April 2018 Radiotherapy

Sorry I can’t be more helpful Bizzy Lizzy but I hope you find something to ease your shoulder pain soon. Your rads team may have Some ideas.

How everyone got in today? I’ve had 10 with 5 to go!! Had my review and the next review will be after my last one. Can’t wait as going to the hospital every day is getting really boring now.
My skin is now a bit pink like sunburn. Radiologist was ok with it and said to just keep applying cream.

Done 7 of 19 now. Going a bit pink and feeling swollen but also just getting bored of going to hospital every day. I want this over now!

 

felt very tired today but hoping that’s a one off and not bad fatigue. Will get an early night…

 

BizzyLizzie - hoping you’re ok. 

11 done and 4 to go! Skin is a little sore and spotty but so far holding up ok. How is everyone? X

Hi to all the lovely people on here going through so much.
I had my consultation you were right Andi it went very smoothly in and out within an hour.
I start my treatment next Tues I have 23 I have my end date of 25th May which just made me feel happy to see an end date.
It’s very brave of you all.to share your stories and it helps me alot.
I’m going to get plenty of cream as I’m very fair skinned and have sensitive skin. I’m going to try and keep active like you all suggest.
I wish you all.the best with your treatments and your all doing well.keep positive.
I hope.you all are enjoying our much needed sunshine ?

Leprechaun
well done on getting through planning.
The actual rads sessions are really very quick. I have had 3 now and each one has been in and out (including undressed / dressed) in less than 30 minutes.
The staff are wonderful so don’t have any concerns. Don’t forget to pop back on here and share your progress.
WhyteFawn
Well done …you are nearly there. The bell is in your sight!
My appointment times have been varying every day and as I am in LA8/9 I haven’t seen you in the waiting room .
What time is your last session next week? Would be nice to be there to congratulate you.
Love to all xxx

Great news Andi you’re ticking those sessions off.
My last one on Tuesday is 9.10 and I’m down to be on la6 but that could change. I’ve mostly been on 5 or 6 but did go on 7 the other day.

Hi everyone,
Hope you are all doing ok, and those of us with side effects are getting the help and support we need. I started day 1 of rads today. It was a long day and a bit emotional as I had to go back to the hospital where I had my chemo. Felt like a cancer patient again, after having a couple of months of feeling almost normal(except for on and off fatigue). 4 hour round trip today. Hoping to get it down to a couple of hours as time goes on.
What a lovely sunny afternoon to come back to though. Enjoyed watching the kids in the paddling pool, lying in the sun and a cheeky evening cider(!) Guess that’s NOT what they meant when they said I should drink more. Well, one day down, 19 to go…
Cx

Hi Everyone
4 of 15 today and no side effects as yet. When do they start? Drinking 2ltrs of water and cream 3/4times each day. Actually looking forward to having the weekend off. Not because of the treatment, just the long tedious journey and queuing for the car park.
How is everyone getting on?
WhyteFawn not long now. I will pm you.
Cathysid /Nat how was the session today?
Bizzylizzy how is the pain now?
Hope everything goes smoothly for all having rads this month
xxx

Hi everyone!

Just sitting in the waiting room waiting for number 9 of 19. Tomorrow’s number 10 will mean I’m half way through…

Am a bit pink and sore but not too bad. Feels like mild sunburn. I’ve been getting more tired this week - but am just going to bed an hour earlier and functioning fine during the day. The radiographers here rationalise it as just your body coping with the damage to your tissue by needing more time to spend on recovering. So all ok.

I’ve also got cording post surgery and have been seeing a physio which has helped hugely. Just come from a physio session and it’s feeling so much better. She’s quite tough on the cord and it seems to work.

Hope everyone else is doing ok. I’m looking forward to a weekend in this lovely weather!

Yay Nat half way through today. I’m just waiting for no 13 of 15. 2 more to go after this!
What’s everyone up to this weekend?
Is anyone exercising whilst on rads? I want to get back into exercise but I’m conscious of wearing tight sports bras and it rubbing on my rads side. Any ideas?

hi there and thanks so much for your kind messages 

I endured 9th Rads yesterday and saw my oncologist who has prescribed morphine and also steroid tablets 

I am going to have a MRI scan to see what is happening to my shoulder hopefully today 

Tuesday evening it was so bad I had to go to my local hospital and was given IV morphine which helped 

I could still feel the pain but was too out of it to actually care ! 

They are thinking it is the position we have to lie in and having ME is contributing to making it so much worse

number 10 today and determined however much pain I’m in that I shall have it as want the whole experience over asap ( sure I am not alone in this as know we all do ! ) 

thinking it may be a rotator cuff injury:( 

funny thing is my skin isn’t too bad at all - some pinkness but not too sore - shouldn’t tempt fate.

hoping we all get through this as well as possible x 

 

WhyteFawn,

I’ve been exercising throughout - keeps me sane. Just got off the spin bike after a 2 hour session!! Did a (gentle) hour spin the day after surgery and most days since. Have just started back with arm exercises (weights). My surgeon’s advice was to do a routine that feels safe one day, and if I’m not puffy and sore the next day, I can do more the next etc. There was new research a few years ago that says weights actually reduce lymphodema risk.

It seems to be helping my energy levels and isn’t doing my breast any harm. Am wearing a sports bra for it. Hope that helps.

Hi

Sending positive vibes to you all :heart:

I’m on 14/15 now … last one is on Monday ?. Very pink now and have quite a few little spots come up. They mentioned placing both my creams in the fridge to help calm my skin down and I’ve found it feels so much better putting it on now by doing that.

I’m training for a walk and have been wearing a M&S post surgery high impact sports bra that I have found really comfortable ?. xx

Andi, I know how you feel! The travelling to and from the hospital is far more exhausting than the treatment(so far!). I’ve been shattered and I’ve only had 3.
Bizzy Lizzy, hope they have found out why you are in so much pain with your shoulder, and that it will help them to get the pain under control. Well done, persevering through it!
Whyte fawn - only two left! Nearly there! How do you feel? I would recommend exercise(if you have the energy). I self referred to a physio and then she gave me 3 months free at the gym with a personal trainer to help me get back into it without injuring myself. I think the nhs do this all over the country. It’s been fab, and the personal instruction has helped build my confidence and fitness gradually and safely.

Hope you are all enjoying some sun :sunny:

Cxxx

Wow, nearly there Mhaz! Well done x

Hi April women,

I’m up to 10 out of 16 and reieved its the weekend and I don’t need to get to the hospital for  8.30am, though early appointments really help with traffic and parking.

My skin so far is only a bit red under my boob and gradually seems to be getting hotter, breath holding is fine, plus radiographers and staff are so lovely…I’m a bit achy around the shoulder and today got a wave of fatigue which comes and goes. I’ve been drnking lots of water and rehydration tablets as well…I’m doing ok and have found aveeno cream lovely to use and aloe vera gel helps with the heat…all as expected so far and hope everyone else is getting through this okay :) xxxx

Hi Dusty glad your treatment is going ok. My appointments have all been between 8.20 and 9.10 so been travelling into city centre at rush hour which is a pain. Only 2 left to go now!
Hope everyone is having a good weekend x

Good Luck for the final 2 sessions WhyteFawn. You will be ringing that bell very soon xx

MHaz good luck for your last one today!! Just at the hospital now ready for my penultimate one. Looking forward to tomorrow to being over.
Have a good day everyone x

Good luck everyone who finishes this week!

I’ve got 9 more to go. Can’t wait to finish.