Hi Angie
My Onc decided I was ‘fit enough’ (not sure what that means as I don’t know that he did any checks!) to take it 2 weekly with the ‘white blood cell enhancer’ injections, so I didn’t argue as the sooner the chemo is over I can move on to rads and then hopefully get back to ‘normality’ - not sure what noramal is going to look like after all this! I think he just wants to get me off his books really as I ask too many questions! 
My new profile pic is me with my wig on this morning, I tried lots of dresses on to see which I can wear with an ‘uneven pair of breasts’ and a portacath plus scar near my bra strap…luckily I found 2 that were suitable and had photos taken showing my ‘cleavage’ and my new hairdo! I did try a hat with my dresses too but I think I’d feel a bit odd sitting at dinner on a cruise in a full hat rather than a ‘fascinator’ style hat…perhaps in 4 weeks I’ll feel differently but having still got my own hair I’m a bit unsure about the hat thing at the moment! Has anyone else tried hats rather than wigs, does it feel odd or does it just take some time to get used to it?
Hope you’ve all had a restful/SE free day
Kate
x
wow kate
fantastic, looks really nice, and superfit too!
ive had my 2nd choice wig on all day today and ive actuall forgot its there a few times. my first choice wig was too irritating, although its a nicer cut.
you look great. 
angie xx
Thanks Angie I actually felt quite comfortable in it and the 2 dresses (and I don’t really do dresses!).
Don’t forget you’ve got a wig on and open the oven door though! 
I hadn’t considered getting more than one wig…apart from a pink curly one that my OH thinks I should have! I’m tempted to get one just to embarass him one day when I pick him up at the station in the evening!
Kate
x
Kate your wig looks lovely.
Hi Kate,
Your wig is perfect. It suits you and looks natural. I know what you mean about hats. I have bought some and they may be fine for dog walking when it’s raining, but I cannot imagine how silly I would look sitting in a cafe, or even in the supermarket when the sun is shining.
I opted for a wig, and am wearing it in my profile picture.
One word of warning - if you wear your wig and a hat, never take your hat off in public because your wig will come off with it!!!
hi lola
your wig looks very natural, i didnt realise, it looks like real hair.
pretty ladies 
angie xx
Thank you Angie, I am pleased with it xxx
We are all pretty ladies
I agree with Angie Lola I didn’t realise your photo was of your wig as it looks so natural!
I just told my OH about your view of what not to do if wearing a wig and a hat and he laughed out loud so I think if it did happen to me he would laugh even more!
I have a headscarf that I think I might feel okay wearing in a cafe/restaurant - once I lose my hair (which ONC thinks will be this week but so far I’m holding on to it!) I’ll try and let you know what the reaction is!
Kate
x
Hi Kate and everyone,
Thanks for your reply Kate, I’ll be with you in spirit for second cocktails (maybe I can have the ‘white blood cell enhancer’ too if I’m too low)
I havnt given scarfs, hats or wig a test run yet (not convinced about any of them), but hair is falling out rapidly now.
It usually rains in Scotland, so maybe I’ll just keep my hood up. Or a Jimmy hat (tartan bunnet with red hair sticking out the back)
Or anyone tried a veil - I’d feel more confident that could stay in place (I could say I’ve got religion, would that be a more difficult conversation than having to tell all and sundry you’ve got BC?)
Seriously, your wigs look great, and mine is better than my own hair (until it started falling out, when it started to look fab - how ironic is that?), but I need something that I know will stay on my head without having to be aware of it, so it will probably be a buff.
Hi Nora
I have tried hats/headscarves around the house and I wore my wig into town yesterday (about 1/2 mile to walk into town from my house) and it felt okay - I did adjust it a couple of times in shop windows which now thinking about it probably freaked the shop workers if they were looking but at the time I didn’t consider that!
Not sure why everyone doesn’t get the ‘white cell enhancer’ injection - I suspect its cost and I’m using private health insurance so that may be the difference but wish everyone could have it to save on delays etc. It does make you feel hungover the next day though - like you’ve had a great night on the tiles but unfortunately you haven’t! I’ll find out on Tuesday if its made a difference for me and kept my blood at an acceptable level or not…I hope so!
Love the idea of a Jimmy hat…I went to a BCC Headstrong session and did have a giggle at some of the hats/headwear they had for me to try as there were wig pieces that if they’d been red would have met that description! Have you been to one of these sesssions, if not and there is one near you its worth spending the time - well it was for me!
Kate
x
Hi Angels and welcome Nora, sorry you have had to join our motley crew!
Everyone’s wigs are looking great- better than my hair normally looks i think. I’m going back to wig shop on Wednesday to try and make a choice. Hope I don’t have to wait too long for it because my hair has gone completely straw like, although not falling out yet.
Hi Mel! We’re both Mels! I know work is a no no deep down, it’s just that every doctor I’ve asked has said ‘well many people do work during chemo and as long as you don’t go in on low blood count days…’, and faced with my pay going down to half in July, I was feeling the pressure. I am now letting it go…
Today I feel I’ve turned a corner. With a combination of Lansoprazole, ranitidine, ondansatron and cyclizine I’ve finally stopped feeling so dreadfully sick, and managed to go out today for a short walk and some fresh air. Also ate more normal food today- toast, chicken, rice and managed to up my fluids without puking. I weighed myself- I have lost 6lbs this week. Now normally I’d be thrilled but under the circumstances… Quite worried that I’m not getting the nutrients I need to rebuild my white cells.
Apart from Debra no-one else seems to be on the same drug regime as me. Don’t know why- my tumor was oestrogen + but otherwise negative. I will be having Tamoxifen for 5 years after all this. Is anyone else having their radiotherapy in the middle? I’m doing 4 cycles of E then radio then 4 cycles of CMF? So I’m on this game until the end of October.
I catch up with you all every night before I go to bed and it’s really great to know we’re not alone. I don’t always post, but I think of you all – It’s strange to think we’re all strangers but linked so closely by this one thing happening to us.
Sending the sleep fairy to you all tonight 
Mel X
Hi Mel
Glad you have finally got some drugs to make you feel better and to eat/drink again, hope they get it right at the start of the next cycle.
I am due to have rads after chemo but don’t have a date to start yet…expecting it to be sometime in August but having read a few posts on this site I think there may be a longer break between chemo and rads than I’m planning! My work are not expecting me in until I’m at the end of my chemo/rads but not sure when I’ll stop getting paid…they haven’t discussed that yet but in my head I’ve accepted its going to happen and I’m trying to work out how to deal with it!
Everyone seems to know which hormone treatments they are having but I don’t still…my ONC didn’t have all the results as they had some concerns that I had 3 different types of cancer and therefore the cocktail of hormone drugs wouldn’t be sorted for a few weeks as they needed to do more testing and calculations to work out what was right for the mix…think I’m an oddity but hopefully they’ll sort it soon!
My wig definitely looks better than my normal hair - I’m a wash and go type person so the wig looking ‘done’ is an easy option that makes me look more presentable than I normally would!
Sleep well and hope tomorrow is a good day where you can eat/drink again
Kate
x
Evening Girls
Just posted again and disappeared ugh 2 lost now so short and sweet.
Loving the wig chat and new pics you all look gorgeous, I have 2 a straight one and a wavire one for nights out.
Been eating out all weekend so need to wind my neck in. Had a scare yesterday when a glass fell out of the cupboards and cut my affected arm. Luckily my son & daughter in law were with me, eventually got bleeding to stop but disturbed night obsessed with taking temp in case of infection. Really hit home how a relatively small incident has such a big impact on my life now.
Glad to say s/e are minimal now day 6 on Cycle 2
Nora - welcome, loving the name
Sending virtual hugs and minimal s/e to everyone again! xx
Hi Everyone,
Thanks Kate, will look into Headstrong.
Anyone in Central Scotland, I cant praise enough Luxe salon in Stirling, Cowane Steet, brilliant wig service, made it really easy to choose and loads of advice.
Thanks Mel and Amber, look after yourselves. If one anti sickness pill doesnt work, ask for another, they generally work best as preventers, so ‘keep taking the tablets’.
I’m upping the green veg, broccili, cabbage, also tomatoes, oily fish, omega 3 supplements, garlic, live yoghurt to counteract the anti-biotics. Dont know if these will help the white blood count, it’ll sure keep the burglars away!!
Best wishes to you all xx
Nora you made me laugh which is not an easy thing to do at 6.45am Monday morning!I like your list of things you are going to eat but not sure I’m with you on the broccoli - I dislike it enough not to eat it even if its good for me!
I hope your diet does help with the white blood count as well as keeping the burglars away! I’m sure burglar alarms work better than garlic and vegetables though!
Kate
x
Morning Ladies,
Just off for my pre chemo blood test. Have put two jumpers on in the hope that I get hot and my veins stick out for the vampires. Chemo tommorrow and Oncologist appointment. I am taking a list of questions with me. Was quiet weepy yesterday weather was awful and OH scared to go shopping just in case of meeting a coffer (he’s getting worse than me) and coming down from a high of getting on Street Triple (motorbike) as pillion.
Oh… gotta go. Going to try to get to the vampires before everyone else. Sandy xxxx.
Hi Nora, welcome, hope your coping ok, I am sure you will find alot of support here.
I am originally from Stirling so know where you are talking about. Should have been going up to Stirling next week but starting my 3rd cycle on Wed so meeting Mum in Edinburgh for a day out this week instead…its like half way for us both…is it too much to ask for a sunny day d’you think???
Lori x
Morning ladies,
I’ve just had my bloods taken by the District Nurse ready for my appointment with the onco tomorrow morning and, all being well, my second cycle of TCH. I am expecting the onco to do some tweaking to my regime to try to avoid another episode of neutropenia. Maybe the injection booster or maybe a reduction in the dose. We shall see.
Hugs to all, Linda xxx
Hope your blood levels were good PrimroseHill and Linda so you both get your cocktails as planned tomorrow!
How often does everyone see the Onc, I haven’t seen mine since first appt when he told me what was planned and don’t have another appt set up yet…am I really so bad at asking too many questions that he doesn’t want to see me?
kate
x
Hi Kate,
You are supposed to see your oncologist before each cycle so he can look at your latest blood results and dicuss your side effects. He should then prescribe the chemo drugs and any other required meds for your next cycle.
Linda xxx