Hi Angels,
enjoying my 2 weeks off CMF and 2 more to go, my legs feel a little shaky today anyone else had this? I have called in fit for grounded duties BA have an office in Cheshire so I hope they find me something there. I live in Cheshire but I fly from Heathrow on long haul duties. I think it will be a while before I could face a flight. I hope the company will be understanding and supportive.
i too have been out for lunch today and wore a dress for a change, I have really dry skin on my body? Is there more SE’s to endure?
The ONC has suggested that I can choose to forgo the last CMF and I am tempted. I have had enough now, I am taking Prozac which has helped me through this process along with all of you.
I find it very difficult to take those tablets and the thought of them sends shivers through me. I too look at them on the table for ages, maybe we should take them with wine!
CMF ladies how are you coping?
oh and hair coming through and not grey? Very surprised there.
debra xx
Oh and having been through radiotherapy last time keep your cream in the fridge this really helps.
karen I really know how you feel. Judy I wish I was sitting looking at the beautiful view you have created.
I love the sea.
xxx
Hi everyone
lynn good luck for Friday
Judy - love the painting you are sooo talented
Angie - like the sound of the sage supplement far better thn the sage tea we will definitely have to try and find something to combat the hot flushes and night sweats as we will be on hormone treatment for the next 10 years.
Debra - you sound more cheerful today and it’s good news about the ground duties for when you return to work.
Hope everyone is well and the sleep faires go to all those that need them
Kim x
Love the painting Judy, you are very talented.
Debra - hope you get the ground duties in cheshire rather than having to travel to Heathrow for any work. I had a symptom of my legs feeling like they were ‘giving way’ rather than shaky and was told that was a sign of fatigue in the muscles and just to rest. Thanks for the tip on keeping the aqueous cream in the fridge, is it just more soothing or does it work better?
I will be off to Tesco’s this week to get some sage supplements - got to be better than the sage tea I’ve tried so far!
I have taken 2 days of Tamoxifen and so far I’m not reacting badly so assume that means I’m not going to have an ‘allergic’ type reaction and just have to wait for more hot flushes - I was having them before so hoping they won’t increase too much! Has anyone else started their hormone drugs yet?
I will be having my rads in September as I’m going away Saturday for 15 nights, Peterborough 1 night, Co. Durham 4 nights, Gloucester 1 night, Mevagissey, Cornwall 7 nights, Weymouth 2 nights…think my gypsy blood has come through, must be the big ear-rings I wear with my scarves!
Can’t remember who mentioned they had runny eyes but I had this and was told to use ‘comfort drops’ as its a sign of dry eyes and the drops ease it - they did for me so might be worth a try. I don’t wear glasses or contacts so didn’t need to be wary of that as Angie did.
Hope you all have a good day, we have sunshine so I’ve already got the first lot of washing on the line drying…ready for ironing and packing!
Kate
x
Morning AAAs
I am an April 2012 chemo bunny & today last year I was having my last chemo. I have been reflecting on the last year & occasionally dip into your thread to check your progress so thought I would post.
Last year now seems like a distant memory, almost like a bad dream. I now have my thick wavy hair back and it has been cut 5 times, have fab long eyelashes thanks to rapid lash, sparser eyebrows & lovely strong nails. I’m taking Tamoxifen so have achy joints & hot flushes but nothing too bad. My energy levels are back & I have done 6 gym classes already this week!! I’ve been a reload on holiday twice including long haul and to two music festivals.
i wouldn’t have done any of this without the support of my fellow bunnies. I ‘speak’ to them every day on our private Facebook group, we have all met up twice & there have been several local meet ups including 8 of us doing the 10 mole Pink Ribbon Walk in May. You have a great group here, treasure & nurture it a d it will be the best thing to come out of bc.
Good luck to you all & I hope you all feel as happy & well as I do 12 months on.
s x
hi angels
what a beautiful day at this end of the country,
hope you have sun and warmth and taste buds
so plenty going on this weekend it seems. I’m going back to work on Tuesday, i would have gone on monday but ive got rads planning, i’m hoping to get 2 weeks then off again for my 3 wk hols in inverness to get zapped.i’m packing and getting organised, so that when i come home from work knackered, everything will already be done and i can just put my feet up.
I was searching out all my ‘big’ tops last night so that i can take them for rads to avoid chafing, i am now in the stretch belvia bras ( because i am officially a whale on legs) and i found a safe nappy pin to attach my softie to my t-shirts so that i can be braless all the time during rads. Oh what a fun life i lead!!
The sage saga - i thought we werent supposed to take supplements during chemo and rads - i am goin to ask my onc on monday, kate already asked hers, i just want to be sure before i start popping pills. something to do with affecting the efficiency of the treatment that we have just had? which startled me, i think its in the BCC radiotherapy booklet. I suggest we all check with our onc’s first.
Amber - hope you enjoy your wedding, sounds like a nice trip away.
Louis - i have very dry skin too, i’m going to start getting lathered with cream to soften it up fir rads. hope you get on ok at work, might be a godsend back to normal for a while.
Kim - the sage pills are about a tenner, well worth not having to sniff that smell, its not nice - unless there were a chicken wrapped around it!
Kate - jet setter, off again! You have such a full diary! So have you got your tea yet? let me know how you get on, try the honey, poor you! I had drops for my dodgy eyes but they were more of a spray really from superdrug or something like that, just to lubricate, it is awkward with glasses, in the end i took a hayfever pill and stopped it. Did your onc mention pills for sage? do you know if we are supposed to have them, i should imagine the tea is fine because its not got additives that a supplement has.
Had a good sleep again last night, does it show haha - bit lively
hope youre all good, judy, pauline, lynn (nearly there), caz, mel, sandy, moira
Thankyou southpool, your post made me cry. Thats us next year girls yayyyyyyyyyyyyyyyyyyyyyyyyy
angie xx
With you on that one Angie. Can’t wait to meet everyone too. Thank you Southpool we do need the support of others who have been through the same. I don’t think I will ever stop asking questions about this journey it’s truely life changing and definately not understandable unless you’ve been there like we all have.
Judy - Your painting is so beautiful.
Amber - Wow your not hanging about. Did the tatto’s hurt at all? Have a lovely weekend.
Debra - Good to hear you can go back to work and that your hair is growing again and I’m sure your previous experience of rads wil be invaluable to us all.
Kate - What a jetsetter. My brain can’t cope with reading about how many places your visiting let alone organising it all. You really must have big danglies. (Earings I mean). Te He.
Off to bake for Saturday night barbie. Lv n Hugs. Sandy. xx
Angie, good to hear you slept well last night, hope this is the start of getting life back to some form of normality. My ONC said I could take any complimentary ‘medicines’ for tamoxifen SE’s, particularly sage tea and evening primrose. He didn’t seem worried that I’d be taking the tamoxifen and whatever I needed for the SE’s by the time I get to rads so if I need to take stuff I will and will just let the rads unit know when I go for planning. The teabags have arrived so I will try this afternoon and let you know how good or bad they are!
Sandy, yes the planning has been a logistical nightmare but kept me out of mischief for a few hours finding places to stay etc. I have a folder with all the accomodation confirmations! its lots nicer than the folder with hospital appointment letters in it! my ear rings are going to get bigger I think over the next 2 weeks and I’ll be selling heather in the market squares of all the places we are going!
the sun has been out here all morning so my washing is now ironing!
hope you are all having a good day
Kate
x
Morning ladies, thank you for all the lovely comments on my painting, it’s for my mother in law, she’s just had a new solid roof put on her conservatory, it makes it look just like a beach hut so I thought she had to have a beach painting to go withit.
crap nights sleep last night, it’s just too warm. I’ve been to the doctors this morning, had the prolapse looked at, she said its down to the chemo and how it relaxes the muscles. She said there’s no point doing anything with it till aftER all the BC treatment has finished. But I’ve got boxes of suppositories and lactulose to keep the bowels regulargoing asked about my furry mouth Angie while I was there and she confirmed its thrush so I’ve got a prescription for that too, hope that works quick.
Cant believe how your all moving on so quickly with work and rads, it’s good though.
Kate, AKA Alan Wicker, blimey, you don’t mess around do you, hope you have a lovely time.
Debra you lucky thing you, no grey hair.
Angels, I have arrived!!! Any room left on that platform?
Treatment went ok - found a ‘good’ vein on second attempt. Had a lovely nurse who chattered away and helped the time go quicker. Now bracing myself to deal with the inevitable side effects, but great to be on the last lap
Southpool - thanks for your post, really good to hear about your journey.
Carol xx
Congratulations Carol, well done you, hope the s/e are minimal xx
Welcome to the busy platform Carol, hope the SE’s aren’t too bad.
i have tried the sage tea bags, adding 1 teaspoon of honey and 1 teaspoon of lemon juice made it drinkable…wouldn’t say its nice but if it works I can cope with drinking one or two cups a day. Anyone who is having hot flushes this was recommended by my ONC, if anyone gets a better tasting remedy please let me know…especially if wine is recommended!!
Kate
x
Congratulations Carol budge up I need a place for tomorrow Hapoy dance and all. Thanks for your post Southpool made me cry too, givesus hope light at the end if the tunnel and all that !!!
Enjoy your holiday kate you are the jet setter. My sick line is up today, I forgot to phone this morning for new one phoned this afternoon doc calling me tomorrow prob when I’m in the chemo suite, he won’t get through as there is no signal in the Beatson I think the walls must be lined with lead.
Hope most of you are feeling better, I bought some bubbly for tomorrow to celebrate while I can taste it. My sister arrives in about an hour for an over night when all hell will break loose. Her, her husband two weans and a springer spaniel just as well Ive taken my steroids to keep me going. Wish me luck Lynn x
Good luck with your visitors and your last chemo tomorrow Lynn. I’m sure the time in the chemo unit can be extended for a little peace and quiet if your house will still be full when you get home! Can you not get a sick note from the chemo unit, I got all mine except the first and last from there with no problem at all?
Kate
x
Hi Ladies - had my CT scan today so should get results in a couple days! Feeling a bit better each day although bit of a dodgy tum today and runny eyes driving me mad. Will need to get drops or hayfever tabs!
Carol , welcome to the platform, good feeling isn’t it! See you tomorrow Lynn - good luck
Judy - what a fab picture, I so wish I was there right now! Don’t talk about clothes, there’s not much I can get into now but refuse to buy a bigger size …roll on diet and power plate next week…
Kate - I can’t keep up, enjoy your trip(s) , sounds fabby
Amber - can’t believe that’s Poland round already??? Have a great time
Angie - don’t know about good sleep, are you still on steroids - lol!
Southpool - thanks for your post, really is encouraging
How you doing Lori?
Hope everyone else is doing well
Take care Angels, Pauline xx
Hi Everyone - I’ve been to a singing experience party today with 5 very lively and exciteable children. I booked it for Hollie’s 10th birthday next week. They absolutely loved it, despite Andy having to make mad dash to Macdonalds because the company hadn’t made the party food I ordered :-/ It was great to do something a bit different. I’m looking forward to going away next week now, especially with my energy coming back a bit.
Well done Carol - start those celebrations
Good luck tomorrow Lynn. We’ll see you on the platform
Amber and Kate enjoy your travels. A good chance to forget about bc for a while.
Debra It’ s good to hear you sound a bit more upbeat. I used to work in a BA call centre in East Didsbury. Is that where you might be going? You’ll be ok there if so
Thanks for the advice about the aqueous cream.
Southpool thanks for dropping in. It’s good to know you are doing well. I agree we’ve got such a good group of friends here, which has been one of the positives to come out of this experience. I am so looking forward to our get together. A private facebook page sounds like a good idea. I’ll have to try to figure out how to make one. Is everyone here on facebook and would you be interested in forming a private group if I can figure it out?
Hi Mel
a singing experience party, is that teaching them to sing or karaoke? Sounds ideal for 10 year old either way.
i am on Facebook and think it would be great to have somewhere to keep in touch rather than on here longer term so we can move on properly at the end of our treatment…I keep having a debate with myself, is the end at the end of rads or after my reconstruction. I’ve decided it’s the end of rads and the recon is my ‘cosmetic surgery to make the new me’!
hope someone has the sun today as we have rain…have a good SE free day
Kate
x
morning
what about after the 1 year check up, that seems to scare a lot of people
angie xx
Last chemo today up and ready to go. Docs already phoned and given me a line until 5 weeks after rads can relax and concentrate on getting better. I am on Face book good idea to keep in touch that way after 1 year checks and after if you all want too. Remember we will not all be finished chemo until November although good news is its me today did I mention that! feeling good. Just waved my sister and her gang off its a typical drizzley day in Glasgow hope they get some dry weather in Islay. my husband put the bubbly in fridge this morning before he left, post later. Take care Angels have good day x
Good luck today lynn, hope it goes ok for you.
feeling drugged up at the moment, I seem to have a lot of different s/e today so ive taken all the pills for them, plus I didn’t slep much last night. Now I feel like a zombie. How’re you doing kim and carol?
Facebook is a good idea.
love your dog mel