I’m about to switch from Capecitabine to Faslodex following progression of my bone mets and was wondering how others had coped with it and what were the likely side effects. My oncologist tells me it is well tolerated but was a little vague with any other information!
Regards
augusta19
Hi Augusta,
Try this thread
There are others for Faslodex / fulvestrant on these forums, including one for Faslodex and denosumab (I’ve had Faslodex but not denosumab).
I hope you do well on this treatment and that you find the “bottom effects” manageable (lol). It doesn’t work for everyone but I did hear of someone who was on Faslodex for 5 years!
… on this thread
I was on faslodex and found it very easy to tolerate, bit sore having injections but other than that no problems. I was on it for about 14 months then unfortunately it stopped working.
Best wishes
Jan
Iv recently started this, and the only things iv noticed are a sore bottom for a few days and my wee smells funny the day I have it. I’m hoping it works
I’m due to start this on May 12th after exemestane/everolimus stopped working and I had spinal decompression surgery. Will be interesting to compare notes…
Liz
First dose done! All went ok apart from having to wait for the drug to come from pharmacy for over an hour. I put emla cream in the area but was a bit out of line with it so will know better next time. At least with me having numbness and tingling from spinal cord compression may have helped with the lack of pain! Nurses were brill as ever and administered it slowly then I had denosumab. Feeling ok so far.
Liz
I have been on Faslodex since September for breast cancer secondaries in my mediastine and pleura. Apart from an ache at the injection sites for around 48hrs and a weird taste in my mouth and strange smelling urine (!) it’s been brilliant! Tumours etc are stable and tumour marker ca 15-3 also good at 30. Prior to this I tried arimidex anastrozole and exemestane without success. Good luck!
Hi deweygirl
Welcome to the BCC forums, along with the shared support here you may find the BCC secondary support and information helpful, here’s this link:
breastcancercare.org.uk/secondaries
Take care
Lucy BCC
Has anyone been on faslodex after exemestane/everolimus has stopped working? We was effective for my partner for 14 months but came back with a bang showing progression in bone and new Mets in liver. She is er and per pos.
Sorry misprint - should say e/e was effective for 14 months but Mets came back in liver and bones. Faslodex now been suggested but with short term scans - probably at 2 months. Any experience of this type of route would be welcome.
ThX everyone for your replies, sorry I haven’t made it on here for a while. My Faslodex is part of a clinical trial along with another drug (FAKtion Trial) and I’ve been so busy with hospital visits. I’ve had my first 2 sets of injections and so far so good. Yes, I’ve had the sore bottom but will definitely try the massaging. Hope you all keep well and the treatments keep working 
Hi ,
Can I jump in on this thread, I have had 3 lots on iinjections , brilliant no side effects and injections are a doddle. I am having this for axilla and bone mets , was on aromasin for 5 years , but then got nerve pain in arm , and here I am.
I have also started on the trial arm taking AZD5363 tabs , dont think its for me had two weeks of terrible side effects , so stuck in house , felt very well before , but not now. Will talk to Doc nect week but think its far to strong for me.
Hope the injections keep on working , very scary place to be.Please let me know if anyone on the Trial arm .
keep well xx