Anyone else like me ?

Hi peeps

Not sleeping, and watching rubbish on tv (well it’s on) in the hope it will bore me into sleep.

Update on the other half … He txt me and asked if he could come home ? I replied with " you must be hungry or there’s something good on the tv you want to watch"… Anyways upshot is, he’s back here, and still no hug or talking about what is going on with me. I don’t really care, I have my son and my sister (who lives in Cyprus), they have been very supportive. My sister is coming over to be with me, which I am feeling guilty about, but at the same time, I really need her.

The thing that I can’t do is feel “the lump” in my breast, I just can’t bring myself to feel it, I feel sick and start to panic. I want to feel it, I only felt it the once, and strange thing was, when I was waiting to see the doc I was half wanting it still to be there!!! Mad or what… I didn’t want to be wasting there time or think I was imagining “it” … Did any of you have the same feelings of … Will I make things worse if I touch it?

Sorry if this seems a silly question, but it’s playing on my mind.

Hi sorry your having a tough time with oh at moe men are strange sometimes don’t know how to deal with things glad your sister is coming least you have got her have u just been dx maybe that is why u feel you can’t touch lump I didn’t have that prob so can’t really help just wanted to come on say hello tc Laura

Ohno, don’t worry about not wanting to touch the thing, if like me you felt “contaminated” by it why on earth WOULD you want to touch it?!

And probably better that you don’t fiddle with it incessantly too, as constant prodding, poking and trying to see if it’s mobile or not (not that I ever figured out what that was) could leave your poor boob feeling sore, which would just freak you out even more! It’s a bit like when you have a blister in your mouth you fiddle and fiddle until your whole mouth hurts.

As for your OH, he’s really doing the “head in the sand” thing to extremes, isn’t he? Is that how he always is? Is that how he expects YOU to be if HE has a massively worrying health problem (or even a bad cold)? My OH is very lovely, but I haven’t looked to him for verbally expressed emotional support with this because I know how he is with illnesses or physical problems. He’s not being inconsistent - he had open heart surgery just days before I started my chemo and really didn’t want to talk about HIS feelings around his own health issues - but I was there for him, and he’s been there for me. Just not to talk about stuff.

Cancer scares or not, is he being any different to how he normally is? Sometimes we do expect our partners to be quite out of character. Sometimes, of course, it is APPROPRIATE for them to be, but as I’ve mentioned before, men’s balls aren’t made of crystal, so often unless we tell them straight out what we want from them, they’re simply not going to have a clue what to do.

It might be that you need to say, “listen, Fred (if his name’s Fred, of course - don’t say that if he’s called something else or he might get confused), I need to talk to you about what’s going on.” Tell him the facts that you know - “I found a lump, and have an appointment to check it out” - and the way you’re feeling about it - “but I’m terrified, scared of the future, frightened that I’m going to die” - and what you want from him - “and I could really do with a hug right now, and to be able to talk to you about it so I can help to get my thoughts straight.” Also acknowledge how HE might be feeling about it - “I know this is probably a bit of a shock for you too, and that you might also be feeling the same fears, but I’d rather know you were scared too rather than thinking that you just don’t care.”

Get it out in the open and give him the chance to tell you how he’s feeling, if he’s that kind of person. You might get any number of different responses, from: “well if it is, it is, so don’t worry about it until they tell you it’s serious, there’s no point in worrying, now what’s for tea.” to “I didn’t realise (yeah, right!) you were in such a state about it, c’mere and let me give you a hug.” to “I didn’t know what to say to you, the whole idea terrified me and I had to get away for a while, it’s too much to think about” to “I’m just as scared as you are” or anything in between.

You know how your relationship is normally, so only you will have an idea what he would usually do. We can’t expect our partners to change all of a sudden. What we CAN do is decide, over the course of time, whether the normal reaction is what we want or need from them. And then we have to let them KNOW what we need, because they’re not mind readers. Of course you could still get the “well, tough!” attitude in response, but then you can look at that and deal with it.

Sorry, rambling again. My OH tends to use black humour (about his own health as well as mine, so I know he’s not being specifically mean) and sometimes I just say “I really don’t feel like laughing about it now”, but generally that’s his way of expressing his concerns rather than him just being mean, because I know he’s not.

Finally, THERE’S NO SUCH THING AS A SILLY QUESTION.

Hi Laura

Thanks for your support, it’s much appreciated.

I am waiting for an appointment to go to the breast clinic, I saw my doctor on … Gosh I can’t think… Thursday. She was a stand in for my lovely doctor, admittedly she was very good with me. What I didn’t like was her look of pity, I felt the black cloud of doom descend deeper inside me. Still, let’s wait and see, it may be nothing.

Hugs and thanks again x

Angie

Choccie you are sooooo right… Contaminated is how it feels ! Taken over, invaded, tainted… So many words but just feel b***** angry… Sorry for swearing

My OH is not the easiest person to live with at the best of times. It has been said (and I agree) that he is a narcissist. I don’t want to talk about him, so I’ll just leave it there.

Another thing is, I can’t face food, except for bad things like chocolate and White wine (only one glass last night) :slight_smile:

Thanks you lovely people, you really are a boost and an inspiration. Take care

Angie.

i am glad you are managing to come on here and tell us how bad you feel. As to the look of compassion on your doctors face I know just what you mean. My GP appointment was with a new young doctor. I think they must get ‘compassion 101’ at medical school. She put this look of concern on her face and held my hand and asked if i was alright. i could not be cross with her, but i could have done without it.

chocolate and wine?? sounds good to me, how on earth were you restrained enough to have just one glass? Hope it was a big one.

boring tv? I watched almost the entire back series of Location,Location,Location one after the other on my laptop.It did not send me to sleep but took me out of this world into another one where cancer did not exist.

Aww oldandlumpy…compassion school :slight_smile: Location location location, and chocolate and wine (only one).

You made me giggle… Thanks x

The reason for only one glass,… Well I had more than one the night before and just couldn’t face it last night ! I was naughty, but I don’t care :slight_smile:
Angie

Just one glass? Impressed at your self-control!

My GP’s advice at a stage just after yours. I was diagnosed early Dec 2010, had further tests on another suspicious area and was waiting for test results, when I bumped into my GP in the street on Christmas Eve. I mentioned my alcohol consumption had gone through the roof since diagnosis, and her prescription was: “drink up! As long as it’s a short-term prop to get you through the scary time when you don’t know what’s going on, it’s fine.” Just thought I’d pass that on.

Chocolate is DEFINITELY good for you - just listen to Professor Lupus when Harry has to face those dementors…

haha … well if its recommended to get you through … Had two glasses last night and fell asleep on the sofa !

Right that’s it… I have been given the green light … Wine for breakfast dinner and tea, with copious amounts of chocolate… No worries will do. :wink:

Best I go and stock up with the goodies, you ladies will have to hurry to the shops before I get there and clear the shelves !!!

I like your doc choccie, wonder if I could get it on prescription …

Thanks for the chuckles xxx

Hello Ohno,
Although i kept prodding and poking before dx once I knew it was definitely cancer (18th May) I haven’t been able to touch it since. Like you I feel contaminated. I can’t wait to have the offending article removed but am having my chemo first to shrink it so am stuck with it until at least November.xx

I’m with you Ohno! I’m having chemo before my surgery and can’t bear to touch my boob, or look at it. Hate showering. Really uncomfy in bed as usually lie on my front, but scared of squashing it and aware of it if I lie on it (although onc says it’s not a problem if you lie on it!). Want to have a little grope to see if it’s shrunk yet - but too scared to.

However, here’s hoping yours is nothing but a little mischeivious benign lump that’s appeared to give you a nasty scare and shake up your life a bit!

I couldn’t sleep during the “waiting” period either. And my BCN also said that a few glasses of wine would be good for me!!

x

Hi there, Ohno,
Not feeling like eating? Liking a glass of wine? Don’t want to touch the lump? What’s abnormal about any of those at this stage?
And chocolate is a vitamin really.
My family were convinced I was really ill, as never known normally to refuse food, but my throat just didn’t work-except for liquids!
Stupid TV and DVDs really help.
Glad your sister is coming
Have another hug
Lavender

I couldn’t eat while I was waiting to get results, though I drank lots of coffee. I went to see my doctor the day following my biopsy on an un-related matter. As soon as I mentioned my biopsy the doctors face dropped and he looked so sad. And there was I smiling and stating that well I am ok with having bc and that I will just get on with it. By the time I left the surgery the doctor had actually made me feel worse!(I know what you mean about the big cloud of doom). I have been still unable to locate my lumps ( I have three grade 1 tumours) I only realised I had a problem when I found a dimple. I don’t like to look at my breast or sleep on that side at the moment.

I,m in the same place as yourself, appts tomorrow, reaction a little different though the boobs i have not particularly liked for most of my adult life, i have suddenly fell in love with, they are mine, i love them and i dont want anyone to touch them! Weird!

I feel such a fake… Not knowing but feeling like I have to start planing!
What is going on in my head ?
I am pouring my feelings out to compleat strangers (lovely and supportive), I always have tears when I write and can’t put the right words down.

Just thank you all

Dear Ohno
sometimes its easier to pour out your feelings to total strangers…I have certainly found that.
Toast and red wine were the only things I could stomach while in the ‘waiting room’
Look after yourself
E x

Absolutely echo what Queenie said. And please don’t feel a fraud. Even if you end up walking out of The Waiting Room through the All Clear door, you will still have had the absolute agony of the wait, and we all know just how painful that waiting period is - I swear waiting is so much worse than actually having something to deal with, so you are no kind of a fake at all. Your anxiety and fear is very, very real. It might be unfounded (and fingers are crossed while I type), but it’s real and it hurts and we’re here to support you through the fears.

ohno dont cry its sun and the sun is out!im sure it will be fine and if u have to join us we will all be here to surport u big hug

hi,what your feeling is normal, your in strange place so your not going to feel like eating normally… if you fancy chocolate… get ya self a big bar… if its wine… make it a large one… i did not have a lump to feel, just a dodgy area, but i had a lump in the other breast prevously and i kept feeling… i think it was in the hope it had vanished… that wasent the case, all i did was make it ache, hope your going to be ok hunny, thinking of you xx angie