April 2024 chemo starters

I’ve been using Aveeno moisturiser to wash with and Cetraben 3 times a day. I started to use Yellow soft paraffin they gave me yesterday. Around the nipple area has been a bit inflamed. When you initially go for scan it’s like CT they do to measure and get pics. For radiotherapy you are on a board with hands behind head and its like a large square machine that moves to different angles ( depending where they’re giving radiation) the whole process is about 20-30 minutes. I got the accelerated dose in 5 days some people get it over 15 days. I now am moving on to 4 booster to where the tumour was. I was quite nervous my first as I think it was the unknown but nothing to worry about. My main side effects is tiredness and so far slight tenderness and a bit inflamed. It’s nothing compared to chemotherapy. Xxxx

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It takes roughly 20-30 minutes. The first time I felt a bit vulnerable also, now I go in and don’t even pull the curtain to undress as the girls are all chatting about holidays and everyday life and put you at ease. I feel I’ve connected more with these girls than the ones at chemo. I think maybe as this is our regional cancer centre and there’s so many radiologists there. The radiologist told me yesterday they treat 300 people everyday. This made me realise how treatable cancer is now and it’s not a death sentence. Xxxx

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Well I’ve just seen the breast surgeon - providing final chemo goes ahead next week, surgery on 20th August. He is planning a therapeutic mammoplasty. 20% chance of needing further surgery as they don’t take enough! :scream: Last ultrasound couldn’t locate the benign adenoma on the other side- so no surgery that side. And have my pre-op whilst still in the hospital :+1:and insertion of radioactive seed in tumour some tine before surgery, and radioactive dye inserted the day before!

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Are you happy with that @gromit12? Do you feel better at all knowing what’s happening now and a date? X

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Tattoos…why do some places do them and others don’t? I’m not getting tattoos for my 15 sessions?

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@swk1981 think so! Could have opted for basic lumpectomy but due to adjacent fibroadema it could have left a huge dent :scream:good that the benign one seems to have gone. Why they can’t do dye and radioactive seed insertion at the same time :thinking:but I suppose different departments!! It is happening sooner than I’d expected too. And I do like the certainty of knowing. Not impressed with 1 in 5 needing further surgery- can’t they just take a bit more at the time?!! Laura

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Glad you have a good plan in place Laura, it’s always disconcerting when they give you some of those facts. I think you just have to focus on being the other “4” not that that makes it any easier I know!

It’s my last day in Cornwall and we are going to St Ives for a coffee, my energy levels are soooo bad these days. Another filgrastim injection today yuck! Then we are leaving tomorrow at 4am to drive straight to the hospital for my next chemo!

It’s been a hard week on one hand as I haven’t felt well, struggling with the weekly chemo and this frustrates me! but lovely having a change of scenery and seeing the kids and hubby happy.

I hope the sun is shining for everyone :grin:

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@hc1973 glad you have been able to make the best of the week. Weekly chemo must be so tough- how many more sessions have you got? X

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@gromit12 glad you have a plan going forwards, I think it always helps knowing what’s to come and dates to focus on and I hope you are doing ok x
@hc1973 glad you’ve managed to get away, can’t even imagine how tired you must be feeling, you are doing marvellously :heart: must be really tough doing chemo weekly, sending you a big hug :hugs:
@ivy-cat @swk1981 how are you both feeling? Anybody found the miracle cure for taste? All the moaning I’ve done about putting on weight and it’s fell off me since Friday, just can’t eat but I really want too xxx

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Hi lovely helpful ladies,

I’m on day 7 of round 6 and really quite fed up today. My mouth is bad enough with the taste, ulcers, dryness and the cuts at the side of my mouth, but to top it off, today I woke up with a horrid sore throat too! It’s agony when I try to swallow. I’ve tried salt water rinse, Difflam and paracetamol so far. Any other advice?

I would like to just go to sleep and somebody wake me up when this whole thing is over! I’ve got one more round after this still :grimacing:

On days like today, I’m so in awe of those of you who are holidaying, going to the gym, shopping visits etc etc. Well done for being so amazing!

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Just had a call from my consultant oncologist who I’ve had no contact with since the initial pre chemo meeting when she frightened the life out of me!!! Usually see the reg. She told me off for self managing diarrhoea the last 2 cycles, as she said I really should have phoned the emergency number- pah!!- and sit in A&E. I said I was v careful and wasn’t dehydrated. She reluctantly agreed I can take immodium prophylactically when we’re travelling to Somerset- good job as I decided I was going to :rofl::rofl:she’s also delayed my zolendronic acid until I have had my jaw pain ok’d by my dentist. She says I’m now off their books for now as they don’t deal with herceptin, and I’m back with the surgical team. Haven’t had last chemo yet! :scream::scream:

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@elle16 - thanks for asking about me. Felt great yesterday due to mega dose of steroids but crashed today and slept for 3 hours this afternoon! Taste and diarrhoea problems not kicked in yet but pretty sure the awful indigestion will start soon. Sorry to hear you’re feeling so poorly, I really hope you feel better soon :crossed_fingers:
@gromit12 - I’ve had a similar experience with my oncology team. I’ve only seen the oncologist twice and she was in a hurry both times and then a nurse phoned me on Monday to say they were signing me off! Not very reassuring.
@isthisreal - sounds like you are having a terrible time! Are you able to get any help at all? I don’t think you should have to cope with that level of discomfort and pain.

Hope everyone else is OK? @hc1973 - so pleased you were able to have a holiday! And @pollyanna1 it sounds as though your radiotherapy is going well, which is reassuring for the rest of us. Hope @belle1 and @swk1981 are OK?
I’m off for another lie down…. Emma x

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@ivy-cat I’m good thanks. Mouth much better and generally feeling good other than a little fatigued. Next chemo isn’t till next Thursday so hopefully can enjoy a few days before I get hit with side effects again!

Thats mad about the oncologists…. I still have 3 chemos to go as I’m doing 4xEC and 4xDocetaxel so not sure what mines will do.

@isthisreal if your throat continues to be really sore along with the other mouth issues I’d think about phoning the helpline. I can’t think of anything else other than what you’re doing unfortunately. With my ulcers I struggled with food but ice cold drinks and ice cream helped soothe them (and yes I’ll use any excuse for ice cream :rofl:)

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I am feeling a lot better thank you it’s just my mouth and dodgy tummy now, consultant I saw on Tuesday rang me today to just check on me which was surprising and opposite to some of you guys my oncologist has sent me another appointment to see her on the 22nd but I’ve got a feeling it’s to get my picc line passed off to be taken out as they seem a bit reluctant after me being poorly.
@isthisreal have you tried manukau honey in hot water for your sore throat? It’s what the nurses advised me at the start of my treatment and has helped a few times x
@belle1 glad your mouth is feeling better x

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@ivy-cat Emma- here’s hoping you don’t get the side effects, or that they are mild. Awful that we sit waiting knowing what’s about to hit :wink: hope you have a good night’s sleep. Laura xx

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@altoan - forgot to ask you are doing? I know you were feeling really fed up a few days ago - hope you’re feeling a little better?

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@gromit12 it almost sounds like your consultant should be in a sit-com with scaring the bejesus out of her patients like that! It might not be the end of the world being off her books!

I’m pleased you’ve got everything agreed about the surgery so you know what’s coming. And I’m hopeful you will be one of the 4/5 as it’s time for some good luck x I hadn’t heard of therapeutic mammoplasty, but sounds like a great option.

I’m a week behind you so will find out what’s in store for me surgically at the end of next week.

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@belle1 @ivy-cat @elle16 thank you for your advice! I just phoned the helpline who said to monitor my throat in case it gets worse or I start getting any other infection symptoms, and in the meantime dose myself up on paracetamol, ibuprofen and difflam.

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Hi Laura, I’ve got 6 more to go feels a bit relentless!

I’d definitely take Imodium before you go to Salisbury, I took everyone’s advice and did for our journey to Cornwall, I can’t really see the problem with it as the alternative would be a lot worse!!

@isthisreal I’m so glad you phoned them about your throat. It’s best to err on the side of caution. Pre chemo I think we often all just crack on with stuff and then you realise that you really need to notice any change! I really hope you are starting to feel better.

@belle1 and @elle16 hope you are both OK and are managing the side effects.

Hugs to everyone else Helen xx

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@isthisreal apparently everyone is scared of her! She did scare the life out of me at that initial meeting, and scared my sister in law too!! But I was just assertive today- she hasn’t spoken to me during chemo and I know v well what my body is doing, and being a nurse I am not going to be told to go to A&E with diarrhoea, when I have immodium- stroppy patient I am :rofl::rofl:I also pointed out how many half marathons I’d done as it was her that told me I wouldnt be able to do them!!! :rofl::rofl: I’d not heard of mammoplasty either- it’s a bit more complicated than a lumpectomy, but because my tumour is hiding behind a fibroadema, so quite a lot needs removing and there will be a large dent- so this cosmetically pulls the tissue together and pulls the boob up - lollipop scar around nipple and down breast. So may end up in overnight. Was a bit pulled as to whether to just opt for basic lumpectomy as at the moment I don’t care and just want it gone, but I may care 2 years down the line. But I was v clear I didn’t want reconstruction. So it feels like no one is looking after me at the moment - as still one more chemo to go!! :scream::scream:Ho hum!! Laura x

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