Morning Maisies, slept a bit better thank you for the good sleep vibes! Tamsin I think you’re right the steroids do make me feel a bit yuck too! I think Imight ring and get some antiemetics, finished ondansetron yesteday morning and woke up at 05.30 this am feeling very sick. Had milk and a ginger bic and took metoclopramide which helped, but nausea again now even after the dex. I’ll see what they say. Good luck with all your appointments today girls. Yes had breakfast in bed again Debs, I could get used to this, normally work 8.15 till 6 on a monday!
Have a good day girls
Jacquie x
Hi Jacquie. I’ve got Domperidone as well as ondansetron and I take them together - Domperidone to begin with and ondansetron if I need it as a top up and that seems to work really well. And I am still taking them religiously every 4 hours. Still feeling sick though!!! Like the idea of breakfast in bed xx
Wow oncology help is brill here, rang me back got a new antiemetic and just got to collect the prescription in about an hour! Just shows don’t suffer, they can mix and match! Lets hope this one works, as another plus it makes you sleepy which will be bliss after my steroid highs!
Jacquie xx
Hi ladies finished steroids Saturday night just have to take them for 3 days I’m going to chill this afternoon so hope this weird feeling goes away keep taking the sick tabs so far so good, not eaten yet today so I had better have something I’m just not a breakfast person hope you all have a good day xxxx
Good Afternoon Maisies,
Hope that you are all well on this glorious sunny day? Rose, Jacquie and Tamsin how is the nausea/sickness now?
Lots of progress today – went for pre-chemo blood samples and veins collapsed, so lots of patience from nurse to encourage the blood to flow. I will be so glad to get the PICC line fitted - this now Wednesday first thing as tomorrow’s appointment cancelled by the hospital. Still PICC line fitting and chemo on same day will save two hours of driving, so not bad.
Post brought prescription for wig and details of local-ish suppliers - must make an appointment. Also, PICC line covers. Seabands are on order from Amazon and ice lollies are in the freezer. Even walked out to post office and shop this morning and bought ginger biscuits.
I am more or less ready, or at least as ready as I’ll ever be for systemic poisoning!
Penn
Feeling much better thanks, last lot of steroids taken thank goodness. I have my wig fitting appointment on wed. Hubby’s got my prescription so onward and upward! Horrid when your veins collapse be much better once you get your picc line in. They think I will probably have to have 1 too but hand was ok for the 1st lot luckily.
Speak later x
Hi Maisies, not having a good day today so have come on here to vent a bit - sorry!
Radiotherapy planning appointment was fine, I now have three more blue dots tattooed on me to add to my collection. Will be having a total of 20 rads so 4 weeks worth of treatment. I was completely floored though when the radiographer mentioned that the first and last week of my radiotherapy treatment will be as an inpatient because I’ll be having chemo at the same time. I knew I was having both at once but nobody mentioned anything about a 4 night stay in hospital. Rang bcn to confirm an appointment to see onc on Wed pm - turns out she had the clinics mixed up and he’s not there this week. Have now been squeezed into a lung cancer clinic on Wednesday am, following my PET scan at another hospital at 9am, stressful or what? Don’t know exactly what day I’ll be starting, poss Monday, maybe Tuesday or could even be Wednesday. Really cheesed off with not knowing, I still don’t know how many sessions of chemo I’ll be having. And will they all require a 4 night hospital stay or just the ones that overlap with radiotherapy?
Gutted for elder daughter, one of her biggest worries was that I would have to stay in hospital again. She’s not due back from France till late Sunday night and potentially I’m heading off to hospital first thing Monday morning.
Don’t know what to do about the holiday we’d booked in Cornwall either. Obviously I can’t go as I’ll be on daily rads, but don’t know whether to send the kids off with my husband or try and cancel. If they go I’ll barely see them for weeks as I’ll just be getting out of hospital as they leave for Cornwall. Am I being selfish? Would it be better for the girls to have their promised holiday?
Apologies for the long post, as I say - bad day!
Katherine
Oh, and benedictus - mostly cakes and stuff but I do bread as well and have done a few fancy decorated celebration cakes: my nephew’s christening, in laws golden wedding and an enchanted tree cake for younger daughter’s birthday.
Dear Katherine,
I am so sorry that you are having a tough time. Not knowing the details of your treatment plan is very stressful. Is there someone you can talk with at your oncology centre that will be able to clarify the details for you? Then with more information you can make a decision about children and holidays and such.
Thinking of you,
Penn
Oh Katherine, that is a bit much to take on board. Does the radiographer know definitely that you will have to stay in? Sounds unusual to me. Is there no one else in your oncologist’s team who could see you this week instead of being squeezed into another clinic - also seems very unsatisfactory. And to be probably starting chemo next week and still not know what you’re going to have is pretty rubbish as well. I would really push for not staying in hospital if possible. I know exactly how you feel about keeping things as normal as possible so far as the children are concerned, and also for your peace of mind and if it is better for the whole family that you try and do the treatment as a day patient then I think you should make that really clear. Re: Cornwall. We were due to have two holidays this summer. My OH and children are going off next week, mainly because we couldn’t cancel that one and I felt the children deserved a break, but we did manage to cancel the second one and if you feel that havingi the family together is more important than them having a second break then I think you should go for that option. (Not telling you what to do or anything, just burbling!) And, NO NO NO you are not being selfish…
Your cake making sounds much more advanced than mine. Should be baking today but I haven’t quite summmoned up the necessary energy. Cupboards are bare though.
Hugs (((((()))))
Tamsin x
Hi Ladies Just had a quick nap only 30 mins but feel a lot better no sickness yet but I’m taking the anti sickness tabs that were given me, Just going to have some soup for lunch, hoping to go to work tomorrow. Sorry everyone seems to be having a rough time, just glad I can come on here read all your inspiring stories, xxxxx
Hi all, glad to hear you are feeling better Tamsin and hopefully you will soon Jacquie when you get your new prescription. Pretty impressive service isn’t it. Katherine totally understand you being really fed up. Information like two inpatient stays is quite major and think it is crazy that no one had mentioned this to you, is it possible that she has got it wrong. I agree totally with Tamsin that you are not selfish if you decide that the kids should stay at home. If you think it will be best for you then do it. This is a time in life when you need support there will be other holidays they can go on. I think a lot of us have had to cancel ones this year, I certainly did.
Hope those with heart scans today have been given the all clear today. I have my first ONC appointment tomorrow any tips on the questions I should be asking?? Hugs to all xx
Hi Maisies
Just want to share - seeing Oncologist on Wednesday and have just said to OH what questions should/need to ask him? Our humour has been a little dark to say the least… so OH said ask how long your bucket list should be and will the NHS pay for it? Was in the process of taking a sip of tea - huh it went everywhere… hee hee. See there is a bright side.
Georgina.
ps Gotta laugh, or I’d cry
Just heard an Elvis song on the radio - Are You Lonesome Tonight - must’ve been a live recording because he started laughing during it. I realised he’d lost it completely when he sang ‘Do you gaze at your bald head and wish you had hair…?’
I burst out laughing, and I was driving at the time! As you say, Georgina - gotta laugh! 
Annie x
Well, the radiographer was right, I am now officially booked in to have my first 4-night inpatient (or should that be IMpatient) stay starting Monday. Will find out from onc on Wednesday whether all chemo will be inpatient and how many sessions I’m getting.
You couldn’t make this stuff up - had another phone call this afternoon from the hospital, their PET scanner has broken down so they’ve got to rearrange my PET scan from Wednesday. Now having it Friday morning, although they did offer me the option of Preston on Thursday (I live in Cheshire…)
Georgina, love the dark humour. My OH keeps asking whether he should start writing his profile for eHarmony! We should write our own black comedy. When I had my mx, my surgeon came in beforehand and starting drawing in marker pen on my right (healthy) breast. I must have looked a little bemused, because she said “It’s all right - I’m just writing ‘Not this one you fool!’”
Have decided to try and cancel the Cornwall holiday after I’ve spoken to OH on the phone this evening. Also think OH needs to be off work on Monday to support the kids and sort out the mountain of unpacking from their holiday since they don’t get back till about midnight Sunday and I’ll be out of the house by 8am Monday morning off to the hospital.
Hello lovely ladies,
Well, went to breast clinic today to have ultrasound on seroma. Took my form to nurse, that I was given by surgeon in casualty yesterday and she promptly told me that they were in the middle of clinic and would have to see if I could be fitted in! I then totally broke down and being comforted by my husband, she then said she’d take me through and do it there and then as she could tell when people are genuine! Had to have another 300mls aspirated by ultrasound, so after 250mls yesterday that’s 550mls overall. Area around wound feels alot softer but quite sore. Came home and slept properly for first time in three days - 5 hours!
Tylerrose, hang in there my lovely. At the moment I can’t imagine how you’re feeling but I know what it feels like to feel weird and it’s not very good. Bakeswhenstressed, I’m thinking of you and hope everything sorts itself out soon.
Hope you all have a restful evening 
Rainbowrosie
Oh dear Katherine what a nightmare! I hated being an inpatient so I don’t blame you for venting. I am sure if the kids don’t get back until midnight they will be glad not to have to leave you again so soon? Presumably they thought it would be easier for you than all the to ing and froing ? Sounds like they are making sure they zap it as quicly as possible which is good.
New tabs are fab, feeling much better! My mum and dad just got back safely from Canada so it will be nice to see them tomorrow.
Jacquie x
Ps love the dark humour, especially Elvis and the surgeon! X
Luv the humour no one could make any off this up, feeling better such a strange feeling this morning, just waiting for my grandson to come back from the other grandparents, daughter home from work, normality will be resumed, better have my sick tab warding it off so far, hoping to go to work tomorrow for a rest lol luv to all Jacquie,Rainbowrosie, BWS xxxx