Morning everyone, Rosie, hope you are more comfortable today, enjoy your last couple of days with your son and fiancée, they will understand you are unable to do a great deal and I am sure they feel really happy to be there to help you both!i very frustrating for you though. Am taking my mum and my sister into leicester today just for a look around shops and light lunch, hoping it will help my mum a little to do something " normal" other than talk about various hospital appointments! I have realised even when you are 52 you are still a small child in the eyes of your parents! It must be very difficult to deal with an illness like cancer that affects your children whatever age.
Wildpurl, hope your decorating gets underway, have a productive day!
All the best to all you other ladies whatever Saturday brings!
Morning all. Good news about brother in law, although the tumour they removed was larger than expected he still had keyhole surgery and was up and about yesterday. Still do t know reason for delayed return to ward but at least not surgical complications.
Jos, I’m not surprised your apt with the radiologist sent you into a bit of a spin. Given the very positive reports you’ve had on your response to chemo I think this guy was very much just presenting a worst case and very unlikely scenario, essentially covering all the bases. But you would think they would a) try to sing from the same hymn sheet and b) have some awareness of the impact of what they say on the patient. Re the research on relative outcomes of radio and surgery on lymph nodes, I wonder if the abreast Cancer advice line could point you in the right direction. Or there might be something on the radiotherapy thread. I hope your trip to Compton Verney helps to raise your spirits somewhat. The exhibpbition sounds lovely. When I come off here I’m going to look up whether it is feasible to get to it from here. This weekend I am hoping to get to a sculpture exhibition in the griounds of a local NT house but I don’t think there are any famous names.
Booksandwine, glad you are making a good recovery although the sharp pains sound a bit nasty.
Rosie, managed to sell sone of them to people setting up businesses supplying china for functions but most of them went back to charity shops. Kept some I couldn’t bear to part with. Hope you manage to get the issues with the fluid and implants sorted and that your temperature is down. Your radiotherapy schedule is going to be gruelling with all the travelling. Your idea of staying the weekend of your birthday seems a good one. Hope you don’t feel too much of a letdown when your son and fiancé hVe gone but I think you are expecting more visitors soon?
Lovewine, hope you have a good shopping trip today. It’s natural, I think for parents to worry about their children whatever their age, and they must feel so helpless. But it’s an additional worry for you too. I guess that’s what families are all about.
Wildpurl, good luck with the decorating.
Oh dear. Rosie, still trussed up, you must be so fed up. The fact that your father thought you both looked well is a real tribute to you and OH and how you have handled all this. Mothers in law!
Exhibition turned out to be rather overstating it; there were half a dozen pieces but since they were dispersed all across the gardens I was pleased that I managed it, albeit having to be fortified with a National Trust shortbread and making use of the courtesy bus to get back up a steep and long hill. Now rewarding myself with a Bacardi and orange juice. Well. To be honest, two. Husband out taking his sister to see husband so no-one to raise eyebrows. Making plans to get out and about next week to take my mind off Thursday.
Wildpurl, pleased you are now noticing improvement in stamina. Gardening and preparation for decorating. You put me to shame.
Had a lovely morning with mum and sister, so nice to do something normal like clothes shopping and having coffee and cake! Sure it helped my mum very much - I hope so.
Sounds like everyone has been busy, Joan, I think you are doing really well so soon after your surgery, really nice though to get out and about, Wildpurl you seem to be busy too, glad your stamina is returning, I feel a little stronger everyday although seem to need a small nap sometimes in the afternoon.
Rosie, are you taking tamoxifen too as well as herceptin soon?, sorry you are still bound up and having to keep going back, focus on your weekend away to your favourite hotel! You certainly deserve some pampering!
Booksandwine, hope you are doing ok too, jos , hope the exhibition was a bit of a distraction for you.
I did actually! A nice jumper and thick sweatshirt ready for my weekend in Norfolk! Think I may need warm clothes! I totally relate to being a control freak- I am terrible if not in control, I run everything at home which is how I like it! Think that’s why I am successful at running my own business as can please myself, think I would be unemployable now as couldn’t take orders from anyone else!! Enjoy polesden Lacey tomorrow.
Morning Rosie and everyone! It’s a good thing antibiotics don’t make you sick , I feel terrible when I have to take them, hopefully things will improve for you this week! Enjoy your last day spent with your son, October will soon be here when your daughter and grandchildren arrive and you will be much stronger by then!!
I am off with O/H to pick up mum and dad and visit my son and daughter in law this morning to celebrate dad’s birthday and daughter in laws, more coffee and cake!! She is a wonderful cook and being Cantonese she cooks great authentic food , passed down from her grandma who now also lives locally.
Well it’s pouring with rain , so on with the wellies and raincoat to walk dogs!
Wildpurl, sounds like a lovely day, cream tea too, my favourite!! It’s so nice to get out and about visiting lovely places like that. I do enjoy knitting, am not on ravelery though, I think now cooler weathers coming I may start doing some, I am a little out of practice now, but think I will soon get into it again, a friend of mine makes lovely knitted bags out of boiled wool, they are really nice and fairly easy to do, might have a bash at one of those too.
Rosie, hope you have had a nice day and are not too uncomfortable?
Morning Lisa, your radiotherapy seems it have gone past quickly! Probably not for you, yes I thought maybe the earlier the better for appointments, can you request when you go? Sounds nice on central railway, lovely to visit, remember taking my sons when it was Thomas the tank days! Glad you spent time with your nan. Hope today goes ok for you too.
Rosie, expect you are feeling bit deflated now your family has left, my dogs mope when people leave too, at least you are not trussed up as tightly, hope things start to improve.
Jackie, hope today goes ok with surgeon, maybe you won’t have pre op bloods , ECG sprung on you like I did!! Anyway good luck, sorry you have to take your son with you, if lived closer to you I would look after him for you! It’s very difficult when family/friends are not always around to help.
Wildpurl, hope you have a good day, are you still full up from lovely cream tea?! Could just eat one now actually!
Have a good day ladies.
Rosie, sorry you are feeling fed up, as Jackie said it’s not surprising with all the stress you are having, 6cm wounds sound awful, every time you are having them drained you have to go through it all again- poor you, hope your friends visit lifts your spirits a little!
Jackie, hope you get some news from breast care nurse soon! Wonder if your surgery will be around the time of mine? (Friday 29th august) I am getting very anxious now! Hoping our 2 nights in Norfolk will calm me down a little, planning just to do light walking, eating pub lunches and of course drinking wine! Am not called " lovewine" for nothing!! Hope you can plan something suitable and not as tiring as eurodisney, London too is very tiring even when in best of health!
Hi ladies finally out of the chemotherapy fog and waiting now for rads to start in Sept. Very happy not going to feel crap again.
Rosie remember why you did this very quickly you got to go to your son’s wedding and make lmemories and be on the photos. Now you have to be a patient patient! Frustration is the thing they never speak about with cancer but blimey it’s a major part!
Glad to hear so many getting varying degrees of normality back can not wait till my energy levels are back. The mind is willing the body is firmly plonked on the sofa. Some of it I believe is emotional exhaustion.
Just read leaflet on tamoxifen blimey what a morale booster that was …Not! Does anyone have any experience of this drug?
Hi Louise, what a relief now to be out of chemo! Not too long now until you can see the end of treatment!
Your energy levels will gradually pick up, it is very frustrating all of this ongoing crap, we just want our normal lives back again don’t we.
Rosie, you are such a support to the rest of us when we are down in the dumps- it’s your turn to need a bit of moral support!! You have done such a lot, going to the wedding, D/H also having surgery and worrying about him too, I think when you are on your own at home too it makes you feel pretty fed up.hopefully when you can be sorted out with the wound and stitches etc you can start to feel better, I think the sooner 2014,goes the better! What a bloody awful year for us all.
Jackie, hope you got on ok at your appointment today?
Hi Rosie good luck with nurse tomorrow while you have a quiet time I would make a list of all the question you want to ask. That will ease your mind and aid your recovery
Lovewine I will raise a glass to the back of 2014 but won’t we appreciate our lives x
Yes, I think this year has made me appreciate things so much more- little things in life …
Rosie, you will feel better after things are explained more by the nurse tomorrow- a list is a very good idea too.
Jackie, good there were no surprises at appointment, you must have been a nervous wreck though having to wait that long! At least you didn’t have to take Oliver with you- how old is he? Must be so hard without any of your families from both sides living nearby, my husbands parents live in Canada but am lucky to have my parents and sister and brother in law nearby.
Wildpurl, I have been working for about 4 days a week for last couple of weeks, do get tired , but like the routine and normality of it all, hope you get on ok and yes early nights do help!!
Rosie, hope you can have a good nights rest and feel a little better tomorrow x
Sorry not to have been on here for a few days ; we had a terrible shock on Sunday morning-my brother in law, the one who has just had surgery for bowel cancer, had a heart attack and died. It was quite out of the. Blue, he had been recovering well and was due to be discharged the next day. To make things worse for my sister in law the next day was their silver wedding anniversary and her birthday. So we’re all reeling. As others have said, 2014 has not been a good year.
Rosie, I hope the nurse your friend suggested you see is helpful. No wonder you are feeling down, lesser mortals would have cracked under everything you have had to cope with at every stage of your treatment.
Jackie, glad you found someone to look after your son. You seem to be very stoical about the prospect of a mastectomy. I am still panicking about my results this Thursday, keep trying to prepare for the worst but still hoping the lumpectomy will have been enough. If you are anxious could you ask why no scan?
Need to sign off now so hope everyone has the best day they can.
Joan, what a terrible shock for you all- I am so sorry for your sister in law and you and your family, my condolences to all of you.
I hope on Thursday you have positive news and no further surgery needed.
Rosie, really hope you have answers today and maybe you are feeling a little brighter ?
Wildpurl, try not to work too hard!
Jackie, Louise, Lisa , jos , Booksandwine- sorry if missed anyone! Have a good day.
Cassie, Nellie and tij, hope your having good holidays!
Morning everyone. We are back from holiday. I’ve been reading thru the forum and I’m afraid I’m struggling to remember everything. However, Joan I’m not surprised your family are reeling from the sudden death of your brother in law. It does seem cruel to have gone through surgery and then die suddenly. At the risk of sounding trite (?sp) it does make you think ‘seize the day’. Your family must be busy now sorting all the arrangements. I hope it goes smoothly.
Rosie, I’m not surprised you are feeling fed up. The constant trips to medical institutions and feeling less than 100% is so draining. I think having had surgery and chemo we all just want to feel instantly normal again but it doesn’t seem to work like that. Bumped into my GP on the ferry back from France and she said it is a year long process, so I guess we all have a few more months of recovery time to go yet, but we will get there.
I’m still very short of breath and my limbs are pathetic. I feel like my legs and arms have done a major workout at the gym just putting the washing in the machine. I managed to cycle once to the boulangerie with my boys whilst on holiday. It was a 5 minute cycle and I was so slow and felt completely knackered when I got back. The holiday was great though. We all had a good time and it was great to have a change of scene.
Now it is back to reality, getting things ready for kids new school year. Need to get everything done this week as various members of the family are coming to stay from this weekend till school starts.
Had my 4th herceptin injection yesterday and started tamoxifen today. Hopefully I will be like Wildpearl and not suffer too many side effects. Husband not looking forward to me becoming a menopausal maniac!
Hello All,
I am back from pretty Leonards Cove, Stoke Fleming in Devon, we had a lovely time with my Grandson going on the steam train from Dartmouth harbour on the ferry, visited the theme park, Woodlands and the minature model village in Babbacombe, amongst the cream teas and lovely pub food. I am exhausted now back at work and fitting in hospital appointments every day, sometimes twice a day with radio therapy and oncology check ups at two different hospitals I also had my CT scan of the thyroid and will not know the result until next week.
I am sorry to hear your sad news Joan. Rosie I am also sorry that you are still having problems, I cannot catch up on all threads after 10 days.
X Cassie
Hi cassie, glad you had a lovely holiday, it’s a lovely part of the country, bet you will miss the cream teas! Good luck with all the his plural appointments. I am having my pre op assessment tomorrow, heart scan next Wednesday and surgery 2 days after that!! Am fretting about them all as I do every time!
Hope everyone is ok? Rosie how are you, hope you got on ok at surgeons this evening?
Hospital appointments not plural!