I hate the tiredness,hot flushes make me very tired,sometimes it feels so extreme,like knock out,can’t sleep most of the times,I went on from 150mg to 50mg,had a short gap where I was off it and then recently started back on 50mg,boob area and armpit(operation side hurts,had skin issues for months(radiotherapy ended in October)chest been hurting last few days,was hoping is passes,has anyone been through something similar?
Will be joining you on both very soon. Sorry it’s hard going so far-can’t say I’m in a rush to start x
I understand lovey,its tough,how are you doing?
@borahae I’m doing ok. Strong of mind if not of body right now! Will get radiotherapy out the way 3 weeks today & then truly can start to adjust & see what this combo does to me & what that means for day to day to life after this.
I hope your team are trying to help you with the physical discomfort? It’s draining anyway to live with pain let alone everything else we have to think about. Sending a big hug x
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I hope you are doing well today,yes,it’s physically and mentally draining for us,when we think what’s to come,I do hope your radiotherapy goes smoothly and no major issues(side effects)I am still suffering skin issues and finished mine in October,thank you for your kind words,we are all here to support each other,I have been told its muscle pain and to take painkillers,still not feeling 100%,my gosh the fatigue is on another level,all we can do is try hard to do well and be kind to ourselves,I hope you’re having a nice day,on this sunny day and hugs to you too lovey.
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@borahae On day 2 of radio I passed out on the sofa this afternoon?! My mastectomy scar is aiready feeling tight despite much moisture since yesterday?! I can see this is going to be a long 15 days!
My sister popped in today & I decided to read some of the side effects of these two tablets to her just to see her reaction-needless to say she couldn’t believe I was being serious. Especially fatigue but also here have some insomnia! Saying it out loud to another person did make me think well I know I want to take them but crikey that’s a long list. Anyway we then went for walk round the village so at least enjoyed a little exercise & fresh air today.
Hopefully the sunshine the next few days will raise spirits for us all-it’s been a long dark winter for sure! Xx
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How are you doing today? I hope your mastectomy scar is less tight and you’re not in discomfort, yes,thr fatigue, it comes in waves,the hot flushes,what’s sleep,that’s nice you went for a walk. I hope you’ve had a nice day so far and enjoying your evening, I feel tired, I bought night gummies to try,it was the thought that counts with them ha,oh my gosh,all the side effects to our meds,no comment lols,yet we take it,lets hang in there and keep going,1 step at a time.
@borahae Did you try the gummies? Any help? I had one overly zealous & very dismissive onc during chemo who was enthusiastic about prescribing me a strong sleeping pill. I didn’t take it. Yet more side effects was all I could think!
I’m giving in to the need for afternoon naps telling myself if it’s on the sofa it’s fine! Had a couple of days of slightly fewer hot flashes but they’re back again!
Absolutely we have to do one day at a time. How many months into the let/abe combo are you now?
I’m trying to tell myself if I can at least do the 2 years of abemaclib (with letrozole) that will be a huge achievement that will help protect me. Let’s see but definitely feel like my body has had enough at this point.
Hope you have had a nice weekend x
Hi I have been on Both but now finished the abemaciclib. Yes it sitring and i found the only way through was to navigate when things would happen, so kept a record for a couple of weeks. I’’m also on a Mediteranean diet and dairy intolerant, so only use soya milk. I took my antihistamines upon rising, then abemaciclib after breakfast and letrozole mid morning, and 2nd abemaciclib 1 hour before going to bed usuall just after evening meal. This ensured i needed to be near a toilet before i left for work, or just around 3pm in the afternoon. my main meal generally at tea, ie lite meal for lunch.
I was advised - by former patients- always to have an emergency bag with me which contained change of underwear, extra pads, both the loperamide and the anti nauseous tablet - not that i needed that. But the key if you are out and about is the key fob which simply asks of shops [or takes you to the front of the queue at work] may you use their toilet as a cancer patient in urgent need of the loo. You can get these through your macmillan unit. Best to learn what is best for you, your rhythms. But the key yes I was very tired towards the end of the day so didn’t push extra activities after 2 pm. Even now i have virtually no energy after 2pm. However having restarted doing my self heal - Reiki healing, this is improving. Speak to your macmillan support person regarding getting some free either reiki sessions, relfexology or massages, they too may help. Let me know how you get on. Love and light Moonsox xx.
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