Hi, this is my first time to put up a post. I just wondered if anyone was going through similar to me. I have mets in my bones and also my liver. Had my first cycle of treatment started on 11 January this year. First one strong blast of radiotherapy then Denosumab, letrozole and ribociclib. All went ok but 2nd cycle was delayed because of bloods. Before I got started 2nd cycle my temperature started spiking and I was told my inflammatory markers were very high, therefore an infection. I was in hospital but they could never find the source of infection. They sent me home when they thought they were at an acceptable level, but I was back in again within a week. My treatment was delayed for 6 weeks! Started my 2nd cycle on a lower dose and same thing again, all well but on my week off I started coughing up green phlegm although I felt perfectly well and had no temperature, but then the temperature did start to spike so I am presently in hospital again. I have had all sorts of tests, X-RAYs, Ct scans MRI. They can’t find the source of the infection again, but feel it must be a chest infection since I was coughing up phlegm, but even though that stopped a day or two on antibiotics, the inflammatory markers kept rising dramatically! They changed me to 3 IV antibiotics daily and the markers are now coming down. I am now 11 days in hospital and seem to be a mystery to them. I feel the infection must be something to do with the cancer or the treatment but the oncologists don’t agree, and the medical staff can’t figure it out. Meanwhile my treatment is delayed again, 5 weeks so far.
can anyone out there give me any hope. I just feel as if I won’t be around much longer to see my grandchildren grow up. It is hard to stay positive.