Aw I’m just the same bubbling all over the place but yes it make made laugh too.
My youngest a right old grump yesterday. He couldn’t decide where he wanted to be or with who. There must be something in the air …hormones I think.
I’m sure everyone will be on best behaviour tomorrow. Here’s hoping for a Cyndi Lauper day ? Have fun xxxxxx
Glad you have more than one good day, although prob doesn’t feel like it at times!
Feeling resigned to it all now, there’s nothing I can do about it except go with what the experts say. That said I’m anxiously awaiting Friday.
Glad BCN sorted you out. Mine said she’d phone me today to check up on me post chemo, but I’m sure she’ll give me a good reality check anyway. She already tells me I’m her difficult patient! It’s good to be appreciated.
Hope you have a good day and keep smiling 
Not difficult more like special & so requires extra special care.
I broke a flipping tooth last night on popcorn of all things. So it’s a trip to the dentist for a dressing putting on it as don’t think will allowed dental treatment whilst on chemo.
Hope the rest my fragile body holds up for another few weeks.
Looks like the sun is out here. Enjoy today.
X
Sorry your both struggling it is a hard slog, I’m sure a week breathing space will help. and try not to be too disappointed with your cardio delay, its at times like this when we realise why we are called patients.
I’m off to the Haven on Thursday so that will be nice. Take care all xx
Your making me laugh Carmen.
Our BCNs are angels…always there for us. Sometimes I think mine must dread ringing me after chemo as I’m always a mess with a tale of woe. She always manages to make me feel better … Bless her x
The cake sounds gorgeous sooo nice to have taste & smell back. Im meeting a friend tomorrow for tea & cake…love cake.
I rang the hospital b4 seeing the dentist today and they advised me no invasive dental work without blood test as I’m in the ‘vulnerable to infection’ period. Yikes … Anyway my lovely dentist just patched up my broken tooth without any drilling thank goodness. Carnt have broken tooth spoiling my trip out for tea & cake lol …
Thanks for your support hopalong & hope you enjoy haven on Thursday. Are you having a treatment?
xx
Your so right Carmen, at times I have struggled to be a patient patient, mainly on a district nurse day. It also doesn’t help when plans change and it feels like we have no say. I am such a control freak.
I’m having my third shiatsu massage session hoping it will help with my back pain and surgical cording. Then off to collect my completed charm bracelet had 1 engraved with my first & last chemo dates.
Feeling emotionally stronger this week. I haven’t heard from my BCN since chemo 5.
I know what you mean about feeling like a nutcase. Have you caught any of the GP programs on channel 5 I feel that I really am quite normal when I turn up at my doctors appointment with my tale of woe.
Yes cake also features heavily in my recovery. Although I try to limit the craving.
Enjoy your day ladies xx
I know what you mean about feeling out of control. We have to totally trust those caring for us and I find that very hard sometimes. I cope by asking loads of questions but like you I like to be in control.
Hope the massage helped with your pain today and its good to hear that you are feeling emotionally stronger. Ive got my first appointment with The Haven (Leeds) next Tuesday and Im looking forward to talking this over with the women Im booked in with.
Im loving the idea of your charm bracelet. Wear it with pride hopalong you deserve a standing ovation for getting through chemotherapy.
How are you getting on with the tamoxifen?
Not seen the GP programmes on channel 4 but will look out for it.
Ive been out walking today in the sunshine with an old friend. Im feeling like Ive had a counselling session, carnt beat a good old natter with old close friends…
We also stopped off for tea and of course compulsory recovery cake. Im allowing myself a little more than usual as I eat so little following chemo sessions. Telling myself I deserve the treat especially as my taste/smell is on its way back.
Carmen hope youve had a nice day with your mum xx
Lots of Love xx
Fantastic!
Glad your looking forward & am sure all will be well tomorrow ?
Great you’ve been out walking today & the cake sounds gorgeous.
I made some pistachios & choc orange crumbles today … So had my recovery ration x
Good news Carmen & what would we do without our BCNs.
Enjoy the weekend xxx
Hello all
Had my first cycle of ec yesterday so not feeling great. I am trying the cold cap called paxman but have been told to expect hair loss, I will see how much then decide whether to carry on with it,takes so long,30 minutes before treatment,one hour for treatment then has to stay on for 2 hours after.
My cancer cannot be cured just controlled and have been having oral chemos over the past 4 years, one of which was capitabine which has the f element of FEC in it so that’s why I’m on ec.
Best wishes
Jan
I caught the eclipse through the clouds, did anyone else? I must have looked a sight stood on my doorstep.
Janice welcome but sorry you have had to join us.
Great news on cardiology front, Carmen you must be so relieved. You can carry on and enjoy your weekend with mum. I have rubbish veins so asked for a PICC. Had my 1st through a cannula as a trial but it was so painful. Things were much easier once the line went in.
I had my shiatsu treatment yesterday, came away with more exercises have already forgotten some of them. We are eventually going to get onto treating my cording next week.
I also collected my charm bracelet, and had a makeover in Debenham. Whoop Whoop I have eyebrow hairs that the girl managed to pencil. Went into lush and asked for a sample of roots but the assistant wouldn’t give me one as she said it was too soon to use it. I am using their New shampoo bar and can feel some regrowth but not see anything yet. Janice I used the pax man cold cap and have kept all of back but my hair has thinned at the side and front. Have a bald patch approx 5x4 on Crown where the capddidn’t contact.
Hi Everyone,
Welcome Janice & sorry you’ve had join us.
I also tried the scalp cooling for first 2 cycles. It prolonged the loss form me but lost so much by 3rd cycle decided to give in & shave.
Some on here have had success with paxman tho so good luck and wish you well with the EC
My next EC will be the 6th & final one planned for next Thursday.
Hopalong sounds like you’ve been having a mbira of well deserved pampering & good for you!
Love lush but think they mean not giving you as sample of roots for when you are ready.
Which shampoo bar are u using?
Lots of Love xx
Hello again
I was actually first diagnosed in 1986 and after lumpectamy and rads it didn’t rear its ugly head again for 20 years. Then after a stressfull year with my daughter having hogkins lymphoma it came back in 2005,my treatment then was mastectomy with immediate reconstruction followed by hormone therapy, still no chemo.
It was in 2009 after I had cause to be concerned about a lump under my arm, took months and months to be taken seriously even with my track record that eventually a couple of swollen lymph nodes were removed and proved to be cancerous.
Its from there that I was told it couldn’t be cured and hence so many chemos.
I am having 6 cycles or that’s the plan,but we all know they don’t always work,I will let you know about the cold cap if I carry on with it.
Take care
Jan
Carmen, lush isn’t my first port of call, and like you the smell just walking past made me feel sick.
If your having a spending spree, one thing I have found useful is the toning spray it comes in 3 different smells. I spray it on my face/back of my neck when having a hot flush the small 1 is handbag size.
Good luck for tomorrow
Not to scare anyone but I am also a repeat passenger on the roller coaster. Just surgery 1st time for DCIS
Has a lovely time with my friends it was very sedate with only 1 glass of wine passing my lips but boy did it taste nice.
Anyone had problems with the steroids we have to take for 3 days, had my chemo Thursday, awake all night Friday,had terrible weekend. Why do we have to take them? Going to ask.
Thanks waiting,yes it does help. Take them after breakfast and after lunch so not too late maybe better luck next time.
Take care all.
Jan.
Storminareacup welcome this thread is quite random so it may be useful for you to join/read a monthly chemo thread. I was about a week I think between oncologist and starting. I had my surgery first and it was exactly 28 days between op and first chemo.
I would agree re emotions I too think you just plow on through and when it’s over you tend to react to the events. I still haven’t heard from my BCN since mid cycle 5 and am now week 5 post last chemo so am guessing that’s my contact over. Next oncologist review is June so really do feel that my crutch has been yanked away.
Carmen luckily my effects remained the same, and were nausea (Emmend is amazing) didn’t stop my nausea but I wasn’t sick thankfully. Constipation Sore throat and dry mouth. I found the dry mouth the most distressing and found it went when chemo stopped but is now back with a vengeance with the tamoxifen. I’m using biotene which helps somewhat.
I managed to get a sample pot of Roots today so will be applying tonight and having a soak to ease my back and shoulders. I feel as though I have been pulled in every direction after my shiatsu session this morning.
Take care all x
I know your right but needs to be done.
Got plans for next week as hubby having having some time off work.
Yes the wind thing making me laugh. Our poor tummy a just struggling to digest & bubbling up. Oh dear … Making me chuckle xxxx
Hi Carmen,
Sure has helped to feel more like my old self.
And what would we do without this site. I agree it’s reassuring to chat with women who’ve been through the same.
Always here to listen/chat … Will be my turn next week.
Good you starting to pick up a little. Must be a good sign if cake on your mind ? alwAys on mine of late ? but like you I cannot face much food at all for first 2 weeks after chemo.
Will be good to have hubby & kids around over Easter. Must plan some fun times to keep your mind off the treatment.
Hope you start to feel back to your old self soon so u can enjoy next week with your family.
Hope the weather proves. It’s like winter again here.
Xxx
Hi all, those first 7 days of yuckyness are the worst but you will all get there.
I went out with a friend for lunch and indulged in a slice of lemon cake but the bus train walk to get there and then the same in reverse has taken its toll and am now in pain from my hips and knees and my body feels asthough I’ve been through a mangle.
Have really struggled with fatigue over last 2 weeks.
Hope we all have a good easter. Xx