Brilliant news Pauline. Bet you’ll be cracking open a bottle of bubbly tonight and sleeping well too!
Do you know Philomena I might even psych myself up for a one year out t-shirt. But I’ll let the dust settle bit first. Will listen every day possible for the shout out. And there’s always the i-player to listen again.
Glad to see you’re still around Lori. Hope the cankles and cording sort themselves out. Hopefully, as they say, time heals.
Not such good news for you on the teeth front, Rozz. I’m looking forward to going to the dentist just to get mine polished. They look like I’ve been soaking them in strong black tea! When this bottle of corsodyl is finished I’m NEVER using it again.
How are you feeling today Kim? Hopefully the worst is now behind you. Not long for the blue cheese
Moira xxx
Afternoon Angels, glad everyone is sounding more upbeat,Roz, I know how you feel about the teeth! I had to have 3 bottom front teeth out prior to starting chemo as I had an underlying infection, which they were about to treat. Dentist and onc insisted they came out due to risk of infection, and considering the neutropenia sepsis I got on cycle 2 was very glad I did. Have to say loosing them was worse than loosing my hair, or any of the rubbish that chemo entails, but Fortunetly as soon as the treatment finishes I will be getting new teeth sorted. I looked at it as a trade off and don’t really notice except I have developed the lisp I had as a child which makes everyone laugh!
Moira, go for it. I know quite a few of the Angels follow Popmaster, im just hoping my chemo brain has healed
Judy I don’t think your anger issues are with the steroids, more stupid people. I’ve not had any steroids for over a week but have met so many really stupid people I’ve almost exploded. Chemo meltdown…!
a bit of good news in that my overly bloated tummy has started to deflate… Whoopee.
must be off now as popping to eldest daughters as due back from a week in Majorca and have really missed them.
onwards and upwards Angels xx
Great result Pauline on the scans, I did manage some bubbly then had to have Indegestion tab,as well as a wee sleeping one before bed, been awake since 5, finished another book, anyone read anything good lately looking for something new.
I am going to venture up the loft today to see if I can find my knitting needles if I send John up himself he will have a man look and will definitely not find them, wish me luck not been up there for 11 years God knows what I will find.
Just read a thread on someone worried about when she will loose her hair just makes me realise how far we have all come, on ward and upward.
Just going to take my injection last one, hope you are all feeling as good as you can be take care Lynn x
ECMF cycle 5 day16
Hi angels
I’ve been reading posts but not writing any while away in Cornwall. Had a great time, really glad I went, even though We had to drive all the way home in the middle for another CMF, and then back again. Couldn’t do much just sat in deckchair on beach and went for little walks and slept, but great to see friends and watch the smaller kids in the sea. OH was a star doing all the driving.
Haven’t been as exhausted yet on CMF as I was on E but have had nausea, oral thrush, sore disgusting mouth, numb finger tips and swollen ankles. loads of drugs to take- hardly time to fit them in the day! My worry of the moment is that I woke up in the middle of the night on Thursday with excruciating lower back pain. I think it’s too long after to be the neulasta, but it’s persisting. don’t know if it’s an se or something completely unconnected. Anyone else had this?
Has anyone looked at the life after cancer campaign that the Guardian newspaper is running with Macmillan? I had a look on line at some of the posts- incredibly moving, some uplifting some not. They are running it for a year to raise awareness of what happens to people after treatment, which I guess will soon be us. It’s confirmed my suspicion that life will never be the same again- in good and bad ways.
Lyn and Carol congratulations on your arrival!
Rozz so sorry about your tooth. Hope you find a dentist who cares.
Pauline congrats on your clear scan- is this the one you did privately?
I really appreciate the support on here so where ever it moves I will follow. I’m not on facebook at the moment- but teenagers keep telling me I’m from the past so perhaps now’s the time to learn. I do look at other forums though on here from people who are further on than us and it’s useful to have that view- i imagine people just starting look at this too.
So glad to hear everyone is knitting- it’s been a life long hobby for me since my granny taught me at age 5ish. If I can’t concentrate I just knit squares to make blankets- very vintage! keep those skills alive!!!
Judy- not v happy with my hair either- still black/brown round the front but rest is grey- going to wait and see but I suspect I will be dying it!!!
love to all
Mel xxx
Hi everyone
i’m feeling so much better today. I have indulged in a little retail therapy and have bought myself a gorgeous black tote bag in preparation for returning to work in the autumn
Pauline - excellent news about the scan
Philomena will listen out for you on popmaster
like many others I have finally mastered the art of knitting whilst I’ve been off. I’ve just finished a great cardigan in a cotton yarn I’m thinking of tackling some fair isle when mychemo brain disappears.
judy - still can’t see any real hair growth on the front of my head but I can Feel some stubble. the rest of my hair is fluffy and white! looks like i’ll be back to colouring it in the coming months.
it’s my OH’s birthday on Monday so planning on baking him a courgette and lime cake as a surprise
hope everyone is feeling well and enjoy the rest if the weekend.
Kim x
Great news about your scan Pauline… Peace of mind!!!
Sorry Mel not had any trouble with back to be able to advise if its possibly a related se or not I hope it eases soon. Will take a look at the campaign on line.
Lx
hi all
anyone who has had planning / scans - do they tell you anything at the time or what.
I dont know why but ive just turned into meltdown that when i get to my planning appointment tommorow theyre gonna tell me its spread everywhere, dont know where it came from! i’m having the ct scan, they said it takes about an hour and its to map for rads. got that bit ok, but then i remembered last time when i was diagnosed, they just kept pointing things out on the ultrasound screen saying ‘thats cancer’ and i think ive freaked myself out a bit. They used the word ‘aggressive’ and aggressively’ a lot when i last saw onc, which i think i blanked out because its only today that i thought about it. So do they just do the scan or do you get an update as well.
i’m going on my own, obviously because its a 3 day camel ride to inverness, and i was looking forward to it until my brain went into overdrive. now i think i’m doomed and i know its stupid to think that, but ive been sat sewing and thinking all kinds of crap that i used to think probably 18 weeks ago.
ive lost the plot havent I?
hope youre all well and of sound mind today.
angie xx
by the way
the last ct scan showed no nasties from my neck to my nearly knees.
#i am just losing the plot arent I.
angie xx
Hi Angie,
If you have lost the plot, then so have I. My planning meeting is in a couple of weeks and when I read the information sheet and saw about the CT scan I also imagined all kinds of nasty things would come out of it. I’ve managed to put it all to the back of my mind and stopped worrying. (most of the time). The scan apparently is only on the affected parts that are to be zapped. I told myself that if there is anything suspicious there the scan will pick it up and that is 100% better than it not being found.
Since my chemo finished I have developed paranoia about every little thing, and according to my onc this is normal at this stage. So no, you (and I) haven’t lost the plot, we are just behaving normally!
Good luck tomorrow Angie, and safe journey on that camel! xxx
Thanks lola
it must be a normal thing then - bad thoughts , i’m normally quite sensible and ‘together’ . I know what you mean with the paranoia, ive got neckache now!!! i think its probably too much sewing though .
thanks, i feel better now i know i’m not the only one.
angie xx
Hi Angie,
Keep strong, I am sure it is normal and we will all lose the plot a little from time to time but the sound mind will return. It’s a new phase of the journey we are entering and it is not surprising that having kept going through the long chemo weeks the mind starts to wander a little, when things are less well understood.
mel - so pleased you had a lovely time in cornwall.
lynn - the ‘man look’ for your knitting needles made me laugh!
pauline - great news on your scan
finished my 2 paintings yesterday, here they are:
Carol xx
Hi everyone
I had a lovely afternoon out yesterday, meeting some lovely ladies from the younger womens breast cancer network. That’s a private facebook group, which is accessible by invitation only and moderated very well by the lady who set it up and a few of her friends. I feel totally confident posting on there and like Linda said it is more secure because postings can only be viewed by members of the group. The downside to just staying on here long term is that we will probably naturally want to get away from the bc experience at some point and may eventually drift away and lose touch, however I’m happy to befriend everyone on my main facebook page anyway if anyone wants to keep in touch that way. I just don’t talk about bc on my main page. I think the best way to do that is to inbox each others fb link, rather than post it on here.
Lynn -Well done for reaching the finish line
Judy and Kim I hope you are feeling better now.
Kate - happy anniversary for yesterday. I hope you had a lovely time.
Rozz - it sounds like you had a nightmare trip to the dentist. Fingers crossed you find someone good who can sort it out soon.
Lorri-I’m glad you had a good break. Good luck with the herceptin tomorrow.
Pauline - I’m so glad your scan results came back clear. What a tremendous relief!
Mel - I’m glad you enjoyed Cornwall
Angie - moving on to new treatment and coming to the end of treatment is a pretty scary experience so it’s only natural to be anxious. Try not to worry though, the scan sounds like normal procedure rather than due to anything sinister.
The singing party was an experience in a recording studio. Hollie took a group of friends to sing a song of their choice, have it digitally remastered and put onto a cd for them. They then went upstairs for a pop star photoshoot, where they had a cd cover pic done + loads more pop star poses. They loved it. Jamie’s going with some friends for his birthday soon. I got the experience off groupon for £29, though if you want pictures you have to pay more for them. All ages can do it. My mum went at Christmas with the teaching staff at her school as a Christmas do.
Morning Angels
Mel - yes, it was the scan arranged via private insurance
Angie - I also have my rads planning session tomorrow. I haven’t really given it much thought to be honest but will be good to get a scan of the boob i suppose! Try not to worry too much, we’ll be thinking about you x
Carol - I can’t see the pics, not sure if it’s my PC? Can others see them?
Glad you’re feeling better Kim
Take care Angels xx
yeah, not sure what’s happening with the pics, could see them when i posted but now I just get a little blue squsre with a question mark - frustrating
Carol
Hi Carol,
Its the same for me I can only see the little squares, I think it’s probably these forums but I’ll check with the technical team, hopefully when the new forums come on line you will be able to post pictures better.
Kind regards,
Jo, Moderator
Angie, I had my rads planning last week and to be fair I was also on the verge of meltdown as like you I imagined I more tumour s and also because of the heart damage that I wouldn’t be able to have it! The reality was much different, the scan only takes a couple of minutes, more time is taken trying to get you into the right position, and no one was commenting on the scans. You get 3 pinprick tattoos to mark the area, and they are painless. :)xx
When can we stop worrying about our temperature post chemo? I’m on day 11 and the bl**dy thing is sneaking up. I was sick and loose this morning so starved myself all day, but have been achy all day. My temperature has decided to wait until evening to go up once again, which will probably mean a night’s stay if I go in. Do you reckon I’ll be alright waiting until morning?
Just phoned chemo unit and I don’t have to go in - yay!
Hi Mel
I thought you had to watch temp until about day 14- but it really depends how high it is. i was on day 14 when I got incarcerated for 2 weeks. Only you can decide for you, but take care.
Angie I think it’s normal too to be completely paranoid at the moment. Every time I get a new or increased side effect I think the worst. At the moment I’m trying to stop thinking back ache = cancer spread. i also have to actively stop myself feeling my scar, which is lumpy, thinking OMG that lumps bigger than yesterday! Do you think the paranoia fades with time?
Carol i can’t see them either.
GOOD NEWS- TODAY I PLUCKED MY EYEBROWS. admittedly the hairs are short but thought i’d get rid of the ones strangely growing half way up my forehead. Hair on head seems to be growing quite quick, sadly so does moustache, so that got plucked too!
Can’t keep up with everyone but sending love and sleep fairies to all
love Mel xxx