Hi has 1st treatment last Friday been very ill and admitted to Christies. Info would be useful
Hi has 1st treatment last Friday been very ill and admitted to Christies. Info would be useful
Hi, I had Doxorubicin alone, I think it’s part of this combo? I found it ok. But posting to say I’m so sorry to read you’re in hospital and I hope you are home again very soon. x
Well after my first dose of myocet/cyclophos and a week in hospital followed by 3 weeks recovery at home. I am glad to say that I am starting to feel human again.
My bloods have improved, after being very neutropenic and my GGT one of the liver functions has dropped from 800 to 500. Still high I know but a big improvement.
After meeting with ONC we had to decide whether to continue on this combo on a reduced dose, due to my reaction to the first one. ONC says we are running out of options! I asked how long without any treatment and he gave me 6 months. I am not ready to give up the fight yet. If anyone can give me any ideas re further drugs/treatment would be great. Had a scan last Monday, will get results next Monday and take it from there.
I am going to ask ONC about the erivlomus/exemastane (something like that) on Monday and see what he says.
Keep well my friends and continue to fight the good fight.
Elaine xx