Good morning,
I have secondary breast cancer diagnosis 11 months ago de nova, with spread to my chest wall and lymph nodes in my axilla and lungs. There was no bone or organ involvement but as it passed the breast membrane I was classed as stage 4.
I am starting to question my diagnosis and would love to hear if anyone else has the same diagnosis as me
Hope you are all as well as you can be x
I’m so sorry to hear about your diagnosis @irishbabe79 and I hope someone here is able to share their experience with you.
There was some discussion on this thread of de novo diagnoses on this thread that you may find helpful: De novo - stories and suggestions please? - Living with secondary breast cancer / Supporting each other and sharing experiences - Breast Cancer Now forum.
Have you spoken to one of our specialist nurses before? They’re here to support you with clinical questions or for a chat. You can get in touch with them here on the forum on the Ask our Nurses your questions board or on our helpline 0808 800 6000 which is open Monday to Friday 9am-4pm and 9am-1pm Saturday.
We’re thinking of you,
Lucy
Hi! 1 year ago I was diagnosed as a stage 4 patient. I had breast cancer in 2018 and in 2024 it returned to my cervical lymph nodes…thanks God, for the moment theres not organ involvment.
Hello, I wonder if it is worth getting a second opinion? I think they might call you Oligometastatic. There is a Facebook group that you might find useful call SBC Oligometastatic. I’m sorry I don’t have personal experience on this one.
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Hi there,
I just noticed your post as one of the administrators flagged it for me. I am also Denovo. Diagnosed 8 months ago. And also, Irish!
Can I ask what do you mean by questioning your diagnosis? Is it that you are questioning the course of treatment?
C
Hey
So sorry for the delay in responding. I was on holiday and then brain fog.
I was questioning why I went straight to stage 4 when it was still relatively localised and not in bones or organs but I have spoken with my oncologist and I think I now understand. I don’t like it but I get why.
DeNova is hard as it feels like we are not given a chance to get a cure. My cancer was diagnosed due to pain but I had no lumps so it really was a massive shock as I was only 44 when diagnosed. I am just over a year in treatment
Where are you in Ireland. I am from Limerick but have lived in the UK for 27 years now.
Hi there,
I live in Dublin, but originally from Claire.
Yes, I know what you mean about not having a cure. I am shortly going to begin on cdk 4/6 inhibitors and the idea that it will be for the rest of my life is daunting.
I am Oligometastic with two bone tumours. One on my spine and one on my sternum.
Glad you have things clearer in your head now. Any questions just rattle around till they are answered. I am optimistic. As awful as this is there are a lot of treatments for us.
C