suzie68:)
XxX
Hi all, I’m due to start Thursday 3/4, have pre assessment tomorrow and also wound check as it’s not fully healed yet. Bit worried because I’ve had infection in site of gland removal under arm and it’s taken 4 weeks to get clear and 3 lots of antibiotics!! Anyone had similar problems? I love everyone’s positivity…just my style ladies…wait to hear from you all and thanks in advance.
Yep defo agree suzie68 - that’s exactly how I’m feeling about it all too! One of the nurses said today that ive been very positive & seem to be taking it all in my stride - what else can you do?! & like u say all the treatment is to throw at it all & zap it bloomin away!!
Hey Ellie 47,I start my chemo Thur too. I’ve had a 5wk hold up as my harm has been filling up with fluid so keeps needing to be drained but its not infected so should be able to go ahead now & we were also waiting to get fertility advice xxx
Day 6 feeling much more human, eating very well, good appetitie, thought I would put on weight not working, walking dog etc but thank goodness haven’t done- if anything I have lost a pound! Good luck to all you ladies starting chemo today and tomorrow! xxx
Well got through chemo no 1. Isn’t it odd it was a lovely room and not busy but funny how although in same boat my partner and I sat together and while made eye contact didn’t really speak to anyone. Think as I get to be a regular this will change and I feel comfortable speaking to others. Might look to suggest a reading group - as in general life never have time for this
Drugs I went to the doctor today to get a number of things on prescription I have read in forums that could be useful etc. He did not seem to keen Q can I request things from the oncologist when I have more symptoms ?
Had wig referral also yesterday think my partner and I are def past the no makeup stage lol
All the best Kirstie. I wish I had the line in as the candua (sp) in hand really hurt
Yes 1 down 5 to go. Re all the gear hope you left space for the drugs you will get today. NB I wrote on the boxes to make sure got it right. Be an old hand at it soon.
Hey ladies just wanted to reassure those of you that haven’t started yet that it was an absolute breeze. Took less than 2 hours from start to finish and that included having obs done and seeing pharmacist for anti sickness to bring home. They gave a anti sickness pill that they said took 20 mins to work, put in the cannula and then gave anti sickness injection into it, bizarrely it gave pins and needles in my bottom, a bit like sting nettles nurse said this is normal and it only lasts for have injection. Then had the FEC and waited another 20 mins while they flushed me through with saline. I feel absolutely fine but will see what’s the coming days bring. I didn’t want cold cap as I don’t see the point (for me) so should be bald as my hubby by the end of the month. 1 down 5 to go. ?
My appointment with oncologist was cancelled yesterday, and I am booked in for a skin graft next Tuesday, so I still have no start date for my chemo yet. I too just want to get it started so it can finish quicker!
Good luck to everyone who is having their first session this week and well done to those who have already started for being so positive for the rest of us
Thank you rosie14 ct scan went well. Takes ages & was dying for a wee! Just hope its all clear - should find out Mon. Had arm drained for the 5th time & two fillings at the dentist so all good for tomorrow I hope!
Glad to hear suzie68 & kirstie77 also books&wine? found it good today!:). Hope you both have a good night & don’t feel it too much in the next few days.
I know what you mean tlj63 & kirstie77 - I bought a few little bottles of anti bac gel at the wkend too along with some nail strengthener & mouthwash to see if any of it helps!
I hope loulou1262 & ellie47 can start treatment along with me tomorrow:). I’m just hoping my bloods & arm will allow me!
Catch up soon ladies,take care xxxx
Hi girls, I saw the oncologist on Tues 1st n she said it will be about 3 weeks till I start chemo etc, I had a bilateral n all lymph removal on the 25th Feb, I’m worried that there is a big gap between op n treatment? Have any of you waited this long? Help, getting anxious! Angie
Auw at least you have a date now loulou1262!
Mummycrow I had my op 5wks ago & due to start chemo today - I was getting pretty anxious too! But I suppose they weigh it all up & know what’s safe. Still can’t help getting impatient though I know! Good luck hope you get a date soon xxx
Mummycrow, I also had bilateral on 4th March and haven’t had date for the start of my chemo yet, although I have been told it should be sometime in April.
My surgeon started me on Tamoxifen 2 weeks after the op when they realised that my wound wouldn’t be healed in the near future.
I’m sure that it’s right what EAM28 says though that they weigh it all up and know what is safe.
I know that it’s a worry but we have to trust that they know what they are doing.
I hope that you get a date soon too.
Is there any particular reason why you haven’t had a date yet?
Congrats Kirstie at least the first scary one is out the way. I considered the cold cap but decided against so hats off to you for giving it a go. This week up down for me just trying to work out pattern. Given the amazing support my partner is giving me we are both trying to rest when we need it ! Men are amazing I could not wish for more from mine.
Mummycrow my op was on 10th Jan, then 5 weeks to heal, then 2 weeks to get onc appt then 3 weeks to start chemo. I was on hormone treatment until 3 weeks ago though. It seems a long time but I agree with the others that all the risks are weighed up and they know what the safety margins are. Im sure you will be fine !
they tried 4 times so think I’m going to be pretty bruised later! So they are going to put a canula in on Thur and then hopefully get a line in ready for 2nd dose. So just had zoladex injection and bloods taken today. The nearest lgfb session is 2hrs drive away from me so think I’ll be giving it a miss too! Yes I don’t think I’ll read mummy’s lump very often - it makes it all ‘real’ especially as youre reading it out loud! My little girl isn’t old enough to take it all in & ask questions anyway. The drunken night is needed! We need to let our hair down (whilst we still can!). My friend came round sat night for a culpa & a catch up which turned into most of my friends - we hit the rose,nibbles & had a giggle:) much needed! Good luck for tomorrow:) & suzie68:)