You will def have the injections on ec but not palitaxal. They usually start on day 2 and some people have them for 7 days. I have mine around 8pn before bed. They increase your low blood cells x
Jeez! Not sure Iāll be able to do that having never injected myself before
They come preloaded, you keep them In the fridge. Do you have a family member or friend who could help you? I donāt think I could do it myself, my husband does it and I put on numbing cream beforehand x
I didnāt think I could do them either, but surprised myself. They are fairly painless and easy. The needle is super duper fine. I do mine for 5 days. They did say that they could send a district nurse out to me if I couldnāt do it so maybe thatās an option for you too xxx
Silly question but does chemo day count as day 1?
Where do you inject yourself? Stomach? What numbing cream? I may ask for a district nurse. They were lovely when I had to have my 2 drains changed daily after mastectomy. Is it the after effects that are painful?
Iād never given myself an injection but the thought was worse! Itās just aim and fire- they will show you how to do it xx
The numbing cream is from boots. Itās about Ā£5. The district nurses may do it. We donāt have them in our area (bristol. Itās best to do them just before you go asleep. As then youāll sleep thru any back pain. I take 2 paracetamol around 30 mins before the injection then go asleep x
I did it in my stomach whilst lying down- injection didnāt hurt, but they do cause bone pain as the bone marrow is stimulated to produce white blood cells to reduce your risk of infection xx
Yes my husband uses this approach! Aim, fire and then irs done!
Iām having zoledronic acid by infusion every 6 months this is to strengthen bones and increase the white blood cells countā¦
So many questions. I do apologise.
If I need to have injections I can get the numbing cream from my local pharmacy on Monday.
Honestly ask away! Thats what I do! I find that someone knows the answer on here. Whenever I think of something I always ask on here x
Well, thatās me started yesterday - bit of a long day, was at the clinic well before 9 and hooked up to the drip for over 6 hours! Not a fan of the Phesgo injection, stings like a beast but at least over in 5 or so mins. Iām on docetaxel and carboplatin too as intravenous infusions too.
Took a bit of a bad reaction to the docetaxel so they had to stop it immediately and I had uber-antihistamines and another type of steroid I think in my drip, plus they gave me an ECG which looked fine. It was pretty dramatic though, had loads of medics all hustle towards me and start barking instructions at each other, it was like being in Scrubs or something!
They then tried again and it worked fine on a slower drip rate, and the carboplatin was fine too, just boring sitting about for so long. Slept like I was in a coma last night which was nice as Iāve been sleeping poorly since diagnosis - Iām finding having now started the fight, I feel mentally much much better.
Been tired today, some minor joint pain and a total lack of appetite, plus the cannula site is very painful (Iām getting a port before the next infusion thankfully) but managing with some OTC painkillers. Managed to drink lots of water/tea, eat a small meal and do some very light stretching and a short walk in my neighbourhood. I am also proud of myself for managing the growth factor self-injection thingy, I really amped myself up for it to be awful but actually it was nothing so I secretly feel like a badass now lol.
All in all, not nearly as bad as I feared, though ask me again in the next few days when the gastro effects kick in Hope everyone is doing okay today on this lovely spring day
Well that sounds like quite a traumatic day. Youāve come through it though and you seem upbeat. Well done you.
@genericuser1 glad thatās the first over. Well done on the injection, and the getting out for a walk remember donāt wait too long to take anti sickness meds, much easier to prevent than cure. Sleep well
xx
It is realy easy, the nurse will show you how with a dummy seringe, you do it in the tummy, alternating sides, I honestly havent even felt it go in but be prepaired it can cause back pain
yes, I thought it was next day but my nurse said chemo day is day 1
Iām having the z acid too every 6 monthsā¦
Ah well done, one downā¦. X
Glad I found this group, already useful thanks ladies. Had a āday offā from it all yesterday and did normal (old normal) stuff, as itās been back to back calls or appointments recently or so it feels! Went to see menopause musical last night. So so funny, and so true, and then I thought got a load more āside effects ā etc to add on soon from the chemo! X