Hi Sonia,
Definitely keep drinking…water,that is! Got to flush the rubbish through. Last chemo Wednesday,brilliant,have you had surgery yet? I’m having mine Jul 14th.
All the best for Wed,
Love Little H xx
Hello Little H,
Thanks for the info. I will have my surgery somewhere in August. I’m seeing the surgeon on Wednesday too so I’ll know more then. Best of luck for the 14th !
Sonia xx
Hi Ladies,
6th tax/carbo/herceptin (do I call that TCH?) tomorrow. Won’t find out until later this month if I have to have 7 and 8. Have heart scan because of the herceptin in just over a week and awaiting appointment for next ct scan which should be next week or the week after, I don’t get much notice!
I have been feeling a bit down since last night about it. From experience I know that this will probably be worse than last time. My nails are an absolute state, they look disgusting, but are too painful to put on and take off nail varnish. I have also had to cut them quite short because I kept catching them, ouch! I have considered shaving what is left of the hair on my head. Only thing stopping me is that children aren’t that keen on me doing it. However, I have got to the point where I don’t even want to look at it, it is so patchy and quite frankly looks ridiculous. Although no regrets about not using cold cap. I tried it on before chemo started and just couldn’t bear it. I ended up taking it off before the nurse had even put it on properly.
Good luck for the 14th Little H and for yours in August Sonia. I still have no idea if surgery will be a consideration.
Snoogle
x
Hi Snoogle. I wore a cold cap for my first chemo. I could handle it while I had the treatment, but oh boy that night my head went crazy.The headache lasted all night and the next day. I wont be wearing it for the next session. I am going to get my fitting for a wig tomorrow. So good by cap and good riddance eh? LOL. xxx Rita
Hi Snoogle & Sonia,
Thanks for your good wishes.I know you all might think I’m daft or abit weird but this morning I got my husband to take pics of my head and my boobs…now before you’re all thinking “readers wives” the reasoning behind it is,I might feel as if my hair is not growing back but I thought if I had a photo to look back at I’d hopefully be able to see the difference.Similar thing with the boob,I might get it into my head that the one they operate on looks very different from before,I need to be able to check.
Anyway,don’t know if it was a good idea or not as I had a right blub afterwards.
Good luck tomorrow with your chemo Snoogle,fingers crossed that it’s your last,actually do you mind if I don’t cross them,pains in fingers & toes a bit bad today,holding on to nails so far.
Love & best wishes,
Little H xx
Thanks Little H,
If its of any help, I think you are doing the right thing by having the photos for the reasons you gave. Don’t worry about the blub, doesn’t take much to set me off at the moment. Wrote letters to my late mum’s surviving sisters last week to ask them for memories/photos of my mum and me as I plan to make memories boxes/books for my children. Had a good blub after I posted them. I plan to write to my dad’s siblings next, but need to speak to him about it first. We have been scanning photos from our old albums onto the computer so I thought I would type up memories around specific photos on separate pages, print them off and them put them in a lever arch folder. Quite a big project, but one I really do have to start soon. Have asked my sister to write down some memories for me as she is six years older than me and should remember more from my early childhood. A bit worried about asking my dad and brothers as they don’t seem to be coping with my prognosis so well, I think because its still not two years since mum passed away, she had cancer too.
Best wishes to everyone,
Snoogle
x
Hi Snoogle,
What with your posting and the tear-jerker Channel 5 film I’ve just watched,Im a wreck!!
Noticed your hoping to make the London meet in August,me too,look forward to seeing you there,do you think we should all wear badges with our forum names on 
Little H xx
Yeah right, I am gonna wear a badge with snoogle on, don’t think so! Ha Ha!
I hope to make it but will have to arrange childcare, rearrange the day my cleaner comes and convince my DH that I would be okay travelling into London by myself. Mind you I will probably have to convince myself first! With the breathlessness and tiredness I do panic a little (read a lot) when going somewhere unfamiliar by myself. He does worry about me!
Is anyone watching the Sky 1 programme tonight about breast cancer? That will probably set me off again. Had two cries this afternoon. One when one of my oldest friends said that I was being very brave, not condescending about how I putting up with treatment and side effects, but about how I have chosen to deal with it. Then later on I caught one of my loose large toenails and ripped it back. Its still connected at the base and there was blood all over the place. Managed to hobble to the bathroom to get to the first aid kit and cover it up and then clean the blood off the carpet with baby wipes and tonic water. When I go for my chemo tomorrow I will ask the nurses the best way to deal with it. Needless to say the air was blue and I was glad the children were still at school!
Here’s to getting over tomorrow and what comes after it.
Snooglex
Hi Snoogle,
Good luck for tomorrow, will be thinking of you. I know it’s such a long day!!! I haven’t been posting much, feeling a bit low and fed up. Just going through the “I could run away” stage. But I wouldn’t get far,too out of breath!!!
I’m dreading it due to how sick I was last time but they told me today they’re giving me stronger antisickness so here’s hoping it works. I think I prefered TAX!! At least I knew what was coming and when.
I watched the sky programme. I thought it was very good, was sad too. Tomorrow it’s the op. Eeew! Bad enough going under the knife, but worse to watch it. And watch it I will!! Which will seem strange!
Hope the triple cocktail doesn’t give you too much hastle!!
Best wishes
Fiona. X
Hi Fiona, not sure if this will catch you in time, but good luck today.
I am back home early as the situation with my falling off nail caused the chemo nurses to refuse treatment today. I am feeling quite upset, as it takes me a lot to get my self physced up for it. Now have to work out if I want it to go ahead next Tuesday or delay it to the Friday. Just sitting down with DH to work out the calendar for the next couple of weeks as we have loads of commitments that would have worked if chemo had gone ahead to day. I have horse pill size antibiotics to take for the next seven days and at the end of that it will beup to the oncologist to decide next Tuesday if it is better enough for me to go ahead even then. When I get over this lull I am sure I will get to enjoy a better week and as one of the nurses said I should be stronger to cope with the next dose.
I know its for the best, but you get into a set routine and its hard when its broken.
Snoogle
x
Hi Snoogle,
That’s a bit of a pain,but I guess on the plus side it gives you abit more “normal” time.
I know what you mean bout having to change your plans,I too thought I’d worked out when chemo would end,surgery ,rads etc,all went to pot when I had to go into hospital with neutropenia.
Hope you get back on track soon,
Love Little H xx
Hello all,
Snoogle, so sorry about the delay but you will get good days as “bonus”. Fiona, my thoughts are with you.
I started my steroids today to be ready for last Tax tomorrow. I’ll be all speedy so i’ll make some cookies to bring to the oncology team, they are so wonderful. I still have fluid retention and my legs hurt a lot. I don’t know what to eat anymore since I’ve read I should avoid salt, sugar, fat, alcohol, red meat and worst of all, coffee (arghhhh).
Love, Sonia xx
Hi Sonia,
Seriously I haven’t had much salt, little sugar (use honey or maple syrup instead), no animal fat, no red meat, only decaff coffee and not much of it (tastes fairly disgusting with soya milk) and no dairy products since diagnosis. My diet is much more plant based; although I do have chicken and fish. Its easy once you change your mindset. I know it is very singleminded but I view foods I choose to eat as healthgiving and foods like red meat etc. as bad for me. The thought of eating red meat or having dairy makes me feel sick and I find the smell of milk quite nauseating. I did have session of nutritional therapy as well as speaking with nutritionist at onc department and got their advise on diet and the potential need for any supplements. Always best to get professional advice in our circumstances. The family haven’t even noticed when I have replaced soya milk in their food; curries, pancakes, etc., well only when i told them!
Snoogle
x
Hello all,
Last Tax yesterday and the catheter is out too!!! I’ve had my first shower yesterday and it was heaven! Operation is scheduled to be on August 21st or during that week. I still have to go through all the tests again before op. According to surgeon, she wants to make sure that no lesions were happening anywhere else while on chemo. And my oncologist said that chemo was preventing lesions to appear anywhere else… talk about confusing. Anyway, the surgeon said she is almost sure nothing happened but wouldn’t take the risk before surgery.
Mouth is not acting funny yet but it will be a breeze going through those 12 days knowing that it’s for the last time. Will cope better with pain too with pain killers.
I hope everyone is ok.
Best wishes xxx
Sonia
Hi Sonia,
Over-cautiousness seems to be the name of the game. Still I am coming to terms with chemo being cancelled last week. I will go Tuesday, but as nail has still not come off I am going to go prepared that it may be cancelled again. I had to cancel ct scan due to happen Monday as Onc wants it done after 6th cycle, so now I am waiting for another appointment. I have the heart scan on Wednesday(coz of herceptin), but have to check with Onc on Tuesday that he is happy for me to go ahead with it if I have chemo. Nurses didn’t think it would be a problem, but want to make sure.
I hope that things stay well for you and that your op can go ahead as planned.
Snoogle
Hi Everyone,
Hope everyone is okay, is seems to have gone very quiet around here.
Snoogle
x
Hi Snoogle,
Haven’t been posting as much this week. Just kinda getting back into the swing of things. was so sick again after FEC I think I’ll be the same for the last one… feeling down about it already and it’s a week away!!! Got very sore veins also, applying heat packs as advised by chemo nurse…
Hope all went well with your chemo? did you finally get it? how many more have you now? I got dates in for rads- 1st Sept, herceptin starting 8th after heart scan. caught my nails in a drawer this morning, now very sore, have been doing so well to try keep hold of them, hope I haven’t upset them!!
Hope all is well with everyone
Hugs
Fiona xxx
Hi Fiona,
Yes did have chemo last week, pretty bad again afterwards. Had lost the toenail, and toe is now very very sore. Have ct scan tomorrow and should find out in week or so after that if have more chemo or just stick with herceptin. Have LGFB today so hopefully that will cheer me up! Trying to get myself pepped up for the start of the school holidays.
Sorry to hear you are feeling down.
Snoogle
x
Snoogle and Fiona,
I am still here as well. Now four weeks out of final chemo and on the mend. Really surprised though at how long it is taking to get over the final dose. Still quite achey and walking uphill (even a small slope) is hard work. Taste fnally back to normal though!
Got an appt with my surgeon tomorrow re what type of surgery I will be having (if you recall I had chemo before surgery). Quite nervous but it will be good to know my fate as I am in limbo at the moment. I need to know a date for surgery so I can sort out the rest of the summer holidays and plan childcare etc. Even if I have to have a mx I dont expect to be in hospital for long but its the recovery I’m concerned about…not being able to drive, lift heavy objects etc. Any advice?
Everyone says that surgery is a breeze compaired to chemo but again its fear of the unknown. Will sit down with the breast care nurse after I have seen the surgeon and I know she will be excellent at talking me through the practical aspects.
Enjoy the LGFB Snoogle, just don’t look too closely in the mirror…if you are like me you’ll see what the chemo has done to you. It is only temporary though.
Fiona…sorry to hear you are feeling sick. My veins are also struggling, when I went for the MRI last week, the doc really struggled to find a vein but apparantly this is very common.
hope everyone else is well.
Julie
Hi everyone,
I’m just a week out of my last chemo, been really lucky with my nails, although they feel as if someone has trodden on them and they look a bit strange they are not showing any signs of coming loose. It could be because they gave me a lower dose of tax due to my tendancy to neutropenia. Still got achey muscles and looking forward to that easing off.
Surgery scheduled for the 14th Aug, mx with full node clearance, eekk!!
Hugs to all
Clare