Hi ladies
I had my planing yesterday and my rads start April 23rd, also had a bone density scan and this Saturday due a ct scan of my thorax,abdomen and pelvis with contrast. All becoming overwhelming now and feeling very anxious. I’ve been told bachs rescue remedy is very good and helps. It’s so nice to be able to come on here and share as don’t won’t to worry friends and family with my worries.
big hugs to all you lovely ladies.
Xxxx
Spent my birthday having 3rd session today - think due to having ME I am struggling with total fatigue ,
dizzy and already red - I am fair skinned.
i know fatigue is common but seems out of proportion with the small number of Rads.
Getting hospital transport as it is 30miles away and involves motorway and I am just too tired but this is on average a 5/6 hour round trip.
drinking plenty of water and using E45 lotion.
didnt expect to feel this dreadful so early on so very agitated sadly.
It certainly takes a chunk out of the day, as Nst says hang on in there - nearly the weekend and 2 days off!!
Can I ask - is anyone experiencing disturbed sleep? I normally sleep really well but I’ve had a couple of nights now of wakinf, also tossing and turning and not being able to sleep despite being tired.
It might be unrelated, it’s so easy to blame everything on the treatment!
Xx
Hi all. No 7 done just 8 to go. The hospital trips are beginning to get really boring now!
Sorry you’ve been experiencing disturbed sleep. I’ve not been too bad but I’m making sure I get some exercise in each day.
Maybe just the way your body reacts to the treatment. Just because they’ve never seen it before doesn’t mean it’s not the case. Everyone is different. Have a nice bath and a hot chocolate before bed I’m sure that’ll sort you out. Makes me feel sleepy just thinking about it.
8/15 for me today and must admit had up and down days. Am feeling quite tired now and even though feel tired I too am having disturbed sleep. Tried out the mindfulness app, relax meditation and I found it helps relax me ?, so am trying the same technique to help me sleep at night.
Sending you all 
& hugs xx
just home from number 4 of 29. Am very fair skinned so definitely now pink. Looking forward to a weekend off.
I’ve been struggling to work out what to wear to sleep in/ on the sofa in the evening as it still feels too cold to not have something on my shoulders, but my boob doesn’t want to be covered. So I’ve taken an old T shirt and cut a boob hole in it. Super comfy. Just very glad noone can see me (hubby is currently in the US on a work trip!).
I haven’t see any change in my skin yet but I do get the tight feeling.
Had my second zoladex injection today. After rads tomorrow I’ll be over half way through!!
No change in skin for me apart from my rib - love the idea of your boob hole!
I’m sure the booster targeted sessions will result in more of a reaction… but I’ll worry about that when I get there!
8 down with 7 to go!!! Over half way through. I was eyeing up that bell on the way out if the unit today.
Good luck everyone with treatments and appointments today x
5th zap done. Only 14 to go! Gosh, I’m already really sore though. The side of my breast feels like sunburn.
Looking forward to the weekend off. Have a great weekend everyone!
Well done WhyteFawn …more than half way now. My first is on Monday. …I may catch you in the waiting room!.
Well done to everyone going through treatment this month.
Relax now for a couple of days and enjoy the promised good weather xx
5th Zap done -10 to go I’m having the minimum do feel for you all who are having more zaps
have a really stiff and very painful shoulder - also was given a new drug by my Gp to help with my anxiety/ depression poor sleep and appetite loss however
i cant take it as so so sedating and made me even more fatigued with my ME that the radiographer offered to use a wheelchair to take me back to get transport legs like jelly and dizzy like I had been out on the lash
i really didn’t want to use one as it has been many years since my ME diagnosis since I couldn’t walk so was determined to walk - I cannot keep my eyes open
I’m hoping it’s the drug and not ME related but could be the Rads but too soon at this point - so again I’m so anxious how it will be in another weeks time !
the journey today there and back and treatment time was 4hours - better than 5/6 hours the other days
i feel like the voice of doom on this forum sorry to be such a total misery prior to this I really wasn’t like this infact I was a actually good fun !
Nat thanks for your message -
lesley sorry about your soreness and redness sounds awful
Hi
I’m new writing on here, but been reading alot of your messages.
I have my 1st planning meeting on tues at radiotherapy appointment it says allow upto 4hours!
I know it involves CT scan, and tattooing but not sure what else. I have to have 25 sessions, 20 full breast and 5booster. I’m hoping I get my start dates for this to get my life back to normal.x
If anyone wants a smile, here is a conversation I’ve just had with my mother.
Mum: “how is your face?”
Me: “my face is fine…(puzzled voice)… what might be wrong with my face?”
Mum “I thought you said that the radiotherapy had made you a bit pink?”
Me: 'yes, on my breast - where I’m getting the radiotherapy"
Mum; “Oh - I assumed it would be your face that went pink”.
pause…
Mum: “have you thought about wearing suntan cream?”
!!!
Hi Leprechaun
Just to echo Nat’'s comments.
I had my planning appointment last week and start rads tomorrow.
I felt really anxious the day beforethe appointment but had some very encouraging comments here on the forum.
The whole appointment was less than an hour. Very very simple
Scan
Tattoo markers
Chat
Consent firm signed
Done and driving home.
You will be done before you know it.
Come back on the forum and let us know how you got on
Best wishes xx
6 left now!! Which is good as I’m getting very bored of going to the hospital everyday.
Andi I hope your first one went well today.
Hope everyone else has a smooth treatment day x
Hi Whytefawn
Everything fine today thank you. Horrendous journey to the hospital lengthy traffic queues due to an accident . Was fretting I wouldn’t make it on time which was more stressful than the treatment!
1 down 14 to go and as everyone says the 2 hour round trip is the worse part.
Nursing staff as ever were excellent, so kind and caring and the treatment itself was just fine.
I looked out for you this morning but they whisked me in on arrival.
Glad to hear you are on the homeward straight.
Will you be ringing the bell on your last day of treatment?
Good luck to everyone else having rads this month and those anticipating a May start.
xxx
Hi feel again like the voice of doom “”
im having number 7 today of 15
i have developed the worst shoulder pain - think it’s from the position we have to lie in and my ME
been twice to GP
cant use my left arm properly or write infact the whole arm I’d useless and I am left handed
hopIn that the Rads haven’t damaged my nerves - as having shoulder and breast Zapped !!!
Full of opioids / naproxen and voltarol gel but excruciating and thinking this may be the last I can endure
juat cant do it :(
Hi Bizzylizzy ,I have ME so appreciate that often things are just that little bit harder for us than the average person and our reactions to drugs /treatments can be more extreme. Have you asked the radiographers if there is anyway they can change the position of your arm ? There was a lady on the forum who had had a bad shoulder injury and they managed to work round it .Hope you can manage to get through your remaining sessions .Jill x