Hi Anne, glad to hear your first chemo went ok for you I didnt have any probs with first either. I had my second one yesterday but it totally wiped me out, felt so tired last night and had a bit of nausea but that past, today i feel not too bad so hopefully will remain so for the rest of the day.
Regards Anne x
Hi Anne
Hope you keep alright today. Didnt get much sleep last night but I had no nausea or sicknes thank goodness. Have taken my 8am tablet think I will have to get a notebook for to write down the times I have to take the pills for the next three days.
On my way back to the hospital this morning for my injection for immune system so hope i am allright with that to.
The sun is shining here hopefully the same where you are.
have anice day.
Anne x
Really surprised you’re getting the injection as a matter of course Anne straight after first chemo - was your white count low to start with? Good luck with it and glad yesterday was ok fo you.
Hi to everyone else - sun shining in Lanarkshire, off to Paisley this afternoon to check out a second wig. Hope all well with everyone.
Lynn
Hi,
I’m just about to look for a second wig and I also stay in Lanarkshire. Would you recommend the Paisley shop over say, Judy Plum?
Thanks
Tiny
Hi Just popping in to say hi, hope your all keepin well!
We still have a few vacancies left for the holiday in Spain, if any of you ladies are interested, please feel free to mail me…
Love Teresa xxx
Hi Tinyperson,
Personally yes i would, i thought the customer service ie Sharon was great. Didn’t know there was another Lanarkshire person - good to know, let me know where you’re at in your treatment and we can compare notes
Lynn x.
Hi Lynvee and Tiny
Hi Lynn did you get your wig. I saw about mine in my own town of Galston East Ayrshire. There is a marvellous salon caled Francis where Amanda the ownwer is just wonderful. She is recommended by the local hospital and has dealt with loads of ladies in the surrounding area.
She holds a Pink Ball and Fashion Show for ladies once a year to raise money for BC and uses the ladies from the salon to model all the clothes, she says it gives them back their confidence. This year she raised £3600.
Just thought you would like to know as Galston is not really far from you both, and also there is a great coffee shop at The Balmoral Mill Shop
Anne x
Hi to all the new girls.
You are just starting the chemo road, but I’m sure you will be OK.
Can’t pretend it’s easy, but you will get through it.
Anne - the injection definitely helps with the bloods but can give you a bit of joint pain for a couple of days
Anne - think you’re right about keeping a note book for pills etc. I also used to keep a note of SE’s so that I was ready for them next time.
Weather has been great, and it is so good to be able to sit in sunshine (with lots of sunscreen).
Hope everyone else is OK
Sheila
Hi Sheila
Thanks for your reply. It is good to know that I am not alone in this rollercoaster ride which started 8 weeks ago.
I am doing okay so far with chemo but know it is early days, I wonder what is going to happen tomorrow when the different pills I have had to take for the last three days stop, although I have got another kind for nausea if I need them.
Spent a lovely day having lunch with two of my friends from work, it was great to talk about other issues and not just BC which as you know has tended to be all I have been able to talk about since diagnosed. I am very lucky I have wonderful family and friends to support me and also the ladies on the forum
Hope to speak to you soon
Anne xx
Hiya,
My journey has been a long and winding one. First diagnosed with mucoid breast cancer in 2001, I got the all-clear early 2006 after a lumpectomy and radiotherapy but was diagnosed with DCIS breast cancer at the end of the same year.
I had a mastectomy and reconstruction but unfortunately they didn’t manage to clear all the cancer cells and by late 2007 I was back in the system again. A CT scan showed that I had “shadows” in my lungs. I had 6 cycles of chemotherapy (3 FEC and 3 Taxotere) followed by a double mastectomy (3 diagnosis of breast cancer was more than enough as far as I was concerned). CT scans throughout the chemo showed no apparent difference in the shadows in the lungs so it was decided that they must just be scarring from a previous chest infection.
Unfortunately a routine CT scan at Christmas 2009 showed changes in the shadows in the lungs and also tumours in my liver and bones. I’m now on Xeloda (capiecitabine?) & 3 weekly doses of Herceptin for as long as they appear to be working. I’ve had 3 cycles of Herceptin/Xeloda so far but as yet no scans to see if they have made a difference.
I’m in Airdrie, which as far as I’m aware is in Lanarkshire, but nowhere near Galston.
I still haven’t decided where to go for my wig. Opinion on here seems to be that Masthairpiece is the best. I’m normally grey/silver and don’t really want to look obviously different so that might make choice a bit more limited.
Tiny
Hi there girls
Annie here. Tiny, you poor wee scone, what a bloody time you have had!
I finished rads in jan after a year of treatment (still Herceptrin though as I am HER2 +)
Hello to all you new guys! Sorry you had to join but I’m certain sure you will ride this storm. Like Shiela says, it’s not easy (but lots of it is, surprisingly - surgery was a piece of cake) but you will find the strenght to prevail. The staff of the NHS will do everything possible to make this experience bearable, believe me.
Hope everyone is thriving and glowing in this lovely spring weather. I’m trying to patch up my devastated garden after the cruel winter (lost all my plants). Still knackered but enjoying the change in weather.
Do take care all.
Annie xxxx
Hi Everyone,
Haven’t been on in quite a while, I’m finding now the rigours of getting back to normal are keeping me busy and I don’t get onto the site as often as I used to…
Welcome Tiny, you really have had an awful time with this and I hope that the medication they have you on now continues to improve your mets. I was diagnosed last Feb and finished herceptin in Nov…I am back working now, although still not up to speed but I’m improving every month…I went to Sharron (masthairpiece)for my second wig last Sept and because I am a hairdresser, Sharron offered me a job working with her in Paisley…(I’m in the shop on a Thursday)I have found having gone through all this process and experiencing hairloss and wigs a major reason for wanting to help provide a better wig service…Sharron has had 6 years working as a hairdresser in the Accord hospice and does the scarf tying sessions at the Maggies centre on a Monday afternoon…She and I both feel very passionate about the work we do, feeling good about ourselves when getting treatment really helps us to cope better… We also provide after treatment cutting, colouring and scalp and hair advice…Sharron also does a drop in service at the New Victoria hospital on a Thursday 10am-3pm, so you do not need an appointment… There are hundreds of wigs so don’t worry about getting it in Grey/silver, even if you like a certain style, we can order it in your colour…Hope this helps and look forward to meeting you if you decide to visit us…
Annie, Good to hear you’re getting out in the garden. I was lucky to have my Dad and Son take care of the necessaries last year but oh dear it is needing work done badly…How’s your cat doing? is he fully recovered now?
Sheila, the sun has been good…nice to get out in the fresh air, I’ve started riding a bike…here’s hoping it shifts some of my chemo weight!!! will you be getting a wee break from chemo soon?
Lynn, hope treatment is going ok for you? hope you managed to get a wig on Friday…
I hope everyone else is doing well…I’ve had a couple of days off work seeing as the kids are off and my baby becomes a teenager on Thursday…so god knows what I’ll be waking up to!!! if his brother is anything to go by…
Take care and keep well
Fiona xxxx
Hi Fee!
Aye, big cat seems to have adapted well, after a very iffy start. We still cannie imagine what could have happened, but vet thinks he caught in a fence and broke one bone and dislocated the joint too. But he’s the same big sappy, ill footed mog he was before.
Still on the long road to recovery. BUT … I became a great auntie this morning! Amy Ellen, 7lb 13oz. My darling wee Kerry (niece, just turned 20) is due any day now too. 2 wee new members of the family in this month. What fun.
Hope you are keeping well - not overworking - and that we can have a lunch soon. You seem to be the fulcrum of organisation of that!
Love and lollipops to you all!
Annie x
Hi - update
Kez had Lily Rose at home with mum in attendance a couple of hours ago! They are at hosp now. wow, 2 new babies into the family in hours. You wait for ages and 2 come at once …
Annie (happy) xxxx
Hi Annie
Congratulations to Kez on the same arrival of Lily Rose - was it a planned home birth? I hope they’re both doing well.
Hi to everyone that has joined us recently, I’m sure you’ll find everyone here a huge support, I know I have.
I had my 1st year mamogram today; really relieved that it didn’t actually hurt too much but I’m now abit apprehensive about the results; fingers crossed it’ll be OK.
I hope everyone is enjoying the sun, what a difference it makes.
I’ve just registered to do the race for life and would really appreciate any sponsors, however small. I don’t think I’m allowed to post the URL, but if you search for Helen you’ll see a picture of me and Seren, or I can pm you the link - Thanks.
Take care all.
Helxx
Hi Annie, congratulations on your new wee members of the family, glad to hear your cat is doing ok now too
Fiona, two teenage boys in the one house, its actually ok, just makes me feel old!!! hope he has a lovely birthday
hi to all the new girls and hope you are all doing good
Sharon, how are you doing, hope your new treatment is going well for you
hello to all the girlies
love
Carol x
hi Helen, we must have been posting at the same time, glad to hear your mammo wasnt as bad as you thought, mine should be May/June time
I will sponsor you, please pm me the link, cheers
Carol xxx
Hi girls - good to catch up with everyone again.
Been in hospital since Saturday. Had pain in left arm and very swollen. Connected to previous blood clot and probably a touch of phlebitis. On Heprin infusion for 3 days. They then decided portacath was not helping clot problem so they removed that yesterday. OK just now as I am on oral chemo, but when I go back on IV they will have to re insert another line.
I have a break of 6 weeks from Xeloda which is not as long as i thought I would get, but better than nothing.
Feel I need it as I have had a lot of problems over last few months.
Baby Murray doing well. He is putting on weight and feeding well.
Helen - would love to sponsor you - how do I go about it.
How is Sharon doing.
Sheila
Oh Shiela
You have been through the mill. Yet you still sound so hopeful and cheery. Fancy a meet soon, as I am nw more mobile.
I have musculat myopathy because of the bif hit of Dex. Glad it’s got a name! Nothing they can do except physio and hydrotherapy, just means the thigh muscles are very weak physiologically walking uphill is really hard. Flat surfaces are ok, as is downhill. Just another challenge girls.
Our new arrivals are georgeous, but wee Amy has a badly deformed ear (she doesn’t really have an ear) but is the prettiest baby imaginable with TONS of jet black hair. I havent been weel enough to go down to see wee Lily in Blackpool, but tons of piccies and she is shell like, so delicate! They really are the best things, babies! i love the smell of them!
How is everyone? And has anyone heard about Sharon? I kinda getting the hang of facebook but dont have any of your details!!
My big cat is WONDERFUL, really got to grips with the loss of his leg and is up to as much mischief as a big, lazy 3 legged cat can get up to.
Take care lassies, and pop in to let me know how you are all thriving!
Hugs
Annie xxx
Hi Annie great news about the new babies in the family and you are right about the smell off them, our wee Thomas is just so cute you just want to smother them wi love… Sorry to hear about your cat, such a shame but im sure he will adapt like they always do, pretty clever animals arent they! Ive got three cats (all house cats) running about, one is mine and two belong to my son and his girlfriend they are so cute…and they dont seem phased about the new baby being in the house, thought they would be jealous but not at all…Im feeling ok third fec next friday so gearing up for that then ive to see the oncologist about changing the plan to diff regime. Dont know what the lump is doing but i dont feel as if its reducing in size, think the only way they will know for sure if they do an ultrasound…
Hope everyone is well and enjoying the weekend
love to all
Anne x