Anyone had lymphoma following BC

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Hi Everyone

Not sure where to post this one but was wondering if anyone had any ideas what could be wrong with me or anyone experienced the same thingas Doctors don’t know!!

History: Dx May 06 ductal carcinoma 2, had AC chemo, WLE, Taxotere, radio and one year of herceptin. When due last herceptin had a mastectomy for local recurrence in March 08.

Pat 4 weeks had problems eating fatty foods as had colicky pain which lasted about 5 hours in the night. Ended up at A&E twice and sent away after pain subsided. Work for NHS and Consultant I work for said sounded like gallbladder. Went to GP, had ultrasound scan but too gassey so they arranged CT scan. THe findings were: Swollen head of pancreas pushing on portal vein, shunken inflammed gallbladder, abnormal shaped liver and enormous abdominal lymph nodes which were not on scan in March.

Been in hospital since last week and they don’t know whats going on, the radiologists say never seen a scan like it before and my surgeon is having a meeting with is colleagues on monday to discuss. He has said that one of my liver function tests is slightly high and another blood test is high indicating infection or lymphoma!! Problem is I am living of jam butties and mullerlight as there is no fat in them!

I have a CT scan arranged on Thurs next week and if they are still swollen they are going to take a sample.

I don’t understand why they haven’t given me antibiotics or something to see if it is an infection. My chest area is so sore as all my organs are swollen.

Anyone any ideas, feel really weird at the moment, its scary that the drs don’t know whats going on? HELP

Mandyx

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Hello Millie Lucas,

It must ne so frustatrating wondering what is your status.i hope that by now you have a bit more information as you posted 6 days ago.This year (Jan/fFeb08) i have another primary as it turned out but i know the feeling of going through more tests,this time more SCANS…Ct,MRI ultrasounds and Bonescan…the oncologist was puzzled whether my one was a secondary or another primary but as i mentioned earlier,it seems like another primary.After my lumpectomy and full node clearance, the scans were clear…CT and MRI.Bonescan is acceptable but will be monitored every 6mths.Thats ok.Now,halfway through my chemo (3mths out of 6) having it weekly…3weeks on then 1week break.

Sometimes, the doctors do get buffled and need other professional consultations like with my case.My oncologist asked for 2-3 days to give me an answer of how we were going ahead and she informed me of what she intends to do,ie:consult her colleagues…and she did.I even had infection on my hickman line so i ended up in hospital for observation and 1 week Intravenous antibiotics.It helped reduce the infection.

Just keep in touch/in contact with your medical team/oncologist and ask questions or show your concerns.I hope they get to the bottom of this soon.

If you like green tea as a drink, it helps a lot with reducing fat and this is an anti oxidant.If you find its a bit bitter, put a slice of lemon or even the juice.You can always try.

Hope for the best on your dilemma. I hope it wont take long for the outcome.

Good lick.

Veeluz