Hi PrimroseHill
I thought you may find our factsheet on Herceptin useful. You can download a copy from the website or order a paper copy. If you browse the list of publications for breast cancer treatments it is called Trastuzumab (Herceptin).
I hope this helps.
Very best wishes
Janet
BCC Moderator
Dear Sandy, yes I understand fear, The breast cancer returned after 11 years in the same breast. I am currently on chemotheraphy no 2 and have just returned home.
I am having counseling and after 2 sessions I am already finding it of great benefit. I am also writing how I feel and I when I read it from the begining of this 2nd nightmare I can see some progress.
I found the 2nd chemotherapy easier I think because I knew what to expect. I am using the cold cap and this time Mum and I took a single duvet and a flask of hot drinks, I also saw a few familiar faces.
I am home now thinking about you all and wish we could all be together around a log fire finding solace together.
having a nap now.
Debra xx
Thank you so much Janet. All at BCC are like little angels looking out for us all. I will look for your factsheet. (Taking everyones advice not to google).
Just been back this afternoon had cardiac scan and told that all is well (yayyyy good result for a change). Can’t believe i actually feel a little twinge of nervous happyness 
. This time 4 weeks ago I was teaching people to ride and running my stables and farm without a care in the world. Now im happy that Herceptin wont kill me (every cloud eh!).
Oh Debra really sorry it has returned. Can it return after MX. Im glad your finding counseling helpful and tonight am going to put a log on that fire to make all us AAAs feel warm and cosy.
Good look with dentist spudgirl (another tick on the list). Sandy xx
Hi Girls,
FEC - T Cylce 1 Day 1
Well, that’s number one off the list, ok so far no side effects other than a sore head which I had anyway. Nurse was lovely, explained everything to me and no problems with cannula. Seems I’ve got loads of meds, got Emend and had to take one before she started, also given Dexamethasone (steroid), Ondansetron, Domoeridone and Levomepromazine. Had my first red wee!
Hope you are all ok, will hopefully have nothing major to report tomorrow if you know what I mean.
Have a lovely evening xx
Debra and Amber, hope you’re both relaxing at home and not suffering too much xx
Hi Debra, Amber,
Glad your both over today and back in the comfort of your homes!
I hope the side effects are easier to bear this time round.
I have been out of action since Sat evening with the previous SE’s joined with terrible aches and pains through out my whole body. The aches started to disperse last night but nausea etc remained so have had my anti sickness pills changed I was also prescribed peptac (?) A suspension like gaviscon, think this has helped as today I am begining to feel like me again and not some-one possessed!!!
Good luck girls, my heart goes out to you, sometimes knowing what is ahead is scary but hopefully it will help in your preparation to get through…one day at a time.
…the first day that you feel better than the day before holds a great feeling!!
Love to all
Lori xx
Good morning AAAs
hope you are feeling ok this morning Amber and no SEs have kicked on.
well today is results day from my Mx. Not sure what to expect, but hopefully will give me some sort of idea as to where we go from here.
also hopefully my seroma will be drained again as I have now lost about 70% movement in my arm, am hunched up and in a mega amount of pain. The sloshy water bed has gone and its really quite firm now. Not a happy bunny day 
For anyone else receiving Results or starting treatment today, all the best and keep smiling 
love LS
Hi girls. Just popping in from the February Valentines with a tip for anyone planning to use the cold cap and who wears glasses. If you have contact lenses as well just pop them in on the morning of your chemo. I found the cap was so tight I couldn’t get my glasses on to read, write, use my phone or ipad. Hope this helps!
Caroline x
Morning all
Haven’t been on here for a while because I had a wonderful weekend in the south LaKe District and tried very hard not to think about cancer. Hope you all had a good weekend too. Back to reality yesterday when I went for Portacath fitting - not as horrendous as feared but sore today.
Debra, Amber and Lori - hope you are not feeling too bad.
Lilliescoot - thinking about you today and sending lots of positive vibes.
Take care
Wendy x
Hiya!
Wendy, pleased to hear about the portacath. Having mine done next Friday, but I’m a bit of a wimp with needles, so glad to know its not bad.
Anyone who has started chemo - my first one is on 15th April, which also happens to be the date for the “Look Good Feel Better” session my BC nurse put me on. It starts at 2pm - do you think I will be okay after first chemo? I really don’t want to miss my make-up and skincare session.
Thanks!
SG
Fec-T day 2
Hi all you lovely AAA’s,
So far so good, slight nausea and tiredness yesterday evening but went to bed around 9 and slept through. Feeling fine today, been out and about, nurse comming around 5 to give me my Neulasta injection.
Debra & Lori - hope all is well woth you too, Lori are there any side effects with Neulasta?
Littlescott, Wendy & Zuzy thanks for your good wishes xxxxx
Hi everyone
Just returned home from the Mx results appt, and I’m actually in shock I think. The good news is that yes they got it all, complete excision and margins etc.
the shocker is the size of it. My first WLE removed 49mm of Grade 3 tumour, my re-excision removed another 20mm grade 3, and the Mx has revealed a further 90mm grade 2. Total is 160mm!! I’ve not heard of any one else having one this size, and it’s really really scared me as to my prognosis now ( have access to adjuvant online and predict at work). My OH is wondering why I’m not dancing round the house rejoicing in the facts that it was a lower grade and its all gone. I really can’t tell him that I fear my life has now been cut drastically shorter. Sorry to rant I just needed to air it somehow xxxxx
Hi Littlescoot, my surgeon told me that they are not concerned with the total size of the multiple tumours it’s only the largest one that dictates treatment and prognosis so looking at your results it’s the 49mm of grade 3 they will be interested in.
I hope this helps you. It’s great news that they have got it all, and you can get treated and get on with your long life. They get great results these days.
Good luck
Maggie x
Thank you maggie- I was really hoping that’s how they did the scoring, and I know my stats for the 49mm one so I have just started to breathe again:)
thank you xxxx
LS
Dear Littlescoot,
Justs read your latest posting.You should be rejoicing. Its all gone. they caught it. I am not sure how the technology . you have excess to works but I do know that if your surgeon is positive then you have good reason to be happy. Some times I think we are afraid to be happy,but this is good news. You can get on with your treatment and then get on with the rest of your long life. I go for my appointment 12th April but the surgeon has already given me an idea of my treatment and that includes chemo. So we might be going through the chemo at the same time (any tips are gratefully recieved). The rest is now do- able, lets do it with a smile. Lots of hugs. xxxx
Elliedog.
Hi ladies,
I’ve been reading your thread with interest as i’m having a mx with anc on 17th and next step will be chemo.
Good luck to all of you. I think as women we have an inner power that keeps us strong and even at our most vulnerable we find something positive to pull us through. There is nothing we can do to change what has happened to us but we can do everything our power beat it.
love to you all
Emma
x
*in our power to beat it! (makes more sense!)
Hair chopped, eeeek! Was going to go chin length but hairdresser persuaded me to go much shorter…my ears are cold!
Amber, glad SEs are holding off so far, hope injection is ok
Debra and Lori hope you are doing ok.
wendy glad fitting went ok
spudgirl, can’t help othe than to say maybe check if you can rebook if you either feel crap or overrun, you don’t want to miss your only chance!
xxx
Littlescoot, wasn’t ignoring you… this page only showed when I posted mine! Good news that they got it all and that you know what you’re dealing with and have a plan of action to finish it off! Hugs xx
Neulasta side effects -
Very common:
Bone pain, general aches and pains in joints and muscles
Nausea and headaches
Common: