Hi ladies
I’m looking for advice from anyone who is in a similar situation with skin/ chest wall mets. I’m curently on carboplati which my last ct (4wks ago) showed is working well on superclav nodes. But since then my chest wall has become increasingly tight, uncomfortable + painful. I’m at the point now where the pain is waking me up every time I turn in bed. I can’t stop thinking about it. My skin mets were extensive across my recon+ round my back
as nothing showed on my ct scan, I was wondering what other ladies have to monitor their chest wall. Would a pet scan be effective? Or MRI? I’m seeing my bcn today so will push for some tests. My onc doesn’t seem interested in my chest wall- focussing on nodes + organs (they’re clear phew!).
Any advice or experiences would be welcomed
thanks
tina xx
Bump
hi tina i have skin mets(but confused as bcn called it local recurrence)just had 1st radiotherpy of 15 yesterday but my pink patches are developing into small bumps and i am aware of it being sore my chest too feels tight but scan 7 days ago said no spread just thickening of skin ,i hate seeing this and touching it to put aqueous on i am so sorry you have this worry,dont know what scans they could do for you,i really try to be positive but if your rads didnt clear yours then cant see how it will do mine so i will prob be asking same questions hope you get answers love rachel x
hi again tina, have you read the post on militex think on page 7,i was only pondering the other day why is there not a treatment for skin we could apply directly ?..sounds interesting x
Hi
I have skin mets across the site of my bilateral mastectomy and rising upwards towards my neck. It is horrible to see my body not only maimed by surgery but also scarred by skin mets - mine is a large red area that looks like a burn. My Oncologist monitors it mainly by looking at it and I have a CT every 12 wks. I am fed up with only wearing clothes with a crew or slash neck to cover the mets and am wondering how I am going to get through summer wearing only high neck tops, I was wondering whether it would be OK to put camoflage make-up on it? Can’t find the post on militex, what is it?
Linda
Hi ladies
finty thanks for bumping 
fairy- I have read the thread about milatex sounds interesting so will keep my eye on it. How’s things btw? You started treatment yet?
H linda thanks for replying. Skin mets are a nightmare aren’t they 
Watching cancer spread with our own eyes is a hellish experience. My skin mets wer across my recon then I had op which removed 22cm (!) of affected skin. Sadly within 3wks, another met appeared over the scarline. By the time I was healed enough to commence rads, they had spread round my side tiwards my back. Nightmare. The rads burnt me to a crisp but I have had no skin mets since (touches wood). But there is activity under the skin + big hard lumps down my scarline. Nothing showed on the ct-.I think skin mets are too superficial to present on scans. I’m having lots of discomfort- were as the chemo working elsewhere. Bzarre really.
I will find the millatex thread + bump 4u.
Love tina x
Miltex, brand owned by Baxter’s. They acquired this from Asta Medica, it is available Germany on prescription only.
Dear Linda,
Here is the link to the thread on Miltex, if you haven’t already found it;
breastcancercare.org.uk/forum/viewtopic.php?f=39&t=30723&p=524146#p524146
Very best wishes
Janet
BCC Facilitator
Hi Tina,
Is it possible that the pains could be from the rads you had to your skin mets? Just a thought, but a few months after mine
finished- around Christmas/New year time, I started getting awful tightness and pain under my arm and round the shoulder area where I’d had rads, as well as lots of lumpy scar tissue. Exercises since Jan. have helped a lot. Sorry if I’m barking up the wrong tree. Also, a friend of my mother’s had some sort of skin cancer on his head and was prescribed a chemo ointment of some type which has cleared them up- sorry I can’t be more specific - but I can ask him about it.
All the best, Sarahx
Hi Tina
Thanks very much for bumping up the Milatex thread for me, I will ask my Onc about it when I next see him.
How did you get on when you saw your bcn re pushing for more tests? Sorry to hear you are in so much discomfort but as you say, at least the chemo is working elsewhere. Hope there is something they can suggest for you.
Linda