Sounds awful, hope it’s something they can sort quite quickly for you
Regarding steroids before treatment I take mine 2 tablets in the morning when I wake and 2 tablets at lunch time as advised by my chemo nurse in the hope I can get some sleep, 🩷
@belle1 this sounds awful, hopefully you’re sorted by Friday and you get to go go ahead with your chemo
Thank you xxx
@gromit12 that sounds horrible, I had the jaw pain a few weeks back and know how it feels, hopefully it eases of soon. Hopefully you get some rest and feel better soon.
Just got a call. My chemo is delayed as they couldn’t get me in for a heart scan till Friday afternoon bit disappointed as the delay for the scan is due to an oversight on their part and my arm is looking a bit better this morning already. Oh well! Waiting to get the new date of my chemo for next week now
Aw that’s rubbish - how are you feeling today?
Oh that is annoying, we just want this stuff over and done with don’t we? It will give you some time to recover though and your body will be stronger for the next slot - hopefully not too much delay?
Yeah defo just want it over with but it’s my mums birthday on Saturday and what’s done is done so trying to just be positive and focus on the fact that I’ll be able to spend time with her feeling more normal rather than wired to the moon on steroids/feeling dodgy!
They’ve called to say they’re looking at when they can book me in the now. They’ve apologised and are going to try to do it in the first half of next week so the delay isn’t too much. Hopefully get a call soon with an update
@belle1 Didn’t get a lot of sleep, but do feel a bit better this morning thanks - I can at least open my mouth!!! The pain just took me by surprise and ibuprofen doesn’t touch it. Diarrhoea is a bit better this morning though, though bit scared to venture v far!!! Going to an outdoor performance of Midsummer Nights Dream tonight!!
@belle1 oh that’s pants- but try to focus on time with your mum, without being a demented Duracell bunny! We all so much want all this done and dusted don’t we? I had an email from our solicitor this morning saying we should have a moving date in the next 2 months- so hopefully chemo will be done, and I’ll be having a break before surgery
Oh dear… hopefully your stomach calms down a bit for later!! Yeah some normal feeling family time will be nice that would be good if it all tied in!
This sounds horrendous @belle1 - how awful for you. I had to take my steroids the day before docetaxel - two mega doses, one in the morning and one late evening. Focus on getting through this first though, we’re all thinking of you xx
Sorry to hear about the jaw pain! I had a sore mouth and obviously horrendous stomach issues but thankfully it eased off after a week. Well done on making it to the Picc flush - I had to dash to the loo twice when I had my flush a few days after the docetaxel
Morning everyone! @gromit12 i hope you enjoy Midsummers Night Dream and that your tummy feels better. Finger crossed your jaw stops hurting x
@belle1 i can imagine it’s frustrating however focus on the weekend at least like you said you hopefully will feel more normal and be able to spend some nice time with your mum.
@isthisreal dont give yourself a hard time about 900 steps we all know how those days are! Big hugs x
Hope you have a wonderful night x
@belle1 please don’t let the delay get you down I know it’s tough as mine was delayed an extra 2 weeks when I had infections. Looking back it was probably for the best, I think lol.
I had my last chemo today and had to ring the bell( I hate anything like this) all the nurses where there and my daughter videoed it
It was a long day as I was there from 9 to 4 so just to let everyone know they go through everything going forward with you, checkups, points of contact etc, , I felt very reassured after it.
My hormone therapy has been changed to 2 years Tamoxifen and then 5 years of Anastrozole. They said my bloods are showing I’m not through the menopause (52). I start these on the same day as radiotherapy, should be in 3 weeks if bloods are ok.
Spoke with MacMillan breast cancer nurse and she’s arranging 5 sessions of reflexology and also a day group with clinicians on how to manage fatigue after all treatments finished. I’ve also been offered yoga, Pilates or tai chi classes in August.
I hope by writing this Im not offending anyone who still has surgery or a lot of chemo yet. I just want to try and give some positivity to this horrible disease.
I’m already feeling pretty rough tonight and Ribena face has started. I’m just praying I get through the next 3 weeks with no complications
Thank you for sharing this @pollyanna1 its nice to be reminded that this road will come to an end (or at least a junction!) for all of us soon. Hope the next few weeks go smoothly for you, it’s been a tough time for you so far xx
@pollyanna1 thank you. Glad I went and took immodium to prevent any disasters, and took the gaviscon with me!!! It was a very good production and the weather held out, though a tad chilly for midsummer!!
@pollyanna1 don’t apologise - we all want to know what happens at the next stage! Yes I still have surgery and radiotherapy to go, but this will be a huge thing out the way when chemo through.