@swk1981 keep taking it easy, you have been through so much so far. I hope you enjoyed the LGFB workshop - if it makes you feel any better, I was 59 (and being treated for breast cancer 
) before I learnt how to do my make up 
and have used more in the past month than the rest of my unglamorous life 
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@ivy-cat I too stuck with the cold cap for 4 cycles of EC but started shedding between 2 and 3, accepting that it hadnāt worked for me was very hard. I do have a great wig and feel very confident going out in that, my family and friends all reinforce how great it looks and am frequently complimented by others who donāt know my situation (which is just bizarre 
) Over time it has got easier and Iāve done various workshops about scarves etc. Thereās no choice but to learn to accept the situation and hope re-growth is as good as @swk1981 and @elle16 - Iām so jealous!!
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I seen this before on the Paxman Facebook page:
Hopefully itās just a bigger shed before it settles. I had a big shed after my second EC and itās calmed down a lot since ā¦. Iāve got the same fear for Docetaxel once I start it so had screenshotted that to remind myself itās normal to have a ābig shedā each time you change drugs. Will keep everything crossed for you!
(PS Iām not sure I can afford another shed as big as on EC that time as my hair literally matted as so much came out at once but Iāll remain hopeful for us )
Hi @kartoffel ive checked my app and my last blood results were updated 22nd may 
, think that might of been at a doctors appointment so donāt think they get updated unless someone goes on to check which is bizarre in my opinion,
But the hospital did ring this afternoon to say my neutrophils are 2.5 so I need to carry on with the injections for the next 3 days, would be easier if they updated my app x
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Iām so sorry in advance everyone but I have a poo question for those whoāve done Docetaxel.
Obviously the 2 week diarrhoea was a big feature of my neutropenic sepsis and it never fully stopped before this cycle. Just lessened to non-urgent status.
Itās back with a vengeance this time and Iāve been probably 8/9 times today and itās now hit the explosive lava stage and lots of abdominal cramping.
Has anyone else had this as a normal sign. Not sure whether this is what everyone gets (but I had it longer last time due to being so unwell) OR whether I should call it in?
Temp spiked briefly this afternoon to 37.6 but 20 mins later was normal without analgesia so probably a blip.
Mouth is sore but not infected sore and nothing else that I would say is alarming.
Just would like to know if anyone else has had temporary lava poop on Docetaxel for a day or two and if thatās your normal. If so, Iāll just see how I am tomorrow. Donāt want to have to go in and them say diarrhoea is normal and Iāve just hung out in bacteria hell for nothing. Xx
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@belle1 - thank you so much for this! Iāve not got any bald patches (yet) but itās definitely getting thinner. I was hoping docetaxel would be less harsh than EC but maybe not. As long as I can get through to the end and keep a decent amount of hair Iāll be happy x
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@swk1981 - I phoned the emergency helpline once I had more than 5 episodes of diarrhoea a day ( I was also having to get up in the night) they made me do a stool sample just to rule out an infection but it was clear. I did read on here last week that taking Imodium half an hour before eating (rather than after eating as suggested) can really slow down the gut and help it ease off - so that could be worth a try? Sounds like you are really going through it again, you poor thing!
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@swk1981 Iāve had 4/5 episodes in a day, but Iāve used immodium, as Iāve been going out and not close to a loo. My traffic light alert card says 4+ episodes to phone. Are you managing to get enough fluid in to replace what youāre losing? Hugs xx
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@belle1 thatās not encouraging for changing to Docetaxel 
so could get a major shed just as Iām finishing oh isnāt this journey fun- not 
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@gromit12 @ivy-cat Thank you. Iāve just sent a text to the 24 hour line about it. Iām now at poop number 10 and itās urgent and explosive so better to be safe than sorry.
Iām not sure I ever said but, when I was in hospital last time, I literally woke up covered in diarrhoea. It was the ultimate lowest point of chemo! The nurse had to help shower me because I could barely stand. Hence my absolute fear of diarrhoea as a side effect!
This diarrhoea is exactly how my neutropenic sepsis started last time. Urgh. Iām not unwell like I was then though. X
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@swk1981 ive not had any sloppy poos this time or last, I did manage to poop normally for the first time with my last cycle but this time Iām back to being constipated, feel like I give birth every time I go to the loo 
hope they ring you back soon and hopefully a poo sample will put your mind at rest xx
@swk1981 if I was you I would phone up itās better to call in and check. I hope you feel better soon.
@ivy-cat sorry to hear about your hair, itās horrible isnāt. When mine all came out I ended up shaving it off and actually felt better in a weird way. I think itās very hard when itās shedding so much. I hope you are feeling OK after your docetaxal yesterday. You are allowed to be whingey as the whole situation is pants! Sending Big hugs xx
@gromit12 i hope your jaw and bone pain has improved today x
EC now completed so off tomorrow morning for my Abraxane chemo fingers crossed no reaction.
hope everyone else is OK sorry I canāt remember everyones names but Iām sending virtual hugs to everyone! Helen x
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Good luck for tomorrow xx
for tomorrow. Hope you get some sleep. Laura xOncology nurse on phone to my consultant and then calling me back. Theyāre semi-concerned but not insanely so. Iāve drunk 3L today thank goodness!
Very scared to fart though! 
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I have finished 4 x AC and started paclitaxel with cold cap. I thought it was meant to be easier on hair but two weeks in and the shedding is pretty heavy every day - one big handful! Still hanging in there but hair is getting very thin. Not sure I will have enough to last 3 more sessions.
Does anyone know if it will slow down on paclitaxel? Thought this was meant to be lighter than docetaxel but guessing not, as my cold cap time is 30 before and 90 so maybe itās as harsh as AC?
Very hard as I hate cold capping as it makes me so sick. But will do anything to try and keep my hair! Tormenting myself slowly here!
Any advice appreciated, thanks
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the moving forward course both online and in person has helped lots of people, sometimes people get what they need for themselves after one day of the course and others stay for the 2 days I know lots who attend stay in touch with each other after the course and itās up to you how much you share within the safe environment of the moving forward course as you all listen, support and share any tips that work for you as you move forward that might help someone else whoās there 
Shi xx
Morning, how you feeling @swk1981 ? Did they ring you back?
@hc1973 just wanted to let you know Iām thinking of you today and sending lots of love , hope everything goes as smoothly as it can for you xxx