Before I confirm can I just check who is taking their OH? I think Sandy said her OH was going.
Hi Pauline,
I will be there and happy to share a room, thank you for organising. I recently had an offer for 20% off a 2 night stay at Carlson hotels…park inn is one of their brands…unfortunately that one has expired but if I get another I’ll let ou all know.
Thanks
Kate
X
Morning Angels
Pauline put me down for 2 nights, happy to share a room, thanks for organising us. Must go eggs are ready! Take care x
Two nights it is then! Looking forward to putting faces to names and lots of hugs all round! And I’m happy to share.
Philomena, my hair is now starting to thicken up a bit. A few dark bits showing on top but the sides are still definitely white. Still only about 5mm long and sticking straight up so I don’t think it’s going to be curly.
Weather is lovely here today. Going to have an afternoon wander round the genteel streets of Harrogate and maybe even tea in Bettys. Make the most of every day Angels,
Moira xxx
Morning Angels
Would it be a real pain if we could make the date later in the month say 19th or 26th. The reason being we turn out the cows with their new calfs outdoors that first week in April and have to keep a close eye on them for problems for around a week so. So the later for us the better and less chance of us being called back.
Mel - OH wouldn’t miss it for the world but because of the farm will only be able to manage one night.
Pauline - So count us in for the Saturday night whatever.
Don’t worry if the date can’t be changed we will get there somehow even if it’s just for the Saturday.
On another note. I’m a happy bunny as the taste buds are returning. I’m now eating for England again and have put on 6lbs in just one weekend. Even my beloved earl grey is back on the morning breakfast list. No sign of any hair returning yet and I feel like a 90yr old getting off the sofa but who cares. I love my food. yaaaaay. And just the thought of us all meeting up has lifted my spirits no end. Can’t wait. xxxxxxxx
Amber
You were lucky with the weather this weekend, we had 2 grey days, it didn’t rain but we had full cover of cloud for both days. I did manage a cycle ride to the pub and back Saturday lunchtime which I was pleased about. Yesterday I cut the grass and then spent a lovely couple of hours with a friend and my OH having a long lunch.
I’m already back from my 6th (9 to go) rads session, 2 hours inclusive of travel today but as I don’t have any more sessions this early that’s unlikely to happen again! At lunchtime I am beng admitted to the local hospital for my portacath removing, hopefully all will go well and I’ll be out before tea time.
Hope you are all having a good Monday
Kate
X
I’m pretty flexible with the dates, though I’ll probably meet you ladies on the Saturday as I live fairly locally so I won’t need accommodation.I’m really looking forward to meeting you all in person. Thank you so much for organising it Pauline. xx
Hi Pauline, I’m happy with either end of the month, just not the middle - OH’s birthday on the 19th and although he’ll probably drive me there and back he’d run a mile at the thought of a spa! Apart from that, we’re in Disney for his birthday.
I so agree with you Sandy - getting your taste buds back is wonderful. All the good intentions to lose a bit of weight go out the window for the first few weeks but now we’ve actually booked a holiday at the end of October, I’ve got a month to drop half a stone just for my own peace of mind.
Today I’ve been turfed out of my bedroom. OH has started decorating so we’re camped in the spare room for a couple of days or so. Been meaning to do out the bedroom for ages (years) but it’s always been too much bother. BC appears to have strengthened our resolve to get things done - though my part in this decorating is to keep out of the way.
Sorry to hear your skin has broken down, Kim. Sounds pretty awful. My scars are sore but holding together - just itchy!
Weather has cooled off a bit today.
Take care Angels,
Moira xxx
Hello Pauline and all you angels, I want to join the meet up and can do any weekend in April. I am happy to share a room. I will stay 2 nights and come by train. Thanks formorganisin
I finished rads on 11th sept and so far my breast is a bit red and swollen but otherwise okay. I have been negotiating a phased return to work and on Friday I walked up the hill behind my house and then celebrated with dinner with my group of friends. Was feeling great. Then woke up sat morning with a throbbing big toe. Nails on my feet have been hurting for a couple of weeks. This toe is infected and so painful and very smelly! Suffered all weekend but now got anti biotics and pain killers from my gp. Any way I’ll be up the hill again as as I can walk without pain. Like Sandy my taste buds have returned and I’ve put on the weight I lost during chemo!
Sorry hit send too soon - thanks Pauline for organising us and I look forward to discovering the name of my room buddy.
<Empty imported post>
Hi angels
Pauline I’m definitely coming for 2 nights. Happy to share a room. I’m looking forward to it. Would prefer to avoid easter weekend otherwise not bothered.
Lori what happened to your message?
I had 1st booster rad today. Already very sore and told it is likely to get worse. oh well last one on Wednesday. Have given up trying to wear a bra as just too uncomfortable. Even cropped top rubs- just having to swing free, which means i’m staying in the house as much as poss! i have been told after rads i can use hydrocortisone cream. Anyone else told this? Have been plastering on the aqueous which i’ve discovered makes a big greasy patch on t shirts if you don’t wear a bra- great!
glad to hear so many of you are going on holiday.
onwards and upwards!
mel xxxx
Morning Angels
Pauline - Absolutely forgot to look to see when Easter Week was when I posted yesterday so I do apologize . Anyway we are going to travel early Saturday to spend the day with you all and then head back late evening or stay with OH son in Manchester. That way if we are called back we won’t be tied to a hotel but will still manage to meet on the Saturday. Thank you for organising us all.
Mel - Are you still bringing your OH? I would still love mine to come.
Would we be meeting for evening meal, afternoon tea, or evening drinkies. Would hate to get there and miss you all. Sandy. xxx
Morning Angels
Sandy, I’m hoping for all three…evening meal, afternoon tea and drinks!
Rozz, I was only offered local for the port removal but it was fine, some odd sensations but no pain. I went to theatre at 2.30 and was back in my room at 3.15 and allowed to leave about 4.30 having eaten, drunk and been to toilet. They are the same checks you have for day case general so I think it was just a routine they do. I have no stitches on the outside just glue so scar should be minimal. The surgeon decided the initial scar wasn’t good enough so he cut that out to allow new skin to heal rather than the existing scar tissue. Not sure what difference it will make but he seemed to think it will give a better result…the previous scar looked fine to me! 
Diggy, your toe nail problem doesn’t sound good, hope it gets better soon.
I keep reading that you all seen to be heading back to work, I have another 2 weeks before I go back and am actually looking forward to it…although not sure how long I’ll be there on the first day, its a 30 mile drive to get there so however long I do I need to make sure I can stay awake to drive home again!
Have a good day
Kate
X
Hi Sandy
My hubby’s not into spas etc, so will probably just come for the evening meal and night out if other partners are going too. If not he’ll pick me up at the end of the night.
Pauline I’m still getting random SEs. The other day I had some nerve pain on the inside of my right knee, which hurt to touch. That had gone the next day. Bizarre! I’m ploughing myself with healthy food and supplements now to try to boost my immune system. Chlorella is an interesting supplement and worth looking up.
Glad the portacath removal went ok Kate.
Evening Angels
Glad I am not the only one with heavy legs, getting in and out of the car today I felt like an old women.
I had my no 7 rads of 19 today skin is a bit itchy,and warm to the touch, trying not to scratch.
A lot of you are back at work or talking about going back, I don’t feel ready yet, I work full time and feel it would be too much just now even with phased return. I want to get my fitness up to a higher level before I go back to the stress factory. Feeling a wee bit guilty I don’t want too, as I know it would be back to normal.
My mum starts her 15 rads tomorrow, she has been really well and back at the bowling.
Looking forward to meeting you all in Manchester . Have a good night sleep well Lynn x
Morning Angels
Kate - I’m so glad your port removal went well. Are all your treatments over now? That is a long drive to and from work.
Mel A - I’m going to look up the chorella. I’m too being really healthy at the moment with lots of fresh fruit, veg and fish and toast. Still can’t shift the weight even though i have one working pony back and three living out. So am back to work looking after 4 equines and teaching one hour per night and one on Saturday.
Cazp - I know when I have done too much physical exercise. My legs go like lead weights and with the nature of my job I have been told not to overdo it and not to take any painkillers to get by. Not easy when youve got a skitso thoroughbred on the end of a lead rein when it’s windy. But i’m doing everything I can to reduce any risks but the surgeon did say I may have to look at a career change due to right arm strain and Lymphodema risks.
Philomena - So I know how you feel. The whole BC experience forces you to make decisions that none of us would have dreamed about this time last year and the chances of my getting employed now with this dx is low. But for you having worked in the NHS hopefully it will be easier, maybe working in the BC field. A BC nurse from Boston NHS was sent to see me at the beginning when I felt really low. She was 8 months after treatment and had a huge arm affected with lymphodema wrapped in a bandage and thin spikey hair regrowth and clearly only one boob. Made me feel soooo much better. Lol. But she was lovely and so happy and upbeat despite it all that her visit did the job.
Lynn - Don’t feel guilty for not going back to work. Look after you now and only do what you feel.
Moira - How’s the decorating coming along. Looking lovely I hope. (Maybe I could become an internal decorator). lol.
Rozz - Hope the rest of your rads treat you kindly.
Pauline - and Mel - Amber - Saturday sounds like a great plan. Can’t wait.
Lori - How about you?
Debra - How are you doing?
Diggy - Another one. Fab.
Fecinora - Sorry you can’t make it. Maybe the next April after eh?
Going to hang the washing out now. Take it easy angels. Sandy xxxxx
Morning Angels,
Sandy - my treatments aren’t over yet, I am still doing radiotherapy, 8 of 15 in about 3 hours time so I will be just passed half way. I’m also doing Tamoxifen for another 9 years and 10 months or there abouts :smileywink:
Your job sounds a lot more strenuous than mine, my drive to/from might be longer but when I’m there I don’t have horses to look after!
Lynn, I work full-time normally too but I’m going back phased return and am not expecting to be full-time until before Xmas and some of the time I’m going to be doing will be from home so I won’t have the drive to/from on top of the hours I do that day. My first day is expected to be about 2 hours in the office so all told that will be about 4 hours out of the house…I’m looking forward to it but a bit worried about how I’ll feel the next day if tiredness does hit.
Philomena, do they retire you with an ill health pension if you aren’t fit enough to work for them? I hope so and you can then get a part-time job to keep you busy rather than need to work for the money as much. Hope it works out right for you.
Caz, I have the same mindset as you, I thought I’d be running around as normal by now but that isn’t the case, I still do stuff but then sit down and can’t get up again - I’m either asleep or too stiff to move! I’m hoping that doing a little often will make the progress quicker so my walking to town has increased in speed over the past few weeks (doesn’t do the hot flushes any good but hopefully is doing me some!) in the hope that this will kick start every joint into life!
Off to get my place in the queue for rads, with my sandwiches as my appointment is 12.36 so expect to be there until at least 1.30!
Hope you all have a nice day
Kate
x
Pauline,
I have oak wood floors, beige leather sofa and cream walls accented with red and orange cushions and rugs so I’d vote for orange in your house too! Well done for getting stuck in to decorating, I haven’t got that side effect yet!
I like your return to work plan, maybe I’ll do something similar where more of my days are at home than in the office for a good few weeks. I’m hoping that long term I can plan to work from home one day per week permanently, not sure if I’ll get that but I’m going to try for it.
Kate
x
Hi all
I’m in awe of all you people who are going back to work. i feel so far away now from my job I can’t imagine going back. like you Lynn I’m going to have to really build up my strength and stamina before i will be able to cope. I suppose i’ve still got 2 cycles of chemo to go so i’m a bit behind the rest of you. My pay stops in January, but i don’t think i’ll be up to going back then, so i’ll just have to take longer. i will definitely get a phased return. at the moment i still sleep at some point in every day! feeling quite pathetic! keep thinking i should be trying to eat better, but just can’t face it. have just eaten a whole bag of popcorn in bed.
i had last rad today. Thought i’d feel a bit of a high, but it was completely overshadowed by meeting a woman in the clinic whose tumor was back just 2 months after being given the all clear in January. She spent all last year going through this crap, 8 weeks off and then started all over again with a mx. i know this is unusual, but it has really depressed me.
My skin under my boob is turning black and nipple, and is v sore. i was given ONE dressing in clinic in case it actually breaks down ( not sure what this actually means) and told to go to gp for more. feeling really miserable so i’ll stop before I depress you all!
next chemo on Friday- blood count was ok.
sleep well angels, Mel xxx