Welcome Helen, good to have you aboard the crazy train! Sorry to hear you have had a rough ride so far, it must be hard with 5 kids not to catch any germs, at least you are out of the other end for now. Hope you stay well now xxx
Hi Helen. Amazing that this incredible site has reached all the way across the world. Where abouts are you in NZ? We went there for a big famly holiday in 2010 and had a fab time. What a great country! xx
I live in Devonport in Auckland. My son is living in the UK at the moment playing rugby.
Up on the night shift again - hey ho. At this rate I’m going to have to invest in some serious anti-wrinkle cream!
Morning maisies, or should I say early morning? Just spent ages catching up on yesterday’s posts you chatty lot. Welcome to more New ladies including Helen from nz, can’t believe we are neatly at 50!
Had to go back to hospital again yesterday. I arrived at the in laws yesterday and MiL noticed my wound leakage had come through to my dress. So it came through 2 dressings, a sports bra and my dress. Went up to the hospital and thought I was going to be sick when she removed all the dressings, even the steri strips came off everything was so saturated. The nurse said maybe I should have had a drain as I sat there waiting for her to redress it and it was still trickling down. Have to go back up to the breast care centre this morning, luckily they gave me an appointment for today in case I had a drain!!
OH also peed me off by going round my wicked step daughters when she still hasn’t been near since my diagnosis. Wasn’t really cross he went as he wants to see his grandkids( not mine apparently as they have been told by her I am not a proper nanny) but cross cos he would have been all nice to her and not challenged her about her behaviour. He hates confrontation.
He did try to get in my good books by taking me out for lunch which was nice as I didn’t have to cook but he isn’t getting off that lightly!!
Laying here right now not daring to look at boob in case it’s leaked again not sure it could get through all the dressing put on it yesterday though!
Feeling very sorry for myself right now and I still have the flaming chemo and all its joys to look forward to!
Hope others who have been down the last day or two are feeling better and the SEa are minimal for others.
Marketeers go get 'e-mail today. Like someone else said, all for one, one for all. Loving the pooh quote too. Two fabulous sayings for our group. Would like a big group hug right now!
Chat later xx
Oh God not with it muskateers flaming predictive text
Go get 'e-mail there go get 'em x
Dear Sam,
You’re having a rotten time of it. Slow-healing wounds are a real pain. I’m sending you a BIG electronic hug and the hope that your clinic appointment this morning will make you more comfortable. Thinking of you - let us know how you get on this morning.
Penn x
Good morning Maisies.
Sam I am so sorry you are still having problems, I really hope they can sort them today once and for all. You must just want it sorted so you can move on hunni. I can also undertand how OH makes you feel with regard his daughter, I have been there in a past relationship and know how frustrating it is hunni. I hope you have a better day today xxx
Good luck to all those at the bar today, I will be thinking of you all.
Have a good day all xxxx
Hi Sam, I’m a July J and woke this morning feeling a bit glum and apprehensive re consultant appt today. Your post has put things into perspective For me. So sorry you are having such a rubbish time, it will improve, I’m sure. Also, though it can’t really compare, one of my best friends dumped me when I got my dx. It makes me really upset when I hear that my other friends a have been meeting up with him as though nothing is wrong. No one has had the guts to properly challenge him. Not the same but evokes similar, difficult, feelings. Good luck for your appt.
Morning Maisies, well happy Jac back today, feel more moody than a teenager but hey! Welcome Barbs and Helen, the wonder of the web that our chit chat can be read in NZ.
Sam what a pain for you, I hope they are putting decent dressings on for you? I am a practice nurse and whenever we get dressings like this making sure the wound stays as dry as we can get it is a priority. You need to drink plenty too if you’re losing so much serous fluid. Did you get the zinc and vit C? Hope it settles down today.
Good luck to the 3 musketeers breakfast now methinks! Jacquie xx
Good luck to the three musketeteers and a better day for everyone, especially Sam.
have just done first lenograstim injection. Not too bad. i think some others are doing it, expect to do it? and having finished the main dexamethasone steroids I wont be taking any more so as to avoid more sleepless nights and other side effects. My chemo nurse is fine with this. I did this last time on FEC. Avoided weight gain too, but also some exercise and careful eating involved in that. Hoping to walk and do pilates today. Plus the ironing! Have a good day everyone.
xx
Morning Maisie’s,
good luck to the 3 musketeers today hope all goes smoothly.
sam , it will get better, it just takes awhile take it easy Hun I was told not to do any heavy stuff or hoovering etc and it did help slow serous fliud down a bit. Xx. Let OH spoil you xx
Welcome to the ladies that have joined us since last evening, can’t believe it it’s so sad really, but fab support here x
Anyone heard from Tyler rose?? Hope everyone with se’s are coping I’m now getting a bit down about the whole chemo thing.
got pre assessment today then first session next Monday , OH going away that day for 5 nights back to Ireland to see one of his sons who’s been away for 4 years, so arrangements were made yesterday that my es and girlfriend staying first 4 nights from day one of chemo and ys coming home for 5 th night, feel like the bloody child not the adult I don’t want anyone to stay but OH can’t relax if they don’t!!! So don’t want them to see me ill, fingers crossed no se’s till later on in week. Could cry thinking what this does to the ones you love.
chezz hope your hairs ok, I know it’s horrible my big dread lots of girls say the thoughts worse than the deed, hope so Hun and all others who s hairs on its way just remind yourselves it will come back, unlike the cancer which you are blasting into oblivion!!!
going to walk dog and then face chemo unit, words I’d never thought I’d say , have good one girlies xx ju
Ju, I know how you are feeling, mine starts nest Tuesday and i feel like I am on the countdown to hell right now! My OH is taking 2 days off and my daughter is taking the other 2 as her days off so i am not alone for the first week. I am so damn independent and as you say, you feel like the child, I hate it and am terrified of it all.
On a good not Spikeyred (Karen) and I are meeting for a lovely lunch today, so that is a good thing
Have a good day ladies
xxxx
Enjoy your lunch girls that’s nice news xx. I actually feel sick today havnt even started chemo yet!!! Countdown to hell is how I feel too gilly xx ju
Morning maisies, good luck to the 3 musketeers today I will be thinking about you and sending virtual hugs. Sam you are really going through it hun but hopefully they will get you sorted out today. Just think with your stepdaughter some people don’t have compassion or empathy for others and can only think of themselves. This isn’t an excuse but think how lucky you are that you are not like that and how grateful we are all the maisies that you are not like that. Try not to waste any anger or tears on others just concentrate on getting yourself better. Well that is my blurb for today sorry sam, keep your chin up sending a big hug!
I hope the rest of us have minimal se’s today fingers crossed subsiding abit! Good luck with the ladies with app’s today too, thinking of you all debs x x x
I felt sick for the whole week before chemo, Lois! Then not afterwards…how strange is that?
Had the day from hell yesterday, can’t describe how awful I felt most of the time but I’m sure some other ladies will know the feeling of not being right, not being myself, oddly ill but not exactly sick. Took half a sleeping tablet at 10 and feel so much better today (touch wood)!
Bumpkin, my steroids finished yesterday, did you have more prescribed to take? They really are the worst thing about all this, I think, and the comedown after you finish them. I injected myself for the first time yesterday, no problem I felt very brave 
Sam, sorry you’re having such an awful time with your wound - it does sound as though perhaps you should have had a drain put in - hope it settles down soon. Good luck to everyone at the bar, all those with SEs and a virtual hug or two to anyone who needs one!
Annie x
Ju, I feel sick and nauseous thinking about it, so I know eacty how you feel, it never leaves my mind for long and I am sure it will get worse as this week goes on. I would love to run away xxx
The waiting is definitely the worst bit. It’ll be better once you get going. Enjoy your lunch with Spikey!
Sam: What a horrible timei you’re having. It must be so frustrating apart from anything else. Cyber hug ((()))
Helen: Isn’t Devonport the lovely little village across the bay from the main harbour? We went there for a delicious lunch and had a lovely day. Where abouts in the UK is your son based at the moment?
Still very sore eyes and not much energy this end, but OK
xx
Morning Maisie’s, Sam this is a big electronic hug for you, I’m told I give give good hugs so wish I could give you one in person! Really hoping that they can sort you out at the hospital today. Welcome to the new girls, delighted living on the other side of the world hasn’t stopped you joining us. Just be warned we are planning on meeting up when this chemo is over and done with, living in NZ is no excuse!! Hope our three musketeers are doing ok and those who felt rubbish yesterday are feeling a bit brighter today. I’ve been miss lazy bones and only just woke up. I think that cycle ride may have warn me out. Hope Tylerose is ok, last time we heard from her she wasnt feeling too good. Right must get up and ready for my lunch date with Gilly R. Have a good day girls, I plan to as after today it’s appointments+++ every day with the dreaded chemo bar to finish with on Thursday. Love and hugs to all xx