@swk1981 - I phoned the emergency helpline once I had more than 5 episodes of diarrhoea a day ( I was also having to get up in the night) they made me do a stool sample just to rule out an infection but it was clear. I did read on here last week that taking Imodium half an hour before eating (rather than after eating as suggested) can really slow down the gut and help it ease off - so that could be worth a try? Sounds like you are really going through it again, you poor thing!
1 Like
@swk1981 Iāve had 4/5 episodes in a day, but Iāve used immodium, as Iāve been going out and not close to a loo. My traffic light alert card says 4+ episodes to phone. Are you managing to get enough fluid in to replace what youāre losing? Hugs xx
1 Like
@belle1 thatās not encouraging for changing to Docetaxel 
so could get a major shed just as Iām finishing oh isnāt this journey fun- not 
2 Likes
@gromit12 @ivy-cat Thank you. Iāve just sent a text to the 24 hour line about it. Iām now at poop number 10 and itās urgent and explosive so better to be safe than sorry.
Iām not sure I ever said but, when I was in hospital last time, I literally woke up covered in diarrhoea. It was the ultimate lowest point of chemo! The nurse had to help shower me because I could barely stand. Hence my absolute fear of diarrhoea as a side effect!
This diarrhoea is exactly how my neutropenic sepsis started last time. Urgh. Iām not unwell like I was then though. X
4 Likes
@swk1981 ive not had any sloppy poos this time or last, I did manage to poop normally for the first time with my last cycle but this time Iām back to being constipated, feel like I give birth every time I go to the loo 
hope they ring you back soon and hopefully a poo sample will put your mind at rest xx
@swk1981 if I was you I would phone up itās better to call in and check. I hope you feel better soon.
@ivy-cat sorry to hear about your hair, itās horrible isnāt. When mine all came out I ended up shaving it off and actually felt better in a weird way. I think itās very hard when itās shedding so much. I hope you are feeling OK after your docetaxal yesterday. You are allowed to be whingey as the whole situation is pants! Sending Big hugs xx
@gromit12 i hope your jaw and bone pain has improved today x
EC now completed so off tomorrow morning for my Abraxane chemo fingers crossed no reaction.
hope everyone else is OK sorry I canāt remember everyones names but Iām sending virtual hugs to everyone! Helen x
3 Likes
Good luck for tomorrow xx
for tomorrow. Hope you get some sleep. Laura xOncology nurse on phone to my consultant and then calling me back. Theyāre semi-concerned but not insanely so. Iāve drunk 3L today thank goodness!
Very scared to fart though! 
3 Likes
I have finished 4 x AC and started paclitaxel with cold cap. I thought it was meant to be easier on hair but two weeks in and the shedding is pretty heavy every day - one big handful! Still hanging in there but hair is getting very thin. Not sure I will have enough to last 3 more sessions.
Does anyone know if it will slow down on paclitaxel? Thought this was meant to be lighter than docetaxel but guessing not, as my cold cap time is 30 before and 90 so maybe itās as harsh as AC?
Very hard as I hate cold capping as it makes me so sick. But will do anything to try and keep my hair! Tormenting myself slowly here!
Any advice appreciated, thanks
1 Like
the moving forward course both online and in person has helped lots of people, sometimes people get what they need for themselves after one day of the course and others stay for the 2 days I know lots who attend stay in touch with each other after the course and itās up to you how much you share within the safe environment of the moving forward course as you all listen, support and share any tips that work for you as you move forward that might help someone else whoās there 
Shi xx
Morning, how you feeling @swk1981 ? Did they ring you back?
@hc1973 just wanted to let you know Iām thinking of you today and sending lots of love , hope everything goes as smoothly as it can for you xxx
Thanks @elle16 and @gromit12 just leaving now. Hope you both managed a good night too
I hope @swk1981 you got a call back and everythingās OK
Helen x
3 Likes
@swk1981 - really hope things are easing off for you. I was also told to take dioralyte when my diarrhoea was really bad to help with rehydration.
Here is the advice I saw on another page on here last week which may help:
Iām going to try it if the diarrhoea kicks in again as it really is so debilitating and I need all the help I can get! Please let us know how you are getting on, Emma x
4 Likes
@SL255 i think it depends if it is dose dense (I.e over 4 sessions) or weekly as people with weekly doses seem to have slightly better responses with their hair on Paclitaxel from what Iāve seen/read.
I was told Docetaxel is less harsh and looking at the Paxman website there is a higher chance of keeping hair on it but tbh it seems like your luck of the draw and what your hair prefers so Iām bracing for this too as I know Iāve been ok on EC except one big shed and subsequent shedding that slowed down (with no bald patches) but no idea how Iāll react to Docetaxel
@swk1981 i hope youāre ok!!
1 Like
Morning everyone @hc1973 good luck today and hopefully all goes well for youš¤
@swk1981 I hope youāre feeling better or have even managed to get help and get this under control. I only ever had this once and that was enough. Sending you 
.
Hopefully everyone else is well or well as can be expected.
Seen my GP yesterday about these falls, he did all the neurology and reflex tests and said everything was grand.He Phoned our regional cancer centre and theyāre gong to phone me with an appointment for a spinal MRI. Theyāre using that word ā itās just belts and bracesā again. I do understand they have to check these things out but now Iām absolutely petrified imagining all sorts. Normally I try to stay as positive, Iām putting up a front for my family brushing it off as I really donāt want them to worry but have hardly slept thinking about it.
Hopefully today I get my head round this and get back to thinking itās just weakness with chemo as my GP said this also.
Sorry for the long rant, I just feel at times this is the only place I can be me xxxx
3 Likes
@pollyanna1 itās good that theyāre being thorough but I get it, just another anxiety, and āwhat ifā to add to the already increasing pile what a bummer this chemo life is. Hang in there, hopefully youāll get the MRI quickly and all anxieties will be relieved. Laura xx
1 Like
@SL255 i wore the cap for 4 x EC but lost quite a bit of hair, so decided to stop for the longer infusion regimen of paclitaxel. I had my whispy strands cut by my hairdresser then and I would say that nothing else has fallen out since. In fact my husband has said a few times that there may be regrowth on the monks spot on top. I donāt know about that but wonder if your hair loss is from the end of the AC?
2 Likes
Never apologise for sharing your feelings or these worries @pollyanna1 
I feel blessed not to have had such terrible experiences as you and others on this forum, so the least I can do is virtually share the load and think about what you are all going through, wishing you the best and sending virtual hugs
1 Like