hi
so far ive had about 10 different readings on my thermometer so ive got one on its way tommee tippee £34,99 tesco, will be at mine by 11.30.
hopefully stop panicking now
angie xx
Well done Angiepops, hope it works well. On your photo is that your baby?
Kate
x
no kate, its my grandson freddie, im 48, been there done that, years ago.
kate,
whats your normal temperature, do you know at what temp you would be ringing up for advice?
angie xx
Angiepops
Its a lovely photo. I’m 47 but have no children, just nephews, nieces and godsons!
My ‘normal’ temperature is apparently 37.2 in my ear so they want to know if it gets to 37.5 in my ear but they said they are likely to only worry if it gets to 37.7 as it would be 0.5 above my normal but 36.7 for me would be low. Basically they seem to be thinking 0.5 above or below your ‘normal’ is when they start to worry. They should have taken yours when they took your bloods and at your chemo session yesterday so if they didn’t tell you ring them and ask what they assume to be your normal
Kate
x
yea kate
im gonna ring the nurse in the morning and sort this out, i havent got a clue now.
oh what fun!!!
angie xx
Morning Angels. FEC-T Cycle 1 day 11
I did post yeaterday but somehow it didn’t appear. I now no that i’m ER+ PR+ and HER+. Had a big wobble at having all three but have been told that all can be targeted. My chemo is Fluorourcil, Epirubicin and Cyclophosohamide.
Linda I got brave enough to find out the technical stuff instead of sticking my head in the sand and I do feel more in control.
Feel good almost back to normal now and have had no hair loss as yet. Went for ten day blood and they had to try twice to get any. I am also getting spots (hardly ever did before) anyone else found this?
Pauline & Lori both look fab. Made me brave enough to upload Pixie.
Amber, Diggy, Spudgirl, Angie, Masie, Kate and all Angels. Lv & Hugs.
FEC-T Cycle 2 Day 3
Hi all,
Slept not bad last night, still a bit of nausea through the night but not too bad.
Thanks for support about pic…losing your hair is a horrible side effect and it’s true that some days it does get you really down. Since taking the plunge to go shorter initially (like you PrimroseHill - profile looks great by the way, good for you!!) It did make my decision to have it all removed alot easier as just watching it fall away day by day and seeing more and more of my patchy scalp was too depressing!!
I had my wigs trimmed at the same time and I am pleased too that they seem more comfortable now with no scratchy pulling on hair underneath, so thats a bonus as I will be alot happier wearing them now.
I hope you have all had a peaceful night and a good day ahead!
Love Lori x
Morning Angels,
Disasterous news for me. I am in hosp[ital with neutropenia. I was admitted yesterday after my temp spiked at 38, then fluctuated up and down but never actually reached 38 again. I rang in , went to chemo unit who did some bloods, and my neuts are down to 0.1. So they sent me to the edical Assessment Unit which is where I still ajm 24 hours later, with no hope of going home until at least tomorrow. I am on IV high dose antibiotics. I can go home when my temp has been normal for 24 hours. The nurse has just taken it and it was 36.8 so whooppee, I’m getting there. They say I must have an infection but can’t locate it, ahnd I feel perfectly well. Tot5ally normal in fact. So I am somewhat P’d off with all this.
(TCH day 11 cycle 1)
My baseline temp is low, it is normally about 36.3. I have been told that doesn’t matter at all. If your temp is 37.5, youy should take it again an hour later. If it is still 37.5 or higher, you must ring in immediately. and tell them, no matter what time of day or night. I have also been advised the Ear thermometers are3 the most accurate, but it varies from ear to ear, so take it in both ears and pick the highest.
Sorry about typos- my tablet keyboard is too small for my fingers!
xxxx
Hi Linda
So sorry to hear this - especially after you’d being doing so brilliantly. Do they think there is any connection with the phlebitis? I’ve been hibernating for a couple of days and think I will continue to do so.
Take very good care of yourself. Hope you are soon on your way home.
Wendy xxx
Hi Linda
So sorry to hear that you’ve been admitted, but hopefully you will be home sometime tomorrow.
Take care
Kim x
FEC-T Cycle 1 day 1
Hello lady’s this is my first post in here, I was diagnosed with invasive lobular breast cancer on the 26th march, I found out at the beginning of the week it’s in the lymph nodes. I thought they were going to do the mastectomy first then chemo and radiology but they’re doing the chemo first, 6 cycles of FEC-t. I had the first one this morning, it was fine. I’m feeling a little light headed and maybe a little nausious at the moment, not sure yet. Going to have something to eat and see how I go.
im pleased the treatment has started and happy that I found this forum. good luck to all the April Angels. X x
Posted it twice, sorry about that, this is gonna take some getting used to
Oh no Linda, sorry to hear this as I thought I was following your great path through this - perhaps I’ll stop just before the high temperature! Hope you get out of hospital soon and they identify the cause so it doesn’t come back as soon as the IV anitbiotics are stopped. Take care of yourself and keep smiling through it.
Judyd - welcome and glad to hear the first dose wasn’t too bad, hope your nauseousness fades - if it doesn’t get onto the unit to change your anti-sickness as there are many to try and one should suit you! I am also using ‘seabands’ to aleviate sickness - don’t know if they are working but I’m using anything to keep me as good as I can!
Kate
x
EC Cycle 1 day 4
Today didn’t start well as I was sick when I got up this Morning. Took anti-sick meds and started to have food little and often which have helped. Keep getting heart burn which gaviscon is controlling at the moment.
had a call from my Bcn who advised my to contact the chemo unit if my sickness, nausea and heart burn continues as they can change my medication. Temperature and everything else seems ok and managed to go food shopping this afternoon. Was due to meet up with some friends this evening but I think I’ll give it a miss.
Hope everyone else is doing ok
Kim x
Hi Girls
Fec-T cycle 1 Day 18
Lovely sunny day here hope it stays over the weekend. My wig had its first outing in public today, was a bit scared it might move and I wouldn’t notice but all ok. Just been to the docs for a flu jab, my Onc recommended it when I saw him on Wednesday.
Primrosehill - another Pixie !
Linda - so sorry you’ve ended up on hospital hope you get out soon
Judyd - welcome and congrats on your first tick box, hope s/e are not too bad
Christine- really enjoyed our coffee n chat must defo do it again
Going to have a chill out weekend before I start cycle 2 on Tuesday, it has come round really quickly
Love n hugs to all, have a great weekend and hope s/e are minimal xxx
Thank you Kate, I will have to try the sickness bands, anything is worth a try, the throwing up is the only part I know, I will not cope with, any other side effects are ok, but being physically sick is one thing I cant do with.
hello Kim, hope you get our heartburn sorted out and there’s no msick being sick or you.
Hello Amber, thank you for the well wishes, the sun being out, makes all the difference, hope you have a relaxing weekend before you start again.
Hi Linda - hope that temp is staying down and your home very soon. Hang in there hope your doing ok!
Hi Amber - what a lovely dog…whats the breed and name, so cute…really cheered me up!!!
Lori
Hi Lori
She’s a Goldendoodle (retriever/poodle) and just a lush, she’s 7 months old and a proper girl, her name is Amber, that’s my cover blown lol, glad she cheered you up
Shona x
Fec-t cycle 1 day 18
hi all, hope you are all doing well and not suffering too badly with the dreaded s/e!
my side effects seem to be under control now, i’ve discovered that if i eat little and often it keeps the upset stomach settled, less heartburn and bloating. My head is a little sore and itchy after wearing my wig most of the day, but will soon settle down now i have taken it off and put my scarf on.
Amber - thanks for the lovely morning, i really enjoyed our coffee and chat, will def do it again I’m going back for an orange choc cupcake 
I didn’t realise it was the first time you’d been out with your wig on, you were very natural with it! Amber is lovely by the way, hope your jab wasn’t too bad!
Linda - sorry to hear you’re in hosp, hope you feel well enough to get home soon
Judy - keep with the anti-sick tablets, if they are not working as they should def phone up and ask for different ones. I have a 24hr phone no from anchor unit which is where I get my chemo, i phone there and speak to an oncology nurse and they can arrange for tablets for me or contact my gp and get a script from pharmacy for me. don’t suffer if you don’t have to.
Hope all you other strong brave ladies keep your chins up and remember, this is not forever, just a means to an end!
Enjoy your weekend Christine x