Hi, I am going to be taking Femera in End of Dec/Beg of January - anyone taking it? Feel worried about more weight gain! Would love to compare/find out anyone else who is going to be taking it at that time. Karen xx
Hi Biggles
I was originally on Tam but changed to Femera when i was dx with mets in March this year.
My sweasts have been a bit worse but i have also had my ovaries removed so it’s hard to know what is caused by what. I haven’t put on any weight but I have had stifness and soreness in my joints particularly 1st thing in the morning. Any questions just ask.
Take care
Lesley x
Hi Karen
I started Femara just over 3 weeks ago. I was already getting menopausal-type symptoms after stopping HRT when diagnosed - too warm at night, keep waking up, rubbish memory, tingling legs. I can’t say they have got any worse with the tablets. I had a few wrist twinges after the first few days, but they didn’t last long. I can’t say I have put on weight but it is early days.
Have you had a bone density scan? I had already had one because I was considering stopping HRT before dx and it showed my bones were normal for my age, but I still asked to be given calcium as my Mum had osteoporosis.
Let us know how you get on.
Ann x
Hi
I have been on Femara 6 months now. Initially the night sweats were a problem, but Evening Primrose oil daily sorted that problem out.
I also had joint problems in my legs and ankles, glucosomine and cod liver oil dealt with that problem. The only ongoing problem that I have leart to live with-my hands are very stiff when I wake up and the fingers have a sort of clicking jumping problem.Within an hour or so, once I am up and about and moving that mainly sorts itself out. The EPO, Glucosominem and cod liver oil are all taken with the knowledge and approval of my oncologist.
Good Luck
Andie
Karen
I have also been taking Evening Primrose Oil and Cod Liver Oil and the occasional stint of Glucosamine Sulphate for years and so maybe this is why my symptoms are, so far, under control. I asked my oncologist if it was ok to continue and she said it was.
Ann x
Hi Karen, I have only been on Femara for a week and have not noticed any side effects at all. I also started my Bondronate recently and that has been fine too. Will let you know if any problems arise. But everyone is different. So hope it is as easy for you as it has been for me so far. Love Val
I have been taking Fermara for about 4 months and so far the side effects are minimal, a few hot sweats, I find I drink a lot of cold water, a few aches and pains, I am also taking Glucosamine and that helps, must try evening primrose for the hot flushes. I haven’t put any weight on.
I think my hair has thinned but no one else thinks it has so maybe its my imagination because I know it can be one of the side effects.
In general if it doesn’t get any worse I can’t grumble, but no doubt I will.
Good luck.
Jan
Ive been taking femera for more than two years and have gone through most of the usual side effects,but they are little or of no problem now,Im sure evening primrose and joint suppliments helped, have had a year in remission, good luck to everyone keep popping the pills! lv ozzie
Wondering if anyone is having problems getting their monthly supply of Femara again. There was a thread here about it a few months back but cant find it. There was a problem with the manufacturer and thought it had been solved, but my mum is having problems again getting Femara. Boots the chemist said it is a problem with the manufacturer(again), boots phoned them up while we were in the chemist and manufacturers promised to post some first class. This was a few days ago and boots still havent received them. Mum still has a few days supply left but Im not hopeful she will get the next lot before they run out.
Wish she was on tamoxifen, same as me. Never any problems getting them so far.
Anyway, onto side effects with Femara. Only thing mum has complained about is hot flushes and tiredness. Seems to occur less now compare to when she first started taking them a year ago. But the tablets shrunk her two grade 3 tumours down to practically invisible, so she’s prepared to put up with the side effects.
The pharmacy I use set up a direct account with the manufacturer and said they can get them in a couple of days, by courier. Mind you, I haven’t asked recently whether there is a problem.
Ann x
Hmmm as I thought, no one else seems to be having problems anymore.
Will have to ask the chemist to set up a direct account with the manufacturer for her and see if that helps her.
I feel they are messing my mum about which none of us need with this disease.