Anyone just having EC?

Hi Hopalong,
Glad your aches better today. Maybe just over did it the other day as you thought.
Thanks for telling me about the hair situation. Mine has pretty much gone on head, brows, 50% lashes & other bits but still shaving legs.
Anyway I won’t be expecting any major regrowth for a while.
Is the taste thing also another de of tax? Omg that’s just not fair. Hope comes back before Wednesday as sounds like your mum spoiling you …lovely.

Carmen , lush blue sky’s bath melt is just lively, turns the water blue with lots of pure white bubbles & the perfume is Devine
Like the sound of lemon body butter, my sis a rep for body shop so will ask her for some.
Love products especially just now.

Your Easter feast sounds just lovely. Think hubby will be cooking here as I can feel the chemo mist descending once a again …

Hay hum … Last time.

Xxxxx

Hi Girls

Hopalong hope you get some relief from the awful dry mouth with & your cold better too.

Carmen, I’m sure my 13 year old secretly sleep in a grow bag. Every time I look at him he seems to have grown & img sleeps for England. Guess our boys metomorphin into men. He had to shave top lip last week eeeek closely supervised by his dad eeek.

I haven’t moved all day feeling rubbish but I know will pass. Soooo tired ? xxxx

Hi Everyone,

Hopalong … Great you enjoyed the Christmas dinner but how awful you couldn’t hang on to it. I do know what you mean about only being able to manage small meals as I’m the same.
I’ve had digestion issues throughout chemo & lost over a stone. First 2 was after treatment have struggled to eat due to sore mouth, dead taste buds, bad smell & nausea. Then third week acid reflux & indigestion. I have to say eating is not a pleasure just now but hoping things return to normal now that chemo finished.
My diet pre chemo was very good but it’s gone to hell of late. I’ve arranged to see nutritionist at Haven to get me back on track & will post any pearls of wisdom she gives me.

Carmen … Hope you’ve had a good week and good luck on Monday. Will it be number 4?
Happy Anniversary, hope your doing something nice.

I’m still feeling bit rough as day 8 but no anti sickness tabs today. Just so tired & s l o w.
Sure will pick up next week.

Have good weekend everyone. Xxx

Hay Hopalong,

I also chose the winning horse for the same reason & put a bet on! I’ve never won a thing before so like you I’m seeing it as a good omen.
I have a soft covering of hair all over my head now so looking like it’s starting to grow back. Hubby actually pointed it out to me today.
I shaved after 2nd cycle & have been able to wash my head every day.

Sorry to hear yours still shedding Hopalong. Your stronger than me as I couldn’t deal with it falling out all over the place.

Re the reflux/indigestion I take landsoprazole but it gives the runs.
First 2 weeks anti sickness tabs cause constipation then 3 week I’m the other way.

I hate having to take all the mega to deal with the side effects. My poor body is exhaused with all the toxins.

My goodness I’m glad this is the last time.

X

X

Ment to say hate having to take all the meds not mega lol

Awwww sounds like you’ve had a lovely day Carmen. Fantastic it fell the right side of your treatment. I had fogotten about Krispy Kreme doughnuts omg I’m looking forward to getting reaquaunted.

I really don’t remember getting a banned list or maybe I ignored at struggled to eat at all lol

Sweet Dreams everyone ?
X

Just read your January post. It must be so frustrating but better to be safe than sorry as the saying goes.
My oncologist warned me about heart risk and epirubicin.
1/2 way through he listened to my chest & heart and said your quite tachycardic but it’s probably me. Didn’t even ask the nurses to do an ECG at next chemo. Even now it sometimes feels fast.
I won’t throw you out of the EC only club.

went for my 1st acupuncture session so watch this space.
hope everyone is doing ok xC

Hi Caroline can’t say am feeling any dramatic difference since yesterday. Had a disco sleep this afternoon, and several hot moments.
They did say could take 6 sessions

Hi Carmen,
I’m firmly on the road to recovery. In fact I drove today for first time in ages. Bought flowers, makeup and a jacket. Just been out for a wAlk so yep much better thanks.
Tiredness still lurking though but think this is normal.
I’m seeing onc next week for post chemo check. Will be interesting to see what that involves. Also going to Haven Tues to see nutritionist then Thursday for hypnotherapy. Also going to squeeze in a relaxation session & drag my sister along.

Hope I don’t fall asleep anywhere … Lol ?

Think sunshine must be way down south as been quite cold here for last couple of days.
Hope it’s sunny where you are and your making this of this week.

Hope you get to the Looking Good session soon.
Oh and did you hear anything about the job you applied for?

Lots of Love everyone x

Awwe … Sorry you didn’t get an interview but probably for the best Carmen as you will need time to recover when your treatment finished.
The pressure of a new job might have been too much. Something will come along when the time is right.

I’m starting to think about returning to work. My latest sick note expires on 10th May so hoping I’m recovered enough by then but no pressure.
Yikes, I’ve been off since diagnosed mid Oct.

Going for afternoon tea tomorrow with an old friend.
Have a nice Friday xx

Hi Evetyone,

Oh Carmen I know what you mean about knowing what to expect with EC but Im sure the new treatment cannot be any worse than your experience with FEC.
Hope it goes ok tomorrow & I will be thinking if you.

I’m seeing onc on wed for post chemo check & to discuss nxt treatment which will be hormones for 5 year. Not sure which or what joy that will bring but need to do all we can to keep this disease away.

Great you’ve got your mum to help out need all the support we can get.

I envy you not working. My working hours have kind of crept up as our boys have got older. Although I still work just 4 days but BC has made me re evaluate things & could eAsily jack it in.

Choc cake sounds yummy! I made blueberry muffins. Finally tried bit of my Eastet egg yesterday but gunna try another time as STILL Carnt taste it! Aghhhh!!!

Hope everyone else doing ok.
Love to all xx

Good luck for tomorrow Carmen,
I’ve had a busy week and my only day of not doing anything was today. I bought new heavy duty gardening gloves (to protect from the lymphoedema) and some shiny new securtares to start tackling my garden, but instead I have spent the day sleeping. Hey Ho I’ll get round to it soon.
I’ve got another busy week ahead starting with another session of acupuncture. I didn’t think it had made a difference but since Friday i would say my sweats have reduced in number so there may be something in it. Shame it hasn’t boosted my energy levels.
My chocolate taste buds have returned and my taste for the sweet stuff is much worse than before. I’m blaming the tamoxifen it seems to be having the effects that the steroids never did.
Good luck for Wednesday waiting and your hormone discussion
Take care all

Glad it went ok Carmen. You definitely deserve a slice of chocolate cake. You can’t beat a cancer perk I’d say get some nice things done whenever you can. Have you done the look good feel better yet I can’t remember?
I got the your the youngest person I’ve spoken to with breast cancer, today from a lady at the Haven. I didn’t really know what to say so I just smiled. I’ll be 42 next week too.
Take it easy, I have heard that the effects don’t kick in till day 3/4 so make the most of it xC

My unit were good, there were quite a few BC ladies, they tended to put us all in the same room, quite a few young uns! !! And as I was cold capping I got to chat with most of them because I was there longer.
There is a family meal on Thursday and then
I’m going to my friends ball on Saturday and then out with my parents on my birthday but it was going to be all day but I have another acupuncture treatment so will just do something in the afternoon.
I enjoyed my lgfb and went between cycle 3 & 4 which was the right time for me it just gave me a boost.
My leg hairs appear to be returning will have to shave before I get tan tastic for the ball, and I do believe I can see some eyebrows so will ask the beautician to shape them if she can.
Are you in the Facebook group if not and you want to then pm me and I’ll message you back with the details. xC

Hi Everyone,

Carmen … Sorry to hear your suffering again. Relax or wander as much as you need to get through this.
How many have you till your done?

Hopalong … Happy Birthday! Sounds like you’ve had a fab time.
Hope you get some relief from the se soon. My onc told me that it takes a few months to settle. Let us know if changing brands makes any difference.
How you getting on with acupuncture?

I’ve had a busy couple of weeks, appointments, yet another prosthetic fitting as really struggling to find the right one & been to the Haven a few times. Hypnotherapy helping with sleep & feeling more relaxed about everything. It’s been good to chat to women going through the same stuff too.

Started taking anastrozole on Saturday & was chatting to a women at Haven taking the same & she told me to look forward to joint pain & mild flushes … With this i think i can cope.

Did anyone see the c word last night? It made me cry especially when her hair fell out & when she in the bath. Very close to home for me.

Lots of love xx

Hi Everyone,

Good luck today Carmen & hope goes according to plan. Hope no 5 is kind to you. Just one more to go… Whoop! ?

Hopalong it’s good to hear you sounding so positive & to know you are almost out the other side.

I’m feeling a bit disappointed that a don’t feel better as my last sick note finished yesterday & was hoping to feel well enough to consider a phased return. Had to accept that I’m just not well enough to go back to work just yet so got another sick note till 11th June.
Feeling exhausted a lot of the time. Having bloods checked out & will get results today. Hoping my iron reserves are low as can do something about that.

I keep turning down social gatherings invites as just don’t feel upto talking about BC. I am seeing my closes friends. I’m just finding it hard to step beyond my family & closest friends circle. I suppose if just takes time for the confidence to come back.
Funny how before BC we just take these things for granted.

I’ve got check up appmt with surgeon tomorrow & Haven on Thursday for aromotherapy session.

Have good week everyone & love to all.
X

Evening all, nice day where I am too. I was naughty today and had a big Mac and fries in the park followed by a coffee and scone.
I then went to beauticians and had my acrylics removed my own nails have grown quite well and look ok. Had some shellac put on to try and keep them that way. The hospice nurse will be jealous next week when she sees them.
The beautician found enough eyebrows to tint too so that’s one less job.
Have I mentioned I’ve started nordic walking the council have 3 groups during the week but had to give it a miss this week as my hips were quite sore. I’m also hoping to have my first pool trip next week, am planning to use a costume I’ve already got as my been a boob will fit into the modesty pocket. Waiting Asda do a swimsuit for less than £10 to fit a prosthetic.
Hope you feel less aches tomorrow Carmen and you can make it from the sofa to a deckchair if the weather remains good.
Had a rough night last night feeling sick following my meal over 4hrs of feeling nauseous. I wasn’t a happy bunny.
Have a good weekend

Your hands sound bad Carmen, glad they are feeling a little easier this evening and you are managing to type.
I love my local hospice I find it a support going there. I was incredibly lucky as they continued my treatments on throughout chemo only normally have 6 sessions. It’s a drop in service and a very upbeat place with lots of laughter.
Enjoy your trips out later this week. X

P’s
I know you want to through everything at this but think you may have to admit defeat and have a reduced dose for last time

Waiting I wish my tiredness would pass.
My oncologist said I would need 3 months off work which took me to June. There is no way I could go back at the moment. Was discussing it today at the hospice and even one of the other patients said your not ready to go back.
I have done nothing much today but again have struggled to stay awake. Don’t know what’s best fight it or give in.
Busyish day tomorrow meeting someone who had chemo with me for coffee then Nordic Walking before meeting a friend and going to cinema then for a meal. It will be an expensive afternoon nap.
Night night x