Anyone triple positive or HER2+ with residual cancer not switching from Phesgo to Kadcyla?

Going through breast cancer treatment Targeted therapies
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Hi Everyone,

I have a dilemma. i had a DMX on 28 August after 5 months of ECT chemo. No lymph node involvement but some residual cancer left.

I have poor/difficult to find veins and can’t get a port due a heart condition. I had a picc line during chemo but should not have had it. 9 months would be too long for a picc line due to risk of infection therefore it causes challenges to switch from phesgo to kadcyla.

My onco thinks that I could stay on phesgo as there was very little residual cancer. He would give me additional chemo tablets later to reduce the risk of recurrence. I can’t remember the name as I was in tears and could not really focus.

He also told me I would not need radiotherapy which puzzles me. I have been told several times I would get 15 sessions. I did a search on this forum and could only find similar BC cases with both radio and kadcyla.

I am seeing my surgeon on Thursday for full results and get my dressings removed. Also getting phesgo 7/18. In the meantime I am worried I am making the wrong decision.

Has any of you been offered to remain on Phesgo although there was residual cancer? I know the normal protocol is Kadcyla and I am worried I am taking risks if I stay on Phesgo.

And for those who moved to kadcyla, did you manage with canulas only? It would be such a painful nightmare for me, and I know that nurses would be unable to find veins at some stage.

I welcome any experience on any of my dillemmas.

Thank you

Marion

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I don’t have much by way of practical advise, had residual cancer, now radiotherapy and will start Kadcyla on 3/10 but I’m having a port.

You might want to join the Kadcyla support group on FB if you’re on FB. I’ve just had a quick search through older posts and it seems like there’s a fair few people who have just had Kadcyla through a cannula since it seems like it’s easier on your veins than traditional chemo. Not sure if this link will work: Redirecting... but otherwise you can just search FB for a group called kadcyla support! and then searching for cannula brings up a few threads where people were asking about the feasibility of doing so.

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thank you @kartoffel. I hope everything is going OK.