Hi all, first post…so be gentle!
From reading many posts on this site nearly all are on chemo for lung mets. I am currently on Capecitabine. Have had quite severe breathlessness since diagnosis and have read that rads may be given to help relieve breathlessness. Due to see onc on 17th Apriland will ask but wondered if anyone had any experiences.
Thanks all
Hello oneday
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June, moderator
Hi Oneday,
I also have multiple mets to both lungs primary and secondaries all dx at same time, I had chemo first then surgery (mastectomy) then rads which finished in January this year, I am currently waiting for a CT scan to see how well the treatment has been on my lungs, I think they did treat my lungs with rads, when I saw my Oncologist registrar she said they could treat the lungs and promised it would be done very gently, so I presume they did treat my lungs, the mets at the last CT Scan which was back in Oct last year were classed as stable and tiny, so if I find out anymore I will send you a private message, hoping to have the CT scan very soon, awaiting an appointment.
Have you asked your Onc (oncologist) about this? if not try your BCN breast care nurse.
Hope you get some answers soon.
Love and light
sarahlouise xx
hi im a sec lady so mine was not dx with prim but when i asked if i cld have radio on my lungs they sd no as it was to risky i also had already had radio with my prim so that might have been why i also think it depends on how many you have and where they are there is also cyberknife but you really have to go private for that as no nhs hos really fund it and them that do dont want to use it gd luck laura
Hi Oneday,
I was diagnosed with lung mets last November. I can also remember feeling breathless at times and between Christmas and the New Year I phoned my bc nurse to tell her. She asked me to see how I was in a few days and ring back if I was still getting the breathlessness but it seemed to ease off. I think now it was due to anxiety. I have had other symptoms of anxiety too which were worrying but as time as gone on these symptoms have eased a lot. I dont know if yours is due to anxiety but it may be. If you see your onc you could ask him if he thinks it could be. I am not on chemo at the moment by the way. I am just on Tamoxifen but I seem to be keeping stable on these so that is good. I also feel much calmer now and am back at work.
Hope everything goes well for you.
Take care. Sheila. x
One Day, I just finished rads to the lymph nodes in my chest. I have had lung mets for 6 1/2yrs. My lymph nodes enlarged and just about closed off my right brohncus. This caused my upper lobe of right lung to collapse some. I have been very short of breath and even got more short of breath waiting to get started with the rads. I just finished them today but they say it will take at least a month before anything will show up on a scan or even longer to see how it is working. So sitting tight playing the waiting game. Good luck to you! Gracie
Hi Funnyface Gracie,
Thanks for posting its very encouraging to receive some news from someone like yourself who has been living with lung mets for 6 1/2 years, so thank you for posting and keep us all informed how you are doing. I’m playing the waiting game at the moment waiting for a CT scan too see how well the rads went, I finished them in Jan this year my last CT was oct 2011, am I wrong for being impatient to get this CT scan done? I have asked everyone ie: the nurse who comes and gives me herceptin asked had I had my scan done yet also my GP, everyone is asking except for my onc.
Sending everyone on this thread love and light
sarahlouise xxx
Sarahlouise, I think I would ask my onc for a scan…my radiologist said a scan in 4 weeks from now.