morning everyone I didn’t have chemo yesterday it wasn’t ready .Was sat in Weston park hospital for 4hrs got to go back Wednesday to start. relieved if I’m honest gives me chance to get used to my Hickman line .There’s so many side effects to the combo I’m going to be having.ITS a beautiful day
Another lovely day here, mostly dry and sunny which is unusual in Wales! I’m based near Cardiff so N&W’s mum if your husband and son came here they chose a good day! Hope your day with your 4 year old continued as it started with decadence!
Wildshell, what a shame your chemo was delayed although like you say it gives you a chance to get used to your Hickman line. I must confess I’m not even sure what that is, I’m not particularly knowledgable on medical terms even my own treatment/medication! I hope it all goes to plan on Wednesday and you can get started.
I’ve had a good day went to the garden centre and bought some beautiful plants to go around our pond, I sat outside, under the parasol enjoying the nice weather for a little while it was lovely.
Hope the lollies went well Gigi!
Enjoy the rest of the weekend everyone, I hope the sun shines for you all x
Hi everyone I echo Michelle what a lovely day! Didn’t get to the lollies as I haven’t got any moulds so fruit salad and smoothies today. Will nip out in the morning and get some. Today had such a lovely day. Fresh seabass and tuna with salad for tea. I’m home alone this evening with the pets.Glad my partner has got out and about for a change. He has been my rock. Daughter at a boxing match!
I decided to reward myself each time I did chemo so bought my first pressie today. All garden related. I have bought a garden swing seat which is arriving tomorrow evening. So excited. We saw one out but I faffed about making up my mind and it was so heavy and then found one so much cheaper online which they will deliver. Much better.
Tomorrow might hit the garden centre too Michelle. Hope you have had a lovely day with your son N&W’s mummy and you are being v positive Wildshell after they kept you waiting, hope you are enjoying your weekend.
Tomorrow going to experiment with iced tea. Probably will watch the marathon on the telly and cheer everyone on. Going to be hard in this heat. For them.not me lol.
Then got to prepare for my speaking exams next week. New spec so need to practise.
Well I’m off actually going to have an ice lolly. … tons in the freezer but not as healthy as the ones I’m going to make. (I will make them I promise)
Take care everyone enjoy your Sunday
Besos Gigi
Morning Ladies
It’s very quiet on here… Hope you’re all OK?
Hugs
Sue xx
Hi Sue, all good with me just been busy getting stuff done as this is my good week. Hope everyone else all ok? I had a morning planting, well watching my husband plant yesterday! We had an area in the garden landscaped last year so as we are now going to be home for the summer I want it looking pretty. Having this has certainly spurred me on to get all those little jobs done around the house that always seem to go on the back burner. I am meeting up with a couple of friends for drinks and cake this week. I haven’t seen many friends since I have been diagnosed so I suppose I’ll have to go through it all with them, but it’ll be out of the way hopefully and then we can talk about normal stuff.
Been for my usual walk this morning, I enjoy this so much and am glad I have been able to continue it. It helps mind and body I think! I’m starting to plan for next chemo too by cooking extra and freezing it. I’m looking forward to Friday being here as it means I am a bit closer to the end, but not the actual process but has to be done I suppose!
Hope everyone else is ok x
Hooray! Got my dressing off today, all is present and correct - nipple is still there albeit a little crispy and a bit wall-eyed. More importantly, healing has gone well and we’re full steam ahead for chemo to start on Thursday. Have a call from the oncology nurse tomorrow and my pre-assessment on Wednesday morning, then in for my first dose of EC on Thurs afternoon.
I’ve also got an appointment at The Haven (I think there’s a few around the country?) on Wednesday afternoon, and looking forward to see what they have to offer (lots of lovely relaxation, I hope).
Hope everyone else is having a good start to the week 
Hi Everyone. it is lovely reading all these possitive comments and experinces and i wonder if there are others out there like me where things have not been so smooth running. This week i have felt better in the main after the terrible tummy pains after the first Taxol. The dose was reduced and so i do have less joint/muscle cramps and my tummy has been behaving most the time. i think most of the problems have been lack of information or where to get it when i am concerned. i have a helpline number which was very good when i was really worried but there is no one there to just chat through side effects that i don’t know if are important or not. With the added problem of Leukemia and the way the breast cancer treatment effects that i am feeling a bit lost. Today the consultant dealing with the Leukemia said my blood test post first Taxol showed Liver problems that the chemo oncologist obviously hadn’t been worried about but the result now appears to be my CML (Leukemia) medication may not be allowed to be prescribed. Still waiting for the verdict on that.
Also i have had days when i am very tearful like a hormonal weep. Anyone else had these or is it just the way i am dealing with the stress.
Oh Christine I am so sorry to hear you are having such a tough time with it all. It sounds like you have a lot to take on board with having leukaemia as well. I do have time when the tears just fall and fall. This afternoon was one of those times whilst on the way to pick up my daughter. But I knew I had to pull myself together for when I saw her because her seeing me like that would be distressing for both of us. I am on FEC at the moment but have heard that taxol can upset the tummy a lot more. Do you have a nurse assigned to you? I have found them to be very helpful with the niggles that I have. I’m afraid I can’t offer any other advice, other than crying is good but so is laughter and we just need to find a good balance between the two if we can. X
Thank Michelle. i don’t have a nurse i can talk to unfortunately. i do have good days too and the sunshine at the the end of last week and the weekend did lift me. i do have a good friend who also mentioned the crying is good too. I think today is just one of those days to get through and each day gone is another closer to the end of it all.
Thanks again
Hi Christine sorry to hear your news. I’ve found the breast cancer care helpline and macmillan support line really helpful when I’ve hit a rough patch or have health issues to get advice on. The nurses are really helpful. Also you have us here to listen to you. I hope we can help a little. Sounds difficult as you are dealing with different serious issues at the same time and treatment is going to be more complex. I think crying really helps but a hug even better. So big hugs to you. I’m treating myself with something for the garden every time I have chemo and I ordered a garden swing seat which arrived yesterday. Just a little cheap one from Argos but it’s great I can swing and am in the shade. Take care and Hi to fitful head and Michelle. I’m also seeing oncologist for bloods Wed and having wig fitting. Speaking exams tomorrow and Thursday and I’m pretty exhausted already. Trying to pace myself. Take care everyone x
I know what you mean Christine there are days that we just have to get through. I have stared putting a **bleep** cross through each day on the calendar which is quite satisfying! And as you say each day is another day closer to this being over and something we will just remember as a bad time in our lives that we overcame.
When I saw my oncologist last she mentioned that I can get counselling and someone else has told me that macmillon also offer it. I think this is something I will do at some point. I think being diagnosed with cancer and going through the treatment is a lot to cope with and as well meaning as friends and family can be they are not always helpful! X
Oh Christine, that sounds really hard *squeezes* We are here to listen and to help where we can, so please keep sharing if it helps. And don’t worry about being upset… you are in a very upsetting situation and it is a natural reaction - let the tears flow if you need.
Do you know if your two treatment teams are talking to/working with each other? It definitely sounds as though information isn’t flowing as it should, especially if it’s not making it to you… can you ask both your oncologists to speak to each other? I know it takes energy and it isn’t really something you should have to sort out yourself, but you do need to let someone know that something isn’t working.
I’m glad your secound round of tax has been a bit better than the first, and hope it continues to improve! Am sending more *squeezes* and some friendly thoughts :)
Hi Gigi sounds like our weeks are similar, although I don’t have any speaking exams! I love the sound of your garden swing, I may have to invest in one here! I can see myself snoozing on it in the summer!
Hi fitful, good to hear all going well with your recovery from surgery and that chemo can start Thursday, good luck with that. X
I’ve just read my previous message back and seen I have been censored! Not sure why i only said black!! I was talking about the colour of the pen I use. I wonder if that will censor again! I do hope I don’t offend anyone, is black a swear word?!! ?
Hi everyone I’m getting my little jobs done ready to start chemo on Wednesday.Getting used to my Hickman line my daughter changes my dressing every day I’m a wimp at that haha
Glad to hear you’re in good spirits Wildshell, good luck on Wednesday x
You are very brave Wildshell having a hick man line in the first place. Nice your daughter changes the dressing. Mine doesn’t even do the washing up. Michelle yes I’m getting ready too. My arm is killing me so goodness knows how they will find a vein. Bit anxious about it but it is what it is and got so much to do for work no time to really think. Watching Mission impossible Rogue Nation on the telly. Partner on lates this week so he is not in till 11.
You’re right Christine it really should be that hard, I can’t believe they don’t communicate with each other it’s madness.
Gigi did they tell you why your arm is hurting so much? I understand why you’re anxious hopefully you will get some answers on Wednesday. Enjoy Mission Impossible, I’m heading to bed.
Night all xx
Morning ladies sitting in said garden swing with my tea when I should be getting ready for work. It’s so nice. Very tired before I begin the day but I slept well. I think it is just the cannula on my arm that must have bruised it last time will find out tomorrow I guess. Jope you all get sunshibe. Rain forecast here today. Have a good day everyone Gigix
Arrgh… that’s maddening, Christine! So sorry you’re having to try and sort that out but hope today has started out a bit brighter for you.
I’m still enjoying the lovely feeling of my first shower after surgery I quite like baths, but never feel completely rinsed and clean after them and this first shower is a joy! No appointments today, but plenty to sort around the house, and should be getting a called from my cancer care nurse this afternoon after the regular multidisplinary team meeting - hopefully with the path results from my re-excision, fingers crossed for clear margins.
As well as being jealous of your garden seat, Gygi, I’m interested that you’re working at the moment - how have you found it? Have you had to change your hours or work patterns very much? I’m off at the moment (3 weeks for surgery became 6 weeks for two lots of surgery, and now is running into chemo, for which my oncologist strongly recommended taking the first cycle off to see how it went), and if I wasn’t starting chemo this week I’d be heading back in tomorrow and quite looking forward to it (I have started talking about the people on Netflix shows as though they’re my friends…aaaargh).