Anyone due to start chemo April 14??

Hello All,

 

I have tried to catch up on the threads but I do have a useless memory, I am glad to hear that the last of yur stictches are now removed Rosie the tightness should ease with time and excercise. Lovewine sorry the hospital have messed you around it is souch a worry. Wildpurl I cannot imagine how you have mamaged to do a full body work out congratulations, I can just about walk around and function a work for the day.

 

I have had by CT scan of the thyroid and should be seen in clinic on Wednesday the appointment was cancelled by the hospital and then re-booked two days latter with a different doctor, to be honest as I have not seen anyone in endocrinology yet I don’t really care, I would just like to know the outcome, I have also been seen by my onocologist who is now happy not to see me again until Dec, so thats good news.

 

My  head is quite itchy so I guess its some of my hair where I lost it o to growing back, I also have very water eyes, perhaps its my eyleshes, I cannot see any sign yet!

 

I have had the first four radiotherapy sessions this week which is ok so far but they said they would not expect any side effects the first week or so, its been difficult working and fitting in the appoinhtments and radiotherapy, but as always if it has to be done, us ladies will find a way. I hope everyone has a good weekend X Cassie

Hi everyone, yes Rosie, I did more beach walking and pub lunches, more beach walking and pub meals later this evening too! Back home tomorrow and surgery looming on Friday. I used to Also read Anne of green gables and black beauty too! Sorry you are in so much discomfort, really hope the expanders settle down soon it’s miserable being uncomfortable and in pain.
Hi cassie, hope your rads are not too bothersome, my hair is really itchy and growing and eyes are very watery so hoping some activity soon.
Well done Wildpurl for your stepson and all the best for the next stage of his life!

Wildpurl, sounds like a lovely afternoon, enjoy your rest tomorrow, are you back at work on Tuesday? I have a really busy 3 days working until my operation Friday, don’t mind really as hope it distracts me a little!
Rosie, yes I certainly would lay it on about pain you are having, might be something done about it!

Morning Rosie, sounds a full day! Hope it all goes well! On our way home later today? x

Evening everyone, back now from Norfolk, had a lovely time and just what we needed, Wildpurl, hope you enjoyed your pizzas and wallpapering is done!! Thankyou for your reassuring words, working up until Friday is a distraction I need!
Rosie, sounds quite a nightmare with the bank etc, hope it’s all sorted out now, doesn’t sound very pleasant having your wound cleaned out!! Hope you soon get sorted with expanders and get some relief! Will your school be starting the new term soon? Expect you will miss it very much, with such a demanding job though you have to be at full strength!! I know it probably doesn’t feel like it now -but you will soon be back !
Hope everyone else has enjoyed the bank holiday even though it’s rained today!! We were very lucky to have had lovely weather all weekend, last night even sat outside the pub with a lovely fish pie and white wine until sunset-fantastic, so nice to appreciate these little things in life !!

Hi ladies blimey some of you are like superwoman with energy to spare I am still like a 900 year old woman. I am also feeling very low especially missing my dad who died 3 years ago of lung cancer. I am so fed up of people telling me that I must be happy now its all over. Hmm only 3 week of radiotherapy and 10 years of tablets not to mention bald every where and sore veins plus having to get another prosthesis because big silicone tit does not fit in any bras. Honestly people just don’t get it oh and i am being forced into the menopause great and unending joy - Not

Sitting on the sulky step should any one need me x

Louise, you are entitled to sit on the sulky step every now and then. I was feeling just like you 2 weeks ago. In the last couple of days I can feel my energy levels getting better and I subsequently feel emotionally better. I’m sure I will go through a few more sulky step phases over the next few months. We just have to enjoy the good bits. As Rosie says you probably can change your prosthesis and if not try to enjoy a bit of a shopping trip. Perhaps treat yourself to something else as well as a bra.
Life here is pretty busy with Dad and step mum staying. We managed a wet bank holiday cooped up in the house without falling out, so that is an achievement. I’m off to younger sons school shop in a minute to get new trousers for him and then the grand parents want to take the boys shopping for a present. I think they are going to get fleeced for a Chelsea shirt which I refused to buy younger son because they are rediculously expensive.
I got on the scales this morning and it was not good! One week of tamoxifen and the weight is piling on. I’m going to have to really watch it as I can already feel my clothes are getting quite tight. One thumb nail has fallen off and the other one is lifting up. At this rate I’m going to look a real sight for sore eyes when I meet the parents at my sons new school in 10 days time. My son is beginning to get a bit nervous about starting now, I think the reality is beginning to hit him. I’m sure he will be fine, just need to get through the first few weeks, just like starting any new school.

Morning all!
Louise, the sulky step is never too far away from me, as Rosie says the reality of it all takes time to sink in once chemo finishes and then I make progress on one thing and another seems to go backwards.
I definitely feel a lot older than I used to at the moment but I think it will be a year before I get back to what I would consider normal.

Rosie I am sure you miss your work as you feel better, I know I did, and especially as it is your business. I think it is a good idea for you to introduce yourself to new people and new starters, so they know who you are when you go back to a more active involvement. But I think you are wise to defer getting more into the work until you are finished with treatment and your health is better. That said, are there any tasks you could take on by yourself that would help DH but not be too draining for you?

Lovewine, hope work goes well and try not to worry too much. I have dentist checkup on Friday - far more frightening than surgery! :wink:

Wallpaper was all done yesterday, this evening we will clear up the room and today we are looking at beds and mattresses.

Just spent ages replying to messages sent over the last few days and lost it all. So I’m going to leave it at good luck to Lovewine for Friday, Rosie, hope the wound cleaning not too uncomfortable and Jackie, hope you find the bravery you need to face your op. Best wishes to everyone else.

Hi everyone, what a busy day on here today! Thanks Joan for Friday wishes, hope you are doing ok?
Jackie, I am so with you on the terrified of surgery issue- would share the cyber wine with you too, maybe it would help us both! I am trying not to have a massive panic attack just thinking of it all- it has only just hit me in last couple of days that I am going to be " disfigured" , didn’t think I would be as affected as just wanted cancer out of me.
Rosie, your rads are going to be really tiring having to travel that far for them, sounds Good you can ease yourself in to a mentoring/admin role , in between hospital!
Jackie, what are your shoes like? Heels? And what colour? Maybe post op a handbag to match?! Your weekend sounds lovely!
Louise, we all sit on the sulky step at some point!! It is very annoying when people say " the worse is over " meaning chemo! I too am fed up with no hair- bloody wig gets on my nerves as it’s the same style and colour every day! I feel especially irritated with my mother in law at the moment who keeps repeatedly telling me " we all pray for you every week at church and in our weekly prayer meetings" , I apologise if any of you are religious but I feel like shouting at her" don’t bloody bother praying for me, as I wouldn’t have got this disease in the first place!"- sorry again.
Tij, yes you definitely deserve a treat too as well as your boys!! It will be hard when your son leaves for school, as Rosie said when hers went off to uni! When we left our two boys at their unis I cried all the way home( not in front of them) and kept going into their empty bedrooms and smelling their clothes!!
Wildpurl, now you get to do the fun part with spare room- the furnishing and tittivating- well done in finishing the decorating, good luck at the dentist!
Hope everyone else is ok, jos, cassie, Nellie, Eam,Kirstie, Lisa and sorry if have missed any one off!

Yes Rosie, that’s true about healing quickly! Surgeons do such clever things now with reconstructions and breast conserving surgery- am just feeling a little like Louise on sulky step too with surgery looming! And yes it is a temporary thing, have to keep reminding myself of that and would rather be cancer free !! It has surprised me how I feel with the appearance of myself after surgery!
And regarding mother in law, O/h is even more infuriated with her comments than I am, but a lot less tolerant!!

Evening Wildpurl, do you have several knitting/ crochet projects on the go at same time? I find that’s what I do! How lovely to have a hand crocheted quilt for your new room, you are inspiring me to start again!
It’s very autumnal here too, I also noticed today some of the trees are actually changing colour already- I do love autumn, it is my favourite time of year but would like to hold on to summer for a few weeks yet!
Have yet another hospital appt early tomorrow for a echo heart scan, then on to work afterwards.
Just a quick question- how did you learn to crochet? My grandma taught me over 40 years ago but need a refresher course I think!

Thanks Rosie! Yes very wise words!! 37 degrees, very hot indeed, dark here too about same time as Cyprus!
Hoping we may get a bit of an Indian summer here!!

Good luck Rosie, have a good day, hope I too start sprouting eyebrows!! Nothing as yet, enjoy your shady bar!

Morning Wildpurl, I am with you on the hospital phobia feeling, I have heart scan this morning , so was awake most of the night! People think because we go so many times we become used to it- I get worse!
Thanks for the info about john Lewis rowan courses, I am definitely going to look out for a beginners one here, particularly now autumn is on it’s way. Hope your appt with breast surgeon goes ok and you get some
News regarding your implant.

Morning Ladies,

 

I have completed 5/20 Rad sessions and so far so good, they said not to expect any se’s until after the first week, so we will see. Two appointments today, so lets hope the timings turn out OK, its always a worry, 12.00 radiotherapy and 2pm endocrinology to talk about the results of the scan, so no work today it would be pointless, I swapped my day off intead.

 

Rain, Rain and more rain in London over the bank holiday what a shame, my daughter is staying with me for a week before her son goes back to school and it was her birthday on Monday, the rain scuppered our plans but we still went out for a lovely Thai meal and had a yummy devils food cake made at the Humming Bird bakery, which by the way we are still plowing through as there was only four of us, we put a slice in the freezer for her to take home to her other half, he has a particularly sweet tooth. I like the idea of an after treatment treat to aim for, I will have a think about that one… Have a good day all, it at leat looks like a dry one. x Cassie

Appointment with breast surgeon was fine. She gave me a 6 month check up and all is well. I also had a further top up and the girls look more balanced now. I will go back in 3 months and if all is well she will put me on waiting list for permanent implant swap. As it’s the NHS and it’s not life threatening …could go private but not with this surgeon so will probably wait it out. OR if I have the risk reducing mx on the other side - which I intend to do - then could get that side to same stage and have both implants replaced in one op. After being on the waiting list…
I have three months to decide what I want to do I guess!

Thanks for your enquiries ladies, I am fine and not as worked up about the appt tomorrow with the surgeon to get my results as I was last week. Just hoping the appt isn’t cancelled again. If it is I think I shall be screaming down the phone. Had a lovely day today, took sister in law to visit a national trust property, compete with rather good lunch but surorisingly disappointing cakes. She is bearing up surprisingly well but I suspect that once the funeral is over, without the need to focus on everything that has tobe done, will be the more testing time.

Rosie, what a busy day you have had. No wonder you are exhausted.

Wildpurl, glad your appt went well you are pleased with the match. You sound amazingly stoical about the reconstruction process and the prospect of having a risk reducing MX.

Jackie, your shoes sound very sexy. I also bought myself some shoes on Saturday but I’m afraid they were of the comfy everyday variety. Even so hid them from my husband given I have a wardrobe full of shoes, many of them not so sensible.

Cassie, hope you made your second appt and the results of the scan were good. Ploughing through a devils food cake? It wouldn’t last long here I can tell you.

Lovewine, hope the heart scan went well and that you get some sleep tonight (and tomorrow night as well of course).

Sending you positive thoughts Joan for your results tomorrow! Hope sister in law copes as well as can be expected with funeral etc, sounds like a nice visit to NT today even if cake disappointing!
Rosie, sounds like a busy day for you, and again on Friday! How are your eyebrows looking now? Are you all glamorous with newly shaped brows!
My heart scan was ok thankfully, so hope to start on herceptin soon, didn’t have to wait too long either!
Cassie, cake sounds very nice! Shame it was such a wet day , but you seemed to have a nice day anyway, good luck either rest of rads and hope your other appointment went ok too?
Jackie, your shoes sound lovely, don’t blame you for wanting a designer shoe collection! I am more of a handbag girl myself and have a particular weakness for knitwear too! I was very nervous again before my appt!! I never get used to walking through those hospital doors!!
Regards to all you other ladies and whatever you are doing hope you are ok!