Hi everyone
I was diagnosed with dcis which hormone responsive last month. I had a biopsy to take it out, but unfortunately they lost the marker. I could not have another mammogram until yesterday as I had an heamatoma and they had to wait until
The bruising went down. My next appointment to discuss the results was meant to be 10th February, but I got the call today that they want to bring the appointment earlier so it is going to be on Monday 27th jan. does that mean it’s bad news.
I do not have my bloods tested to check my hormone levels until the 6th feb as I had the mirena coil in. Today I got my period, so it looks like I still have hormones in me. Will they want to put me on the blockers asap and that could be a reason.
I have only just come to terms with my diagnosis and now I feel I’m back at the start catastrophising about it all
The 10th February seems a very long time to wait. I had to wait 6 weeks for my initial appointment, but was seen two weeks later for results. And every other “thing” seemed to be two weeks later - whether that was deliberate or coincidence, I don’t know.
It’s very possible they have noted the time scale, and managed to fit you in earlier. If they do have something more urgent to discuss with you, then it’s good that they are making plans to see you sooner.
Regarding hormones, I was told to get Mirena removed immediately, think that is standard policy with any hormone cancers and started hormone therapy about 8 weeks after my last surgery. There are lots of factors, they take into consideration, don’t be afraid to ask questions or ask them to go over it again.
Thank you. I got my coil removed the day after my dcis diagnosis in December. I have to say I’m really upset that my period came today with the cancer being ev. Just feel at 52 years old I shouldn’t be getting them anymore.
They said that I would be having my mammogram this week and then see me on the 10th. So I had the mammogram yesterday and today they say they want to see me on Monday. Just feel it is so urgent and that there is something wrong.
I’m 50 and have PCOS so the coil gave me several years of bliss in that area! But needs must. Im pre-menopause so I’m having Zoladex to fast forward menopause.
You know the waiting is the worst, and in some ways bringing your appointment forward can be a benefit. It means you get the answers quicker, not weeks of waiting, and they can discuss a treatment plan. It’s probably hard to believe right now, but having answers somehow takes away part of the anxiety. It’s hard to put in words, and certainly an emotional roller coaster.
Let us know how you get, and remember we are all here for support x
Oh bless you at @cjh1876 - your experience sounds similar to mine . I had a failed VAE under local anaesthetic to remove a very small low grade tumour - and they lost the marker then I developed a haematoma and tumour pinged out of the Radiologists grasp and got lost in the haematoma . Then as you say what seemed like a long wait for a check mammogram and waiting for the results was worse as I already knew what it would be. Much later I had a debrief with my Radiologist who was lovely and who has performed that procedure on hundreds of women now and to date I’m the only one it’s failed on - the meeting allowed me to deal with some lingering questions about that procedure and get closure on it.
I was 56 at the time but was still having irregular periods at 54 so also did not know my menopausal status at the time. I asked about going on the blockers when I was formally told that the VAE was unsuccessful but my Consultant said best not to muddy the waters . If your blood result is inconclusive which I imagine it may be then get yourself retested , it may or may not affect your plan . I was initially prescribed Tamoxifen but my status wasn’t confirmed until a month after my lumpectomy and my past medical history made me unsuitable for Tamoxifen anyway and I turned out to be post- menopausal so it was then changed to Anastrozole but I was tested until 3 weeks after my lumpectomy and that was 7 weeks after my VAE .
I hope that your appointment on Monday went well - maybe now you have a new plan . Obviously you will still be waiting again for some tests and results and the waiting is is usually the worst part of everything . Sending love xx