Hi Im wanting to know what effect chemo had on your ME. Does it make ME worse in itself or is it other things that affect the outcome eg vomiting, travelling, sitting in a chair for hours.
I need to know the relationship between the chemo chemicals and ME within the body ie if the chemicals themself do damage to make it so you have a lower tolerance for activity.
I am being offered the red devil (EC) max dose every 3 weeks 3 times then docetaxel (taxotere) every 3 weeks 3 times.
My ME is such that I can currently talk for 2 hours before exhaustion
Thanks for your help this is really important. Without chemo my chance of recurrance & lifelong cancer increases from 39% to 55%
Dear whatisdharmakaya
Sorry that you havent recieved any responses yet. It may be helpful for you to talk with one our specialists on our free Helpline, 0808 800 6000.
Alternatively you can post your questions on the Ask Our Nurses area of the Forum where they can reply to you online.
Best wishes
Anna
Digital Community Officer
I have ME
i have has surgery lumpectomy and Sn removal but then they found cancer in the nodes and repeat the surgery removed 9 more with one affected
I am also worried about how my body will cope with the Chemo and if it will bring on a major relapse and if it is worth the risk to my already poor immune system
I have yet to see the onocologist but at present unless there is a large % benefit I will not have it
will have Radiotherapy even the drugs - the Ines we need for 5 years worry me too.
me ME is much worse after two lots of surgery so I dread how the rest of treatment will be