Anyone on or had Vinorelbine?

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Hi, I’m starting Vinorelbine tablets today and just wondered if anyone has any experience or advice to pass on? It would be much appreciated. I’m off camping this weekend so I hope I don’t get too many dodgy side effects! Don’t fancy running to the loo all night if I do!!!

Ellie xxx

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Hi, my mum is due to start these tablets on Monday. We’ve been told sickness is the main side effect but generally tolerable. Hope you get on ok, please do let me know! X

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Thanks 

I hope. Your mum does ok on them. Took first one last night and feel ok so far. Always best to be pre-emtive with anti sickness as its harder to manage once sickness kicks in so tell her if she’s in doubt, take one! Xxx

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Hi Ellie

 

i was in Vinorelbine for about 5 months…I got a few leg cramps which went away. i also ended up with mildly  sore finger tips. Found it difficult to sleep.

 

otherwise, had almost no side effects. Hope you are well on it and that it works well for you.

 

love, Moijanxx

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Hello EJ, hope you are doing OK on the new pills! I hope the camping trip went off without too much trouble.  hope to see you soon.

 

Hugs. Barton.x

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Hello - my first time on a forum although I’ve had breast cancer since 2010 - FEC-T chemo and bi lateral boob job! It’s never ending, I feel like I’ve taken a degree in Oncology!  Recently I’ve had to come off Capecitabine chemo tablets and have been given (loosley) three options, although not sure I’m really getting a choice as I seemed to be scheduled to have Vinorelbine tablets next Monday with Herceptin.

 

I’ve read what others have said about no side effects on Vinorelbine, but the onc nurse said yesterday there is now a reported number of ladies experiencing permanent hair loss,but no one on this forum has mentioned hair loss with Vinorelbine?  It was bad enough with the FEC-T hair loss - I’m not cool enough for no hair!  My kids say I’m definetly not cool!

 

I was also offered, but seems to have been forgotten, either Pertuzumab or Kadcyla - I will look on other sites for info but wondered if anyone has any thoughts on the three choices… 

 

Huge thank and love to all of you Susan

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Hi Susan,

 

I was on Vinorelbine for about 5 months and my hair did thin out…having said that…I am now on Eribulin and it has gradually been waving goodbye!

 

from scanning the web Permanent Hair Loss’ has been reported with a few ladies having had Taxotere.

i had Taxotere in 2002 and lost. my  hair…but it grew back again.  I could find no mention of permanent hair loss with Vinorelbine…so hopefully you will be finexx

 

best wishes

 

Moijanxx

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Hi EJ181, hope the vinorelbine is helping, although after two cycles its difficult to say isnt it? you have given me hope becase i too am triple neg and have had just about every chemo going…docetaxol, cape, taxol, eribulin, etc. Have just completed 6 cycles of carboplatin and am now on a chemo break, which is very scary. My onc is talking about trying epiribucin again (had this as part of fec wjth primary) but no one had mentioned vinorelbine. Maybe its another one to add to the list. Let us know how you get on with it.

You too Susan…hope this treatment is succesful for you. x

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Hi EJ,
I’ve just found out that Cape isn’t working as well as it should be. I’m just about to start Navelbine today. How have you been doing on it?
Best wishes xxx

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Dear Waffles

I am so sorry to hear you have come off cape and you seemed to be doing so well on it we have both done 9 months on it. I do hope this treatment will work for you I will keep my fingers crossed for you.

 

Love and (((hugs)))  xxx

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Thanks Marirose,
I thought I was doing so well on it too. I felt really well although I suspect that the gabapentin I take maybe accounted for some of that. I noticed on the other thread that you are in Taxol now. I hope that works well for you and that you don’t have too many s/e. From what I overhear in the oncs waiting room it seems that most people cope with it well. I think it is my next option after Navelbine. Best wishes xxx

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Hi Ellie,
Thanks for getting back to me. It’s great to hear you are tolerating Navelbine so well. I had my first dose yesterday and I had a bit of heartburn before bed and was expecting to feel a bit sick today but I’ve been fine. It is a bit of a pain having to go hospital two weeks out of three but at least we can eat dinner and breakfast whenever we want unlike with Cape . Hope you mind if I keep in touch. Best Wishes xxx

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Hi Ellie,
I think that the way they do things in your hospital is very sensible. I will ask when I go back next week. It would save me a lot of stress. I hate hanging about for hours in the hospital. I’ll let you know how I get on. xxx

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Hi Waffles, i was on Vinorelbine for a short while. Had minimal side effects.its good that you are able to have it orally, as apparently some hospitals still give it i/v and it does burn the veins!  Likely the capsules are more expensive!,

 

good luck with itmoijanxx

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Hi Moijan,
I have read the capsules are more expensive too. I have to take three little capsules with liquid in them. It must be super powerful stuff inside them if you consider how big the cape pills are. Best wishes xxx

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Will be good to hear how you get on with them

 

moijan?

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Thanks Moijan x

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Yes! Ellie!  nails…I had forgotten, I have a splitnail that still needs care from when I was on Vinorelbine! And my toenails are shocking!

 

moijanxx

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Hi Ellie,
I didn’t know about the nail problems. Do I have to paint them a dark shade? xxx

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Ellie
So glad u have posted your good results here for the other ladies on this chemo.
Honestly …you looked so well this morning from when I saw you back in the summer.
Sooooo …black nail polish for you now then !! Ha ha
Carolyn xx